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COPD Frustrations!

What is the most frustrating part about living with COPD?

  1. Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.

    1. I don't get frustrated so much as angry when every morning I spend at least 30 minutes coughing up all the Mucus that accumulates over night. My Wife worry 's that I am putting a lot of drain on my Heart ❤

    2. That is understandable, . Here is an article about coughing that includes a discussion of "huff" coughing, which is a gentler way to cough: https://copd.net/clinical/mucus-with-copd. Maybe it would help put your wife at ease if she read the article as well. - Lori (Team Member)

  2. My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.

    1. Hi . I'm not Melissa, but maybe I can help. Here is an article about both pursed lip breathing and huff coughing you can share with them: https://copd.net/living-with-copd/breathing-strategies. If you look just below the headline, you will see icons you can click to either share on Facebook, print the article or share via email. Here is an article about vitamins and supplements: https://copd.net/living/vitamins-supplements. There is no specific diet recommendation for people with COPD because everyone's needs are different, but here is a great article about COPD and nutrition in general: https://copd.net/living/nutrition-discussion. I hope this all helps and that your friend and relative both benefit from the information. Best wishes. - Lori (Team Member)

    2. Hi! It seems like Lori sent you most of the same articles I was thinking about passing along. There is one more I want to offer, which is a great demo from the American Lung Association for pursed lip breathing:

      https://www.lung.org/lung-health-diseases/lung-disease-lookup/copd/resource-library/pursed-lip-breathing-video


      Additionally, if your relative/friend is open to it, I'd encourage working with a nutritionist if possible. This way they can get personalized advice that we can't provide here.

      Please let us know if you have more questions! Your loved ones are fortunate to have someone in their corner that is willing to learn more. 😀 We're glad to help. -Melissa, team member

  3. Having to bring oxygen with you and hoping it lasts.

    1. Hi . I wish you weren't teathered to your tanks. That must be frustrating. I hope you can still find a way to live life as fully as possible. Know that we are here for you whenever you need us. Gentle hugs. - Lori (Team Member)

    2. I'm suppose to be getting ox2 as well as I have copd overlap I'm 72 yr old male only thing is I ha e to stop smoking ,iv smoked for 50 yrs and is o ne of the few pleasures I ha ve left I feel now it is to late to.stop as damage is done and I shud try and enjoy my time left, not going through withdrawal s,I also hate trying to sleep without coughing an trying to shower ,maybe in a effect world without bombs an.killing a crazy person making decisions for us I'm scared to watch the news now,so I will continue to smoke ,

  4. Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep

    1. I'm glad you are still hanging in there too. While frustrating, it sure is nice to have this type of equipment and technology to keep us going. It sounds like you have a nice system down to help you manage your condition while also wearing oxygen. If there is anything further we can do for you, or if you have any questions, please feel free to reach out anytime. Wishing you all the best. John. community Moderator.

    2. Same here. I call it my leash. I swear it will be the death of me, as it gets wrapped around my feet or gets caught on something & pulls me up short! Frustrating!

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