Let’s Talk Biologics for COPDI’m sure you’ve seen commercials for biologics. Biologic drugs are a newer (although not so new anymore) treatment option often discussed in other communities. I have not personally tried a biologic...Reactions0reactionsComments15 comments
Oxygen Use in TV and MoviesHave you ever noticed oxygen patients on TV shows or movies? It’s something that I never paid too much attention to before they put me on oxygen, even though I...Reactions0reactionsComments13 comments
Tracking The Movement of Your NumbersOne of the things that I wish I had been taught at the beginning of my diagnosis was how to track my numbers. This would help me be more aware...Reactions0reactionsComments54 comments
Dry Nose, Dry Mouth, Dry SkinThe one thing I have learned about taking COPD medication is most will most likely dry you out. It could be puffers or a simple inability to breath easy and...Reactions0reactionsComments2 comments
Ask the Advocates: Running ErrandsWe asked our COPD advocates to share their tips on running errands. Here is what they each had to say. Let’s talk about getting out and about! While we were...Reactions0reactionsComments47 comments
Falling Down and Getting UpThis is the story of how I fell down, landed on my buttocks, and got myself back up again without help from anyone. Being home alone always makes me feel...Reactions0reactionsComments12 comments
Breathing Issues and Frequent Illness in Childhood and Young AdulthoodDid you have breathing issues when you were young? I sure did. I remember having colds, bronchitis, and the flu all the time. My sister and I seemed to be...Reactions0reactionsComments20 comments
Who or What Keeps You Going in Life?If you are like me, you probably have other things besides your COPD that you struggle with that may hinder your will to keep going every day. COPD is hard...Reactions0reactionsComments33 comments
The Daily Agony of Living With COPDOne of the things that I have learned while dealing with COPD is that it is hard for others to understand what we live with every day of our life...Reactions0reactionsComments8 comments
Having Long Covid and COPDLet's talk long Covid. Twenty days after our previous Covid test, my husband and I tested positive for Covid-19. This was the third time. When we tested positive, my husband...Reactions0reactionsComments1 comments
The Silent Suffering: When COPD Meets Lack of UnderstandingEditor's Note: This article discusses domestic abuse and neglect, which may be distressing for certain readers. The cruelest part of having COPD is the people that refuse to understand. It’s...Reactions0reactionsComments13 comments
Do You Belong to an In-Person Support Group?When I was first diagnosed with Alpha-1, I was interested in joining a support group. Would there even be one in my area? With Alpha-1 being a rare genetic disorder...Reactions0reactionsComments0 comments
Community Shares: My Shingles SurpriseRecently, members of our community discussed shingles. Shingles symptoms are uncomfortable, and they can be more severe when combined with autoimmune diseases. It is always an unwelcome surprise when shingles...Reactions0reactionsComments0 comments
Give Me StrengthPlease give me strength in this COPD world. This title really resonates with me. How often have I said those three words: “Give me strength.” If you stop and think...Reactions0reactionsComments27 comments
A Day Out Leads to Ignorance and RudenessI had a doctor’s appointment; the day was lovely, with the promise of spring around the corner. I was happy to get out of the house for a few hours...Reactions0reactionsComments48 comments
Inhaler Use in the Hospital: What to Expect and How It May Differ from HomeEditor's Note: Please note that each hospital admission is unique, and the following account represents only one perspective. When you come to the hospital, things will be different than at...Reactions0reactionsComments11 comments
A COPD Patient Interviews MeI do not always bring this up. But in a conversation today with a patient of mine with severe COPD, I mentioned I had really bad asthma as a kid...Reactions0reactionsComments2 comments
What I Thought Was Eczema Turned Out to Be ShinglesEditor’s note: This article was written by Health Leader Cora Lyn Sears and originally appeared on our partner site AtopicDermatitis.net. She describes her experience of having shingles while living with...Reactions0reactionsComments0 comments
Navigating the Impact of GERD on COPDAccording to Google.com, GERD stands for gastroesophageal reflux disease. Heartburn is the main symptom, but it also affects swallowing and causes food to get stuck in the esophagus. When you...Reactions0reactionsComments9 comments
How Often Should We Change Our Hoses and Other Oxygen InformationJust recently, in one of the Alpha-1 support groups, questions have been asked about how often we should change the hoses on our oxygen concentrators. When reading some of the...Reactions0reactionsComments20 comments