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COPD Frustrations!

What is the most frustrating part about living with COPD?

  1. Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.

    1. My frustrating moment is I love to dance, walk a lot and also travel, but due to this condition and recently had a bad flare-up with a few other combinations ended up in the hospital. I love the outdoors, and due to this somedays I have to hibernate like the bears do in winter I do in the summer and anything above 80 I am screwed, my asthma and allergies also kicks in.

    2. My heart goes out to you. It's so hard when your health gets in the way of doing the things you love most. Do you have an artistic side you might want to explore? That might be something you can turn to on those days when you can't get outside. Thinking of you. - Lori (Team Member)

  2. My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.

    1. Showering used to take so much energy for the day when I was doing bad that some days it was all I could do! It was exhausting. People don't realize unless they've been through it themselves. YOu can chose to be clean and exhausted or dirty and.. well.. slightly less exhausted! Not great options! Keep on keepin' on, DPM

    2. hey there! I don't want to come off as Ms snooty and know it all, but ... As I was reading that, I was thinking, but you can walk and you can shop. And end up tired, then you can rest, nap time!!! 😉
      I feel for you, I'm tired pretty much all of the time,but I have to kick myself in the butt to make myself do things. I tell myself it's better to do it now, because if I put it off, it's going to be harder the best time I want to. Best of luck!!

  3. Having to bring oxygen with you and hoping it lasts.

    1. This is so confusing to me. How are you supposed to prove that you don't smoke? I hope that you're able to get the oxygen support you need ... just please remember to never smoke while wearing your oxygen as that's very dangerous. No need to apologize for being negative -- it's frustrating and upsetting when we can't get the help that we need or reach a goal when we are trying our best! I think all of us feel that way at times. You can always talk to us, Davoe. Hugs. -Melissa, team member

    2. thanks heaps Melisa from Oz Davoe321

  4. Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep


    1. I get you. Oxygen dependency greatly limits who you are now compared to who you were, independent, self reliant unafraid, and powerful.

    2. Yeah, I said it.

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