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Unseen Aspects of COPD

What is something others might not recognize or see about COPD but you want them to know?

  1. I was shocked to find out that you can lose control of your bladder when you get to out of breath.

    1. I had an exacerbation and lost. Control of my bowels. It shocked me embarrassed me. But it just happened all the energy my body had was trying to use for me to breathe. Understandable now.

      Sara

    2. Understanding what's going on, and knowing that it's not your fault, can help a little. Are you still recovering from your exacerbation? I hope you're doing okay in this summer heat. Thanks for sharing so honestly with us -- it helps other people reading along know that they aren't alone. Take care! -Melissa, team member

  2. That my symtoms are real. Not fake.

    1. , contending with the emotional and physical toll of COPD is so hard. Our community gets it though and we are here to offer you any support we can! Many deal with incontinence with their COPD and have written about it here: https://copd.net/clinical/urinary-incontinence and https://copd.net/living/an-embarrassing-situation. As for the emotional toll, we aren't professional counselors but we do have some resources we can share: https://copd.net/coping-mental-health-copd and https://copd.net/mental-health/coping-general-resources All the best, Sam S. (COPD team).

    2. The drop in confidence.etc. is real for many. I have it and the many downs that can go with it. Hang in there.

  3. Your symptoms are REAL. When there is a misunderstanding about that, you must advocate for yourself and set them straight. It may be time to start eliminating some people from your inner circle so you can make room for those that can comfort you. Don't back down because your symptoms are REAL. Barbara Moore (moderator)

    1. I hope your appointment goes well for you. Remember to tell your doctor that you don't have a caregiver and ask if he can offer any support for you. Have a safe, bereatheasy weekend. Barbara Moore (author)

    2. I used to be a police officer. It was a problem at times when the man expected his wife to do as he told her and ask no questions. The man above probably learned from his father and possibly grandfather also about just where the woman (women) of the house are to be placed. Now give that man a little sliver in the hand and he may yell and grumble for hours. I cannot understand how a man can feel he is Superior to his mate and think he is in love at the same time. They believe only what suits them. When the man or the woman is so one sided it is very difficult to get the support that is needed for the other. SAD for sure.
      Adios, Thomas

  4. There are many different things for you to be on oxygen

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