caret icon Back to all discussions

Unseen Aspects of COPD

What is something others might not recognize or see about COPD but you want them to know?

  1. I was shocked to find out that you can lose control of your bladder when you get to out of breath.

    1. Understanding what's going on, and knowing that it's not your fault, can help a little. Are you still recovering from your exacerbation? I hope you're doing okay in this summer heat. Thanks for sharing so honestly with us -- it helps other people reading along know that they aren't alone. Take care! -Melissa, team member

    2. CommunityMembera52900i lost control of my bladder and bowels when I was fighting to breath.I understand, thankfully I was at my daughter's house, she and her girls helped me so much . When I was released from rehabilitation I had a couple more episodes turns out co2 was not leaving my body as it should have. Now I yse a by pap machine.

  2. That my symtoms are real. Not fake.

    1. The drop in confidence.etc. is real for many. I have it and the many downs that can go with it. Hang in there.

    2. hugs I understand you.

  3. Your symptoms are REAL. When there is a misunderstanding about that, you must advocate for yourself and set them straight. It may be time to start eliminating some people from your inner circle so you can make room for those that can comfort you. Don't back down because your symptoms are REAL. Barbara Moore (moderator)

    1. I used to be a police officer. It was a problem at times when the man expected his wife to do as he told her and ask no questions. The man above probably learned from his father and possibly grandfather also about just where the woman (women) of the house are to be placed. Now give that man a little sliver in the hand and he may yell and grumble for hours. I cannot understand how a man can feel he is Superior to his mate and think he is in love at the same time. They believe only what suits them. When the man or the woman is so one sided it is very difficult to get the support that is needed for the other. SAD for sure.
      Adios, Thomas

    2. hi again. Sounds like they need to go to your appointments. My husband finally got it, he stopped trying to smoke around Mr. Stopped smoking in the house started treating me the way should have since I ended on life support. I am relieved he finally got the picture it took him awhile.
      Just have two different family members nor only bring you but stay through the whole appointment

  4. There are many different things for you to be on oxygen

    Please read our rules before posting.