What do you want to read about in articles about COPD?
What kind of content are you looking for? Is there a specific topic you'd like us to cover? Tell us more about it!
I'd like to know about the zepyhr valve. what ae the qualifications to receive?
thank you for being so open and candid. Yes almost 4-5 years ago I too only read great reviews and I was so excited but originally was told I wasn't bad enough to qualify. Then 3 years ago I got Covid again along with pneumonia, I was sick for months but still in the process of seeing if I qualified . That took over a year and by that time I was starting to hear more negative experiences with the valves. The surgeon I interviewed with was really hard to get ahold of and I when I mentioned my fears due to the reviews he didn't do much to make me feel better. So between the reviews and the doctor I changed my mind. Hi Vickey I went thru the procedure and found that my lungs are not the same size ,I don't remember what it's called but they could do it good luck.
I would like to see the latest news on COPD. The latest drugs. More on Tai Chi. Is much money going to COPD research now?
Iām at the point in my journey with this life altering lung issue that I know all the pitfalls and all the misery that comes with having this lung problem, I hate to say disease.
I havenāt been able to participate to much lately so maybe this is already on the site but if not I would love to see a section on what people are doing to improve their situation. Habits they found that made a difference in their quality of life.
Iām again determined to do all I can to at the least live as comfortably as possible with this issue and at the very best, that there may be a cure. I never give up total hope that it can happen.
I do realize those who are newly diagnosed or perhaps a decade or more ago are depressed. Suffer from anxiety. If you canāt breathe well if affects everything in your life.
I personally still go through depression but not as much as I use to. Iāve had copd for almost 17 years. I remember being scared, going through awful exacerbations. Seeing the disease progress. Then getting on what I call my journey like we all do. Listening to the news while writing and heard Robert Duvall who was 95 just passed away at home peacefully. He said that we all will close our eyes one day but until then to live as well as you can every day and try to enjoy your life as much as you can.
Sorry for getting perhaps off topic but I never want to offend anyone but Iām a veteran now & want education on new ways to help me physically, mentally, emotionally and spiritually.
I canāt cry anymore because my life changed dramatically after receiving the diagnosis.
Thatās not to say I will never be depressed again.
I practice meditation and living in the present & that has been very good for me. I really just want to help other copdiers learn, adjust, and know life is always changing and so we are too. ā„ļøoh & Iām going to buy a new harmonica and as dminor9 says their not expensive.
Music therapy for us šand , started a "hang out" forum here https://copd.net/forums/hang-out-spot if you are interested. Good thinking, Vicky! - Lori (Team Member)
This is my first time ever reaching out to anyone. I'm going to turn 65 in April. Need to look into Medicare " Because I'm in my window" I smoked from age 10 till age 55 when I couldn't breathe one night. That was 10 years ago in January. Still have the pack of smokes for the next day. Never had a craving. I'm not really sure how these things work, I feel like I'm just rambling, but oh well. I'm a Marine Corps. Vet from the 80's Never saw any action but did my time ang got my Honorable Discharge. I've never used the V.A. I always felt it's for my Brothers and Sisters who really need it. I got diagnosed with C.O.P.D. in 2017 and I've had some ups and downs. Luckily I was able to buy my own Inogen in January 2020 during the Covid mess. It was my workhorse up till 2025 and now I work from home and use a loud home unit. I still use the inogen when I go out. So, after all of that, I got on here to see if anyone uses 4 liters of oxygen. I have had my machines on 3 for the last 2 plus years. Last night I had trouble just laying down and I'm thinking of turning my machine up. sorry for being so LOOOONG winded. Thanks for Listening
Thank you Melissa. I'm going to talk to my Dr. next week and we'll see from there šhappy to hear you have an appointment. Keep us posted as to how you do.
Dminor9, Thank you and Iām doing good. Hope you are too. Howās that new medicine you got on.
Hope your wife is still improving. How are your grandchildren? May God bless you.,
Playing a musical instrument is very soothing and satisfying. It is not as easy as some people think however. I am lucky as I was blessed with a ear for music. I play by ear and am self taught. I have known many musicians who were taught and sound just like their respective teachers. I didn't want that. I wanted to just be me and I accomplished that. Plus playing music is fun! I hope you give harmonica a try. Just play around with it and see what happens. One thing for sure, they are not expensive. So that is good. I noticed at the end of this thread, that a poster has his email at the end of his post. I am doing the same for you to email me about getting some of my music. Take care and God Bless!Hi
. I'm sorry. I had to remove your email address from the comment because it violates our community rule #6, regarding sharing contact information (https://health-union.com/community-rules/). I know it's frustrating, but anyone can read the content here without joining the community. That means scammers can put together your email address with some deeply personal information about you and use that information to fake familiarity or concern. I wish there was a better way. I've scrolled through the thread and I haven't found that other email address, but I'll keep looking. Thanks for understanding. - Lori (Team Member)
