SamanthaSarube
What is something others might not recognize or see about COPD but you want them to know?
CommunityMember1b3ea2 Member
I was shocked to find out that you can lose control of your bladder when you get to out of breath.
CommunityMember7d3f64 Member
Becky Brooks Moderator & Contributor
CommunityMember3374 Member
That my symtoms are real. Not fake.
CommunityMember7d3f64 Member
Julie Sparks Moderator
Every state has Senior Advocates- often called Ombudsman's that are assigned to each facility and several that assist within each county in each state- that you can reach out to to discuss concerns pertaining to care standards, treatment within every nursing home, assisted living, and skilled nursing care facility. You can reach out to your local Health Department- or search online for the contact info to report your concerns anonymously.. or with your contact info.
I hope that you find some way to get your voice heard in a way that will make a difference for you and those that may be experiencing sub par care- and don't know how to speak up. Stay Safe!
Be Well,
COPD Caregiver Julie
CommunityMembere551a3 Member
Your symptoms are REAL. When there is a misunderstanding about that, you must advocate for yourself and set them straight. It may be time to start eliminating some people from your inner circle so you can make room for those that can comfort you. Don't back down because your symptoms are REAL. Barbara Moore (moderator)
Barbara Moore Moderator
CommunityMember7d3f64 Member
Adios, Thomas
CommunityMember51360d Member
There are many different things for you to be on oxygen