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COPD Frustrations!

What is the most frustrating part about living with COPD?

  1. Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.

    1. That is understandable, . Here is an article about coughing that includes a discussion of "huff" coughing, which is a gentler way to cough: https://copd.net/clinical/mucus-with-copd. Maybe it would help put your wife at ease if she read the article as well. - Lori (Team Member)

    2. I feel for you try take care

  2. My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.

    1. I am suffering from COPD and severe arthritis. I try to get some exercise walking with my dog ( it used to be a lot more). Now my joints won’t let me do what I want either. The weight of my portable on my shoulder or back only adds to my efforts to exercise.

    2. I’m in the later part of stage 3 and I also have PMR and some days it’s hurts to get out of bed to go to the bathroom, and then with COPD on top of that. I know what you mean. I hope you have better days ahead.

  3. Having to bring oxygen with you and hoping it lasts.

    1. This is so confusing to me. How are you supposed to prove that you don't smoke? I hope that you're able to get the oxygen support you need ... just please remember to never smoke while wearing your oxygen as that's very dangerous. No need to apologize for being negative -- it's frustrating and upsetting when we can't get the help that we need or reach a goal when we are trying our best! I think all of us feel that way at times. You can always talk to us, Davoe. Hugs. -Melissa, team member

    2. thanks heaps Melisa from Oz Davoe321

  4. Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep

    1. I can relate. I am on 6 and half liters. My Imogen will not support that. I have 2 tanks on a rolling cart. I am always unnerved because oxygen runs out quickly. Soooo, I only go out for Dr appts. At HOME I am using a hi-flow concentrator.

    2. I can relate, the line gets tangled around my feet or caught on something when I go room to room, very frustrating, I live in a 2 story home so the cord has to be long enough to go upstairs.

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