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Unseen Aspects of COPD

What is something others might not recognize or see about COPD but you want them to know?

  1. I was shocked to find out that you can lose control of your bladder when you get to out of breath.

    1. CommunityMembera52900i lost control of my bladder and bowels when I was fighting to breath.I understand, thankfully I was at my daughter's house, she and her girls helped me so much . When I was released from rehabilitation I had a couple more episodes turns out co2 was not leaving my body as it should have. Now I yse a by pap machine.

    2. omg yes. So many things no one tells you. The deep breathing exercises would have been nice to know from the beginning.

  2. That my symtoms are real. Not fake.

    1. The drop in confidence.etc. is real for many. I have it and the many downs that can go with it. Hang in there.

    2. hugs I understand you.

  3. Your symptoms are REAL. When there is a misunderstanding about that, you must advocate for yourself and set them straight. It may be time to start eliminating some people from your inner circle so you can make room for those that can comfort you. Don't back down because your symptoms are REAL. Barbara Moore (moderator)

    1. I still have the same old friends but we have a different relationship and that took some getting used. I can't keep up with them anymore so I don't get invited as much, that hurt .

    2. I imagine that hurts deeply. Have you ever tried talking with them about how you feel. I know that can be a very difficult thing to do. Gentle hugs. - Lori (Team Member)

  4. There are many different things for you to be on oxygen

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