why did this happen to me?...I am 80 years old and a Musician (Singer Guitar player) i was out gigging 3/4nights a week quite happily until Lock Down...Reactions0reactionsComments16 repliesDiagnosisCoping
Coughing up phlegm...Does anybody cough up a lot of phlegm? My Dr sent me to the lab to do a sputum test...Reactions0reactionsComments8 replies
Advice ...I am 38 years old and my lungs are severely damaged and I am on the finally stage of emphysema i...Reactions0reactionsComments8 repliesCoping
Products to use that are oil-free for face as well as body when you are on oxygen....I have been told I need to use oxygen now. But you can’t use anything with oil in it on your face or...Reactions0reactionsComments2 replies
Why is my spO2 always 95+ but I'm always SOB. Never found a good answer in my research or talking with my......This causes a lot of anxiety and depression....Reactions0reactionsComments2 repliesDepression
Tip to manage carbon dioxide retention...I retain carbon dioxide and have to monitor my oxygen intake to 1 to stay around 90 saturation....Reactions0reactionsComments2 repliesTips & AdviceCoping
Finding out what is causing continuous exacerbations ?...Now my GP is sending me to an immunologist to possibly get the biologic Dupixent....Reactions0reactionsComments3 repliesFlares Treatment
Shortness of breath when bending over...My chest becomes very tight and shortness of breath. It takes a while to recover. Why is this happening? Anyone else experiencing this?...Reactions0reactionsComments21 repliesBreathing
Anyone have ground glass show up in CT ?scan ?...My lungs show a ground glass haze at the base of both lungs....Reactions0reactionsComments3 repliesSymptoms
What are the effects of oxygen toxicity and how does it occur?How...how does too much oxygen affect the body. What reading indicates you are getting too much?...Reactions0reactionsComments1 replies
Have no idea what to expect !...Then I come home and 2 days later I go for a walk and am extremely out of breath. I am...Reactions0reactionsComments2 repliesBreathingCoping
Getting off to a good start...This is perhaps one of the biggest challenges for me, as I don't 'leap out of bed' with great energy - ha! (Reactions0reactionsComments2 repliesTips & Advice
I still don't understand...He did an x-ray and it was noted on that one that I had slightly over inflated lungs but never mentioned on any...Reactions0reactionsComments3 repliesSymptomsBreathing
Only resident in assisted living with 2 tanks on wheelchair no automatic doors to go thru need to ask for assistance staff not......Need assistance with sorting and removal of deceased and mine family items ???? Assistance info much appreciated thank you...Reactions0reactionsComments1 repliesCoping
Learning the new *normal* and how to tell if I am going downhill...The route to me having a CT scan was at least three years of heavy chest , not so much sob (unl Reactions0reactionsComments1 repliesDiagnosisEmphysemaChronic Bronchitis
Nothing helps me...I have a lot of paperwork to take care of and I can’t even think straight or sit up long enough Reactions0reactionsComments5 repliesBreathingTreatmentCoping
My partner very resistant to being told what to do’...Our relationship is tricky ~ no-go areas. If I stand back, I’m afraid that he’ll deteriorate and die....Reactions0reactionsComments1 repliesCaregiving
So much heavy, thick mucus!...Is there any way to break it up, any way to get rid of it without “choking to death!”...Reactions0reactionsComments2 repliesSymptomsBreathingTips & Advice
Latest CT scan....AS far as I can tell, it means 1 year or less to go. The only thing that bothers me Reactions0reactionsComments33 repliesEnd Stage
