How Often Should We Change Our Hoses and Other Oxygen InformationJust recently, in one of the Alpha-1 support groups, questions have been asked about how often we should change the hoses on our oxygen concentrators. When reading some of the...Reactions0reactionsComments20 comments
Spring Has SprungYearning, I so want to smell the flowers. Wildflowers are my favorites. Yet, nothing compares to the aromatic lilacs from those beautiful lilac bushes. I remember picking them up when...Reactions0reactionsComments7 comments
You Don't Look SickI want to thank a few of you members from our forums who reminded me of how this feels. I think we all have been through this, but it would...Reactions0reactionsComments3 comments
Using and Wearing Supplemental OxygenAt least once a day, I hear someone say how much they dread wearing supplemental oxygen. Some because their vanity dictates it, some because of prejudice, and others because, the...Reactions0reactionsComments3 comments
Shingles: Good Reason to Boost My Immune SystemEditor’s note: This article was written by Health Leader Jacqueline Harmon and originally appeared on our partner site BladderCancer.net. She shares her experience with shingles while living with multiple serious...Reactions0reactionsComments0 comments
Community Shares: The Painful Reality of ShinglesWe asked our community of Health Leaders to share about their shingles experiences. What topped the list of challenges when dealing with a shingles infection? PAIN! It’s no surprise that...Reactions0reactionsComments0 comments
Staging for COPDGetting a COPD diagnosis is downright scary. So many emotions and questions go through your head and trying to make sense of it all seems like an impossible feat. One...Reactions0reactionsComments27 comments
My Own Experience Through the Disability Process with COPDI have noticed every once in a while in our COPD forums that many people have asked about getting on disability, and I thought I would share my journey with...Reactions0reactionsComments2 comments
The Silent StruggleIt is true that when you have a chronic illness like COPD, your daily suffering will be a struggle that others cannot understand. My symptoms go over their heads. I...Reactions0reactionsComments20 comments
Community Shares: Did Your Doctor Talk to You About Shingles?For many people, a shingles diagnosis will come as a painful surprise. But about 1 out of every 3 people in the United States will be affected by this common...Reactions0reactionsComments0 comments
Taking Care of Those That Care For UsIt is important to remember that our caregivers need some caring of their own. As hard as it is to live with a chronic illness like COPD, our caregivers live...Reactions0reactionsComments10 comments
Four Things All COPD Patients Should HaveThere are 15 million people in the U.S. with a diagnosis of COPD. Each one experiences this disease in unique ways. Some have mild COPD, while others have it severe...Reactions0reactionsComments17 comments
Preparing for an Emergency When You Have COPDWhere I live, here in Illinois, we have to be prepared for everything because of our weather. We have windy, cold winters. In the spring and summer, we have thunderstorms...Reactions0reactionsComments6 comments
Attending Alpha-1 Education DayI’m so excited! I will attend my first in-person Alpha-1 education day in over three years. You all know why: Covid. Alpha-1 is a genetic liver disorder that can cause...Reactions0reactionsComments5 comments
It's a Spring ThingYesterday I saw the first robin of the year. It is always a delight because this is when we know that spring is coming. It’s been a long and cold...Reactions0reactionsComments2 comments
Increasing Your Pulse Oxygen Levels With COPDAfter my mom’s diagnosis, we were all trying to learn how we could help support her health. After learning about pulse oximetry, we felt we had something to measure. Her...Reactions0reactionsComments15 comments
7 Myths About ShinglesShingles is a viral infection that is often misunderstood. Understanding the myths and misconceptions about shingles can help reduce your chances of getting it. Here are 7 common myths about...Reactions0reactionsComments0 comments
Mental and Physical Health With COPDYou may know what COPD is and that it affects your organs. It can affect your body and mind. It’s very important that you see your doctor as scheduled. Maybe...Reactions0reactionsComments2 comments
Update to COPD Guidelines May Benefit YouEditor's Note: Always talk with your doctor before altering your drug schedule or if you have any concerns regarding your treatment. In the early 1990s, some of the world's most...Reactions0reactionsComments3 comments
Catch Your BreathIt is a new paradigm. We must learn to breathe differently by becoming more efficient at moving oxygen around our lungs and expelling used oxygen. I began to study the...Reactions0reactionsComments2 comments