caret icon Back to all discussions

Advice

I am 38 years old and my lungs are severely damaged and I am on the finally stage of emphysema i got diagnosed in 2019 what is the life expectancy for end stage emphysema as what I’ve read is worrying

  1. My heart goes out to you, . You are so young. I know you want some concrete answers, but I am afraid there are none. Many people live for years or with end-stage COPD. Others are not so fortunate. Here is a wonderful article about managing end-stage COPD: https://copd.net/living/understanding-end-stage. I hope it helps.
    Are you a candidate for a lung transplant? You are certainly well within the age range. Here is an article about surgical treatments, including lung transplants, that might interest you: https://copd.net/treatment/surgery-overview.
    The uncertainty can be a difficult thing to life with. Some people find therapy helpful. Regardless, we are here for you whether you need support or just a safe place to vent. Gentle hugs. - Lori (Team Member)

    1. Hi . I am glad you are feeling a bit better. can probably give you better advice as to whether a new evaluation is worthwhile. Hopefully, he will chime in here, but I imagine it would give you some peace of mind. I saw a post today on our Facebook page from a woman whose husband was diagnosed as end-stage 20 years ago. She says his condition hasn't really progressed since. Our bodies can be awfully resilient. - Lori (Team Member)

    2. Hi again. Based on your update here, I do have something further to add that I think will be helpful for you. Your stage is determined by doing a breathing test called a PFT (https://copd.net/clinical/what-is-pulmonary-function-testing). This test will help determine if you are in stages 1-4, as you can see here (https://copd.net/basics/copd-stages/stages-explained). Since stage 4 is the last stage, it is often referred to as "final" or "end" stage. This basically means it is the last or final stage, and in no way determines how good or bad you will be feeling. For instance, I have one patient who is in the final stage of COPD and he is able to live a normal life and experiences no symptoms. The fact that you are in this stage and yet you are still able to stay as active as you describe above is a good sign for you. What do you think? John. community moderator.

  2. Man that is the wrong way of thinking. Having said that . I am 80 and have had COPD since lock down , and yeah at time it does get me down , especially when I am. spinning like a top , but when I still and the vertigo stops and life is a little bit easier. I start to think of the family especially the grant children and my wife Imelda, and the sun comes out in my life. But I empathise with you and how that you live a lot longer .✌peace and love😎

    1. Hi. I would like to second what Lori wrote above, that you can live a long, quality life despite a diagnosis of end stage (severe) COPD. Of course, doctors will sometimes tell people with end stage that they have "X" years to live. And I think this is done mainly as an attempt to get people to take their COPD seriously. A while back I offered some of my tips to a long these lines to people newly diagnosed with COPD/ severe COPD. I will post that article here (https://copd.net/living/6-things-new-diagnosis) if you'd like to check it out. What do you think? John. community moderator.

      Please read our rules before posting.