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COPD Frustrations!

What is the most frustrating part about living with COPD?

  1. Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.

    1. I don't get frustrated so much as angry when every morning I spend at least 30 minutes coughing up all the Mucus that accumulates over night. My Wife worry 's that I am putting a lot of drain on my Heart ❤

    2. That is understandable, . Here is an article about coughing that includes a discussion of "huff" coughing, which is a gentler way to cough: https://copd.net/clinical/mucus-with-copd. Maybe it would help put your wife at ease if she read the article as well. - Lori (Team Member)

  2. My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.

    1. It's definitely a lot to process when you're dealing with a new diagnosis ... do you have any questions? We're happy to send you some articles or just offer a space to vent. Take it one day at a time. -Melissa, team member

    2. I'm the same way. I can't sing any more. Some days I sound ok but there are days that I do good just to hum. I've never been a professional singer but I've always enjoyed being able to sing. There are a lot of things that I miss being able to do. But I am learning to take this disease one day at a time.

  3. Having to bring oxygen with you and hoping it lasts.


    1. YES!! Hoping it lasts fr fr!! It’s scary! So, if I can, I just take an extra tank..the fact of putting a new tank on the gauage and praying you do it right!! That’s scary too! Not being so much of a free spirit I’m tied down to this damn o2..I kno it helps me a great deal but I can still say how bad I HATE the fact COPD has ruined my happy life I once had!! Now all I have the feeling for when u boil it down is doom

    2. Hi . I wish you weren't teathered to your tanks. That must be frustrating. I hope you can still find a way to live life as fully as possible. Know that we are here for you whenever you need us. Gentle hugs. - Lori (Team Member)

  4. Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep

    1. I'm glad you are still hanging in there too. While frustrating, it sure is nice to have this type of equipment and technology to keep us going. It sounds like you have a nice system down to help you manage your condition while also wearing oxygen. If there is anything further we can do for you, or if you have any questions, please feel free to reach out anytime. Wishing you all the best. John. community Moderator.

    2. Same here. I call it my leash. I swear it will be the death of me, as it gets wrapped around my feet or gets caught on something & pulls me up short! Frustrating!

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