COPD
I have COPD end stage and don't understand why I was never offered oxygen and have only been offered lung transplant. Very stressful as I can't receive a transplant due to heart problems.
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I don't understand it either. It makes no sense. Have you asked your doctor why or can you have oxygen? Doesn't seem like much of a choice to me. Basically, no choice. I wonder if seeking a second opinion or changing doctors would change your treatment program, if there is such a thing. Do you care to share more information on the subject?She said I didn't need oxygen but the test I took say's I do. Yes I'm going for a second opinion. It was hard because she didn't tell me to my face read it on my patient portal. So I called her office and of course couldn't speak with her so just asked if what I was reading was correct and they said yes. It was hard not being told in person.
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I would definitely be changing doctors. I do not understand why so many doctors don't talk to their patients. I am lucky that my medical team is awesome. I always get any question answered by the doctor himself. If I call with any question or problem, I get a call back within 2 hours. Please let the forum know how it all turns out. Stay safe, stay warm, and God Bless.Thank you glad to hear you have a awesome doctor. You stay safe,warm and God Bless. Going to stay positive until I go to another doctor.
Hi there. That is definitely an unusual situation -- even people with very severe COPD can benefit from oxygen. I'm so confused by this. Do you have any news to share since you last posted? Please do the best you can to advocate for yourself so that you can get the care you deserve. Medical decisions should be made WITH you, not for you. Sending hugs, let us know if you have questions or need to talk. -Melissa, copd.net team Will Keep you updated. Have a appointment with cardiologist next week. As I had a heart attack and have a thoracic anyseumn and have to see what he has to say. Thank you for contacting me. Have a awesome day ThankYou, let’s keep in touch
