What do you want to read about in articles about COPD?
What kind of content are you looking for? Is there a specific topic you'd like us to cover? Tell us more about it!
I'd like to know about the zepyhr valve. what ae the qualifications to receive?
I have been diagnosed with MILD-MODERATE COPD for 3 years now, and currently am, JUST FOR THIS DAY, high functioning, with my breathing, rarely running out of breath thus gasping..Thank you COPD/LUNG Research overall😊!!
I am prescribed, simply one single medication, which is TRELEGY ELLIPTA .A one DEEP INHALED PUFF, once in the am, COPD Lung Medication 💊, and as of tonite’s ‘at home breathing test’, breathing ONLY, natural air oxygen, with a rubber gizmo on my finger, attached to a 3”X3” black oxygen monitor, may quite possibly, not have the need any longer, again ‘ Just for today’, to use additional O2 at nite, from a Concentrator
My MD has never mentioned seeing a PULMONOLOGIST, nor ever referred to any such term as ‘STAGES of COPD’?!?
I don’t believe I would qualify for this new ‘damaged lung 🫁 implant’, specifically inserted in the damaged part of the lung(s), to improve breathing, by the person breathing purely thru the healthy part of the lung(s).
If I am interpreting the article correctly, this recently approved, COPD Medical Development, is PRIMARILY for COPD Patients, with SEVERE Emphysema ..
Please LMK, if I am on target with this info, or not..
Especially the ‘STAGES’ of COPD, that a writer in here referred to, as it is a new Diagnostic Evaluation Level Term, for the DIAGNOSTIC COPD part, of my COPD..
Currently, my personal health status, which is overall, ( in ADDITION to COPD, I have Stage 3, CKD, with lastly, but is extremely important for my lifestyle, as well as, these 30 plus steps I need to ambulate, to get up to and down from my condominium in a rehabbed, 1911, old brick schoolhouse, a ‘being treated’ BLOWN OUT MENISCUS), continuing to be a healthfully stable me!
Best of all, after an ‘at home, overnight, without additional O2 breathing natural O2 specialized test’, I quite possibly might need any ADDITIONAL O2, at nite!!
Traveling 🧭 🧳 ..is one of my primary goals, as the CONCENTRATOR that’s made my night O2, is not, to say the least, easily moved !
My apologies for my extremely extended comment..
Keep Fighting The Good Fight
G.L.
Maine
😊💟😊Hi
. Considering how well you are breathing at the moment, you are probably right about not qualifying for Zepyhr valves. It's the kind of option you only want to consider if you absolutely must, given that it isn't effective for everyone. Have you asked your doctor why you haven't been referred to a pulmonologist? That seems odd. I would think your doctor would want your COPD treatment in the hands of an expert in that field. Wishing you the best. - Lori (Team Member)
I would like to see the latest news on COPD. The latest drugs. More on Tai Chi. Is much money going to COPD research now?
I’m at the point in my journey with this life altering lung issue that I know all the pitfalls and all the misery that comes with having this lung problem, I hate to say disease.
I haven’t been able to participate to much lately so maybe this is already on the site but if not I would love to see a section on what people are doing to improve their situation. Habits they found that made a difference in their quality of life.
I’m again determined to do all I can to at the least live as comfortably as possible with this issue and at the very best, that there may be a cure. I never give up total hope that it can happen.
I do realize those who are newly diagnosed or perhaps a decade or more ago are depressed. Suffer from anxiety. If you can’t breathe well if affects everything in your life.
I personally still go through depression but not as much as I use to. I’ve had copd for almost 17 years. I remember being scared, going through awful exacerbations. Seeing the disease progress. Then getting on what I call my journey like we all do. Listening to the news while writing and heard Robert Duvall who was 95 just passed away at home peacefully. He said that we all will close our eyes one day but until then to live as well as you can every day and try to enjoy your life as much as you can.
Sorry for getting perhaps off topic but I never want to offend anyone but I’m a veteran now & want education on new ways to help me physically, mentally, emotionally and spiritually.
I can’t cry anymore because my life changed dramatically after receiving the diagnosis.
That’s not to say I will never be depressed again.
I practice meditation and living in the present & that has been very good for me. I really just want to help other copdiers learn, adjust, and know life is always changing and so we are too. ♥️
Thank you for your letter. I am really trying to live in the now, but I have a long way to go. I want to enjoy the rest of my life and not dwell in despair and waste what time I have left. Letters like you wrote do help me and actually your words have made me feel better. I am not just saying that. Being miserable and worrying about the future is really a horrible waste of time. It accomplishes absolutely nothing. Just saying those words actually makes me feel better. Thank you for writing to me. I am so glad that I found this site and can talk to other people that are dealing with this horrible illness. Please take care of yourself and I hope to talk to you again.I thought I replied to you earlier today but either forgot to click send or I’m loosing my mind.
That’s why I like a site like this to learn & share ways to help each other. I wish you all the best & it’s nice we can chat when we need to or just want to. 👍
This is my first time ever reaching out to anyone. I'm going to turn 65 in April. Need to look into Medicare " Because I'm in my window" I smoked from age 10 till age 55 when I couldn't breathe one night. That was 10 years ago in January. Still have the pack of smokes for the next day. Never had a craving. I'm not really sure how these things work, I feel like I'm just rambling, but oh well. I'm a Marine Corps. Vet from the 80's Never saw any action but did my time ang got my Honorable Discharge. I've never used the V.A. I always felt it's for my Brothers and Sisters who really need it. I got diagnosed with C.O.P.D. in 2017 and I've had some ups and downs. Luckily I was able to buy my own Inogen in January 2020 during the Covid mess. It was my workhorse up till 2025 and now I work from home and use a loud home unit. I still use the inogen when I go out. So, after all of that, I got on here to see if anyone uses 4 liters of oxygen. I have had my machines on 3 for the last 2 plus years. Last night I had trouble just laying down and I'm thinking of turning my machine up. sorry for being so LOOOONG winded. Thanks for Listening
yes a spectator is exactly how I feel especially when I'm going through a flare up.
Has anyone spoken to you about exercise, how important it is for those of us on this journey? Even on days when all I can do is sit I still try to get some form of cardio exercises. I also do deep breathing exercises and blow up a balloon to help the lungs. Move it or lose sticks in my brain everyday.
Wishing you the best 😀im stage 4 copd emphysema brocraslitis on 4 liters in the day and have to sleep with trigley machine with 6 liters of oxygen running threw the machine.
Dminor9, Thank you and I’m doing good. Hope you are too. How’s that new medicine you got on.
Hope your wife is still improving. How are your grandchildren? May God bless you.,
Playing a musical instrument is very soothing and satisfying. It is not as easy as some people think however. I am lucky as I was blessed with a ear for music. I play by ear and am self taught. I have known many musicians who were taught and sound just like their respective teachers. I didn't want that. I wanted to just be me and I accomplished that. Plus playing music is fun! I hope you give harmonica a try. Just play around with it and see what happens. One thing for sure, they are not expensive. So that is good. I noticed at the end of this thread, that a poster has his email at the end of his post. I am doing the same for you to email me about getting some of my music. Take care and God Bless!Hi
. I'm sorry. I had to remove your email address from the comment because it violates our community rule #6, regarding sharing contact information (https://health-union.com/community-rules/). I know it's frustrating, but anyone can read the content here without joining the community. That means scammers can put together your email address with some deeply personal information about you and use that information to fake familiarity or concern. I wish there was a better way. I've scrolled through the thread and I haven't found that other email address, but I'll keep looking. Thanks for understanding. - Lori (Team Member)
