Dramatic weight loss ...Hello I’m new to this forum and I suffer from Stage 4 COPD and recently I have seriously been losing weight and there is nothing that I have been able...Reactions0reactionsComments1 repliesDiet & Nutrition
Spo2 drop...Hello! I have very mild emphysema,chronic bronchitis and a very mild bronchiectasis. Have to say i have rhinosinusitis. My question is: is it normal for spo2 to fluctuate between 95-98%...Reactions0reactionsComments9 replies
New...Hi I'm new here I just need some support...3 years ago I was hiking 3 miles and working as a nurse...alot....now I can barely get off the couch...I walk 10...Reactions0reactionsComments2 repliesCoping
Inflammation...Copd is a inflammation disease now is there anything else that I can do to help myself with this problem and I'm very aware of our medication helps with this...Reactions0reactionsComments3 repliesAwarenessCoping
Emphysema...My Husband got diagnosed with Emphysema just under 5 years ago , he is 54 . It is very prevalent throughout his lungs according to the CT scan . His...Reactions0reactionsComments14 replies
Swollen feet and ankles....Hi everybody, is anyone suffering with swollen ankles and feet, and is it connected to Copd , emphysema.My feet has caused me bother over time with Raynauds , Scleroderma but...Reactions0reactionsComments9 repliesAwarenessCoping
oximizer pendant Cannula...Is anyone in the community using an oximizer pendant cannula? My Pulmonary doctor recommended this for me to use during the day other then the regular cannulas. I found the...Reactions0reactionsComments3 replies
Copd stages ...I definitely don't understand why some doctors do stage of copd and some doctors don't is there a reason for this and in the copd community we learn there are...Reactions0reactionsComments11 repliesAwareness
Cooking with gas ...I’m curious. I have heard some people on oxygen still cook on gas stoves. I have been afraid to do that so I’d like to hear the opinions of others...Reactions0reactionsComments1 repliesAwareness
Rough week ! ...Well this was one of those weeks I wish on no one! Ended up in the ER and a 3 day stay in the hospital. Lets just move to the...Reactions0reactionsComments95 repliesCoping
Portable bi-pap...Been given this bad boy to use 😊. Was a struggle at first but gotten used to it now . Went for a drive lols took my time ,face mask...Reactions0reactionsComments5 replies
My story...Hi all 😁. I was diagnosed in 2018 with Interstatial Pulmonary Fibrosis and COPD. Have been on 24/7 oxygen since. Am taking Esbriet for IPF, unable to tolerate OFEV. Not...Reactions0reactionsComments1 replies
COPD EMPHYSEMA...General practitioners attitude to his diagnosis of COPD EMPHYSEMA. He said that any further tests were pointless and prescribed Trelegy. My psychiatrist insisted on seeing a pulmonoligist and after awaiting...Reactions0reactionsComments11 repliesDiagnosisDepressionTips & Advice
Are you taking NUCALA?...In Nov of 21 I was diagnosed with Esphinophol(sp) Asthma after 4 days in hospital with a COPD FLARE UP. Started NUCALA in early 22 and have not had a...Reactions0reactionsComments4 replies
Shortness of breath ...Does anyone else have trouble with shortness of breath, I'm having real problems and tightness on my chest, but because my oxygen levels are always good so why can't i...Reactions0reactionsComments19 repliesBreathing
BIOLOGIC SHOT...I have never had asthma but my dr.started me on trezpire a once a month shot.its very expensive but your dr.can help you get it approved.takes two weeks to show...Reactions0reactionsComments3 repliesChronic Bronchitis
Got Test Results Today...I got my CT scan and bloodwork test results today. My doctor's FNP called me. I was a little worried it was going to be bad news, because they have...Reactions0reactionsComments13 repliesDiagnosisHealthcare Team
What I Would Like Doctors to Know...When we are diagnosed with COPD, it can feel like receiving a swift blow to the head. We rarely see it coming and often don’t know what it means. The...Reactions0reactionsComments10 comments
Caregiver to my brother...I talk with his doctor tomorrow for the first time. He passed out yesterday and here's his head enough to open up a cut above his eyebrow but would not...Reactions0reactionsComments0 replies
Sats always dropping when moving ...Hi there, I’m writting for my grandma. She’s had copd for a few years now and seems to be worsening, she’s been on home oxygen for just over 7 months...Reactions0reactionsComments10 repliesBreathing
