What do you want to read about in articles about COPD?
What kind of content are you looking for? Is there a specific topic you'd like us to cover? Tell us more about it!
I'd like to know about the zepyhr valve. what ae the qualifications to receive?
Hi
. Thank goodness you asked for the referral. Are you working with both doctors to regain weight? Here is an article about COPD and weight loss: https://copd.net/symptoms/weight-loss. I thought you might find it helpful. Best wishes. - Lori (Team Member) What a great idea, to take cruises for vacations. You have everything at your fingertips, but you can simply relax on the deck for a day or get off at port and explore when you're feelling well. Thanks for sharing your positivity and your insight. I hope you have a wonderful time at the beach! - Lori (Team Member)
I would like to see the latest news on COPD. The latest drugs. More on Tai Chi. Is much money going to COPD research now?
I’m at the point in my journey with this life altering lung issue that I know all the pitfalls and all the misery that comes with having this lung problem, I hate to say disease.
I haven’t been able to participate to much lately so maybe this is already on the site but if not I would love to see a section on what people are doing to improve their situation. Habits they found that made a difference in their quality of life.
I’m again determined to do all I can to at the least live as comfortably as possible with this issue and at the very best, that there may be a cure. I never give up total hope that it can happen.
I do realize those who are newly diagnosed or perhaps a decade or more ago are depressed. Suffer from anxiety. If you can’t breathe well if affects everything in your life.
I personally still go through depression but not as much as I use to. I’ve had copd for almost 17 years. I remember being scared, going through awful exacerbations. Seeing the disease progress. Then getting on what I call my journey like we all do. Listening to the news while writing and heard Robert Duvall who was 95 just passed away at home peacefully. He said that we all will close our eyes one day but until then to live as well as you can every day and try to enjoy your life as much as you can.
Sorry for getting perhaps off topic but I never want to offend anyone but I’m a veteran now & want education on new ways to help me physically, mentally, emotionally and spiritually.
I can’t cry anymore because my life changed dramatically after receiving the diagnosis.
That’s not to say I will never be depressed again.
I practice meditation and living in the present & that has been very good for me. I really just want to help other copdiers learn, adjust, and know life is always changing and so we are too. ♥️You said alot, tnx. I have s hard time getting out of depression, and guilt for smoking, although I quit many years ago. The isolation caused by this disease is overwhelming. Like your positive attitude😇
@So happy you quit smoking years ago. That’s quite the accomplishment. Most of us here know how insanely hard that habit was so difficult to overcome. Congratulations!!!
I’ve also suffered from the isolation but it can get better.
I feel like I’ve started a new life. That is worth celebrating.
Everything changes, time doesn’t sit still.
Please give up the guilt for smoking. We can’t change it. I’m on a journey for wholeness even with this health issue.
I had to be at a hospital for a week as my husband had an ablation on his heart. He is good now. I would normally be in fear of getting sick but I took every precaution I could as I needed to be with him. I’m glad this was before flu season & all started.
I was quite social before copd & now not so much. It took me several years as I too was depressed.
Do you have family that lives with you?
I’ve learned solitude can be beautiful & so peaceful at times. It’s not the same as loneliness.
Many things in this world seem upside down to me. Crazy! I’m happy that we can email, FaceTime, video sharing for events I have to miss but I can feel a part of to a degree.
Try to keep your chin up. I’ve found Buddhism to be a practice that helped me immensely.
Westerners don’t like to even think about suffering in any form but it is a part of all of our lives. Accepting that reality helps me to be free.
We’ve all made mistakes, errors in judgement & we are human & can change & be forgiven. 😊
This is my first time ever reaching out to anyone. I'm going to turn 65 in April. Need to look into Medicare " Because I'm in my window" I smoked from age 10 till age 55 when I couldn't breathe one night. That was 10 years ago in January. Still have the pack of smokes for the next day. Never had a craving. I'm not really sure how these things work, I feel like I'm just rambling, but oh well. I'm a Marine Corps. Vet from the 80's Never saw any action but did my time ang got my Honorable Discharge. I've never used the V.A. I always felt it's for my Brothers and Sisters who really need it. I got diagnosed with C.O.P.D. in 2017 and I've had some ups and downs. Luckily I was able to buy my own Inogen in January 2020 during the Covid mess. It was my workhorse up till 2025 and now I work from home and use a loud home unit. I still use the inogen when I go out. So, after all of that, I got on here to see if anyone uses 4 liters of oxygen. I have had my machines on 3 for the last 2 plus years. Last night I had trouble just laying down and I'm thinking of turning my machine up. sorry for being so LOOOONG winded. Thanks for Listening
My heart goes out to you. You shouldn't have to spend each day feeling like you are simply waiting to die. Have you considered finding a new pulmonologist or getting a second opinion about your treatment plan? I know it's a hassle, but you need and deserve a doctor who is, at the very least, empathetic and communicative. Sending lots of gentle hugs your way. - Lori (Team Member) ty I learned alot
Dminor9, Thank you and I’m doing good. Hope you are too. How’s that new medicine you got on.
Hope your wife is still improving. How are your grandchildren? May God bless you.Hi
. I'm sorry. I had to remove your email address from the comment because it violates our community rule #6, regarding sharing contact information (https://health-union.com/community-rules/). I know it's frustrating, but anyone can read the content here without joining the community. That means scammers can put together your email address with some deeply personal information about you and use that information to fake familiarity or concern. I wish there was a better way. I've scrolled through the thread and I haven't found that other email address, but I'll keep looking. Thanks for understanding. - Lori (Team Member) My Husband is a professional harmonica player in a band and he would beg to differ with you on the price of harmonicas. lol.
He paid $3.95 apiece for them when he started in 1973 and pays over $40 apiece for them now!! The reeds don’t last forever so you have to get new harmonicas. My suggestion would be a Melodica which is a keyboard you play by blowing on a tube connected to it, with an option of using just a mouthpiece to blow into it. I have one and they are great and don’t cost probably more than one of those harmonicas. That should help your breathing.
