My story
Hi all 😁. I was diagnosed in 2018 with Interstatial Pulmonary Fibrosis and COPD. Have been on 24/7 oxygen since. Am taking Esbriet for IPF, unable to tolerate OFEV. Not doing anything for COPD and wonder what to do? What about the “numbers”, what is that? I have a home concentrated with a 50 ft air tube, which is fantastic although irritating, and a portable backpack concentrated Activox, which is heavy for me but it works great. I go any where I want, even on a20 day cruise this past January with the family. Anybody have any suggestions?
, thanks for sharing some of your story with us! I'm sure, if they have a similar experience, other comunitiy members will join the conversation here. Have you had the chance to meet with a pulmonologist to discuss your COPD diagnosis? Have they recommended any treatments/medications other than oxygen to help? Also what numbers are you referring to? Happy to help explain there with a little more clarification. In the meantime, here are a few articles on treatments for COPD that you may find helpful: https://copd.net/treatment, https://copd.net/treatment/medication-overview. All the best, Sam S. (COPD.net, team member).
