Welcome to COPD.net Stories

1 min read

At COPD.net, we believe that we are stronger together than we are alone. Living with COPD can be a challenge, but the more we share and support one another, the better off we will be. Whether it’s your own story of how you manage COPD as well as manage complications, to tips on daily living, we want to hear from you!

So please submit your own personal story about COPD, and check back often to read about the stories others in the community share. We hope these stories become a source of inspiration and support for our community.

Submit your story

Join the conversation

Please read our rules before commenting.

ginny13 Member
Is it really possible to have a combination of Asthma, Bronchitis and Emphasima making up COPD. I was told that at different points of my life and in different situations, I may have developed a combination of factors that led up to the final diagnosis of COPD.
1. Leon Lebowitz, RRT Member
 Hi again, Ginny13, and thanks for your question. While we cannot provide medical advice or diagnostics over the internet (for your own safety), your concern certainly warrants a reply. In the most general of terms, it is possible for various and different diseases to affect one person simultaneously. I thought this article might provide additional information for you regarding your concern: <a href='https://copd.net/living/what-exactly-copd' target='_blank'>https://copd.net/living/what-exactly-copd/</a>. I will provide another link for you below. Leon (site moderator)
2. Leon Lebowitz, RRT Member
 Hi again, Ginny13. This part of our website only permits one hyperlink per post, hence the back-to-back posts responding to your inquiry. Your concern about asthma and COPD is addressed in this article: <a href='https://copd.net/clinical/asthma-copd-differ' target='_blank'>https://copd.net/clinical/asthma-copd-differ/</a>. I do hope you find it to be helpful. All the best, Leon (site moderator)
silthib Member
This is a question not a comment. I was wondering if anyone has heard if CBD has any beneficial with people with COPD?
missywormuth Member
Thank you for adding me. I am 51 years old and disabled due to Copd.
1. Leon Lebowitz, RRT Member
 Hi missywormuth and thanks for chiming in. We are glad to have you as a member of our online community. Wishing you well, Leon (site moderator)
beverlydemarco Member
I STILL HAVENT FOUND A SUPPORT GROUP IN THE OCALA, FLA AREA BUT I AM VERY GREATFUL FOR THIS COPD.NET. TEAM, WE CAN SUPPORT EACH OTHER AND LEARN FROM EACH OTHER ABOUT OUR EXPERIENCES WITH COPD, YOU HAVE MANY GOOD IDEAS AND VERY HELPFUL TO SEE WHAT WORKS WITH EVERYONE WITH COPD.I SINCERELY RECOMMEND REHAB, IT HAS REALLY HELPED ME SO MUCH AND ALSO THE NEUBLIZER TREATMENTS HELP TO OPEN UP YOUR AIRWAYS AND MAKES BREATHING EASIER. ENJOY BEING A PART WITH THIS TEAM AND STAFF FOR COPD.NET
beverlydemarco Member
What is a ACAPELLAS DEVISE? I read it somewhere in the COPD.NET web site, but can't find it? THANKYOU. BEVERLY DeMarco
1. Leon Lebowitz, RRT Member
 Hi Beverly and thanks for your post/concern. I think this article may be the one to which you referred: <a href='https://copd.net/living/strategies-improving-cough' target='_blank'>https://copd.net/living/strategies-improving-cough/</a>. Please look it over and let us know. Leon (site moderator)
beverlydemarco Member
HI RHONDA6hobo, THANK YOU FOR YOUR POST COMMENT, I AM SORRY THAT YOU DONT HAVE SUPPORT IN CHIEFLAND OR A REHAB TO GO TOO, PLUS YOUR NOT MEDICARE AGE AND THEY PAY FOR SOME OF IT. BEING WITHOUT A CAR OR GLASSES DOESNT HELP YOU MUCH EITHER. DO YOU HAVE FAMILY TO HELP YOU.? I am 74AND AM VERY LUCKY TO HAVE A REHAB AT MY LOCAL HOSPITAL , I DONT KNOW THE AGE IN CHEIFLAND TO QUALIFY FOR MEDICAL TRANSPORTATION BUT WE HAVE IT HERE IN OCALA,FLA. HOPE YOU GET SOME HELP AND NOT GIVE UP. BEVERLY DEMARCO
ajschulte Member
It was introduced to all the people present during the classes at the pulmonary exercise center. And they had a couple available for sale and I purchased one, very reasonable price, you might try either a pharmacy or a store for medical items only. I don't know if you can find one in your area but maybe you could find a store on line or at the amazon store. I am not sure how it is spelled so I suggest two ways to try. First one would spell alcapella, second would be accapella try both and I hope your search would be successful.
1. Leon Lebowitz, RRT Member
 Hi ajschulte, and thanks for chiming in here. We do have an article published here on <a href='https://copd.net' target='_blank'>COPD.net</a>, which refers to this device. Here is a link for your convenience: <a href='https://copd.net/living/strategies-improving-cough' target='_blank'>https://copd.net/living/strategies-improving-cough/</a>. There are several devices on the market today that are available commercially. It's important to make certain one's doctor supports this type of therapy. We appreciate your input. Leon (site moderator)
beverlydemarco Member
I FINALLY GOT THE ACAPELLA DEVISE FROM MY OXYGEN COMPANY, IT HELPS TO GET RID OF THE MUCUS, I USE IT RIGHT AFTER I USE THE NEBULIZER MACHINE, FOUR TIMES A DAY. I ALSO TRYED THE CPAP MACHINE BUT COULDNT STAND THAT MASK ON MY FACE ALL NIGHT AND SENT IT BACK.STILL TAKING ONE DAY AT A TIME AND TRYING TO BE MORE ENERGETIC BUT SOME DAYS ARE REALLY BAD. CANT COOK OR DO HOUSEWORK ANYMORE AND BATHING IS SO HARD EVEN WITH THE CANOLA ON IN THE SHOWER.
1. Leon Lebowitz, RRT Member
 Hi again, BeverlyDeMarco, and thanks for updating us on your progress. I remember when you were anticipating receiving the Acapella device - you were so excited. And now, you actually do have it and are making good use of it. Using it, as you do, with each nebulizer treatment sounds like it's been very beneficial for you. Keep up the good work!! Warmly, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)
cal7117 Member
What is with the sweats/hot flashes with COPD? These sweats may occur during the night & sometimes during day. At night my hair is wet along with entire body during the sweat period. sure would appreciate answers. JC
1. Leon Lebowitz, RRT Member
 Hi cal7117 (JC), and thanks for your post. You may be aware we cannot provide diagnostics or medical advice over the internet (for your own safety), but your concern certainly warrants a reply. We do have published material here on our <a href='https://copd.net' target='_blank'>COPD.net</a> website. I did a cursory search and was able to isolate 'sweating'. For your convenience, here are the results of that search: <a href='https://copd.net/?s=sweating' target='_blank'>https://copd.net/?s=sweating</a>. Please note the word 'sweat', 'sweating', appears in some of the titles. But, if you look further, you will see also that the topic is mentioned inside the article. I do hope this provides you with some ideas. Have you had an opportunity to discuss this with your physician as yet? Wishing you well, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)