caret icon Back to all discussions

COPD Frustrations!

What is the most frustrating part about living with COPD?

  1. Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.

    1. Do your kids ever share video clips from the games? I always took pictures and videos whenever I did something interesting so I could share it with my grandmother who had copd. I know it's not the same, but it helped her feel connected. If they haven't done this for you, don't be afraid to ask! Sending hugs.- Melissa, COPD team

    2. I understand. I am unable to do events too, it is hard. Can they video tape the game, or even just the portion that that your grand plays? Maybe you can FaceTime each other after the game? Can you get together for a pizza or burger after the game?
      (((Hugs))) know that you aren’t alone, know we are here for you.
      Janet (moderator)

  2. My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.

    1. I wonder what tools you are using to help yourself. Do you use a walker indoors to help you get from room to room, are you using supplemental oxygen as prescribed and do you have a Reacher to help pick up items from the floor? We are all concerned to hear that you are in such a bad way and we are sending healing hugs for peace of mind. Barbra Moore (Moderator)

    2. Hi cronk, and thank you for remaining engaged with the community. I recall you posted something similar in your April 2023 comment, shared with the community. For ease of reference, here is a link to that conversation:
      Based on your comment today, it would seem you are feeling similarly - no real improvement. How do you manage?
      It's understandable just how challenging this is for you - not being able to breathe, as you've described, can easily make someone a little panicky.
      Are you being followed by a physician?
      If there is anything we can do to assist you, please let me or any other moderator/team member know. We have a genuine concern for your good health!
      Warm regards,
      Leon L (author/moderator)

  3. Having to bring oxygen with you and hoping it lasts.

    1. I find the constant worry about your tanks lasting really plays on my mental health. I always make it into a tragedy of 'what ifs.' Barbara Moore (moderator)

  4. Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep

    Please read our rules before posting.