Is my doctor being honest about my condition?...Fev1 of 85, doc says I have 90 percent lung function and am normal range. I suspect she is not being honest about...Reactions0reactionsComments3 replies
Where is the orange ribbon?...Why isn't there an orange ribbon displayed on this site and the Facebook site?...Reactions0reactionsComments3 replies
I want to take an overnight trip, what would I do for oxygen?...I use oxygen at night. If I want to take an overnight trip what would I do for oxygen?...Reactions0reactionsComments5 replies
Does anyone have insight on this work-related question?...If your accommodated at work to get out of dust but doesn’t include what your real job was do you take a wage loss...Reactions0reactionsComments1 replies
What does "long lungs" mean?...I'm 38 and have had asthma my whole life. I recently found myself at the ER. They did an x-ray on Reactions0reactionsComments1 replies
Does anyone have side effects to Breo?...I have noticed that I am extremely tired in the AM upon awakening, my head seems fuzzy until late afternoon, and I wake...Reactions0reactionsComments3 replies
Stage IV and Rehab...My FEV is 27% and it seems it is getting worse by the day. I do not cough up anything...Reactions0reactionsComments5 repliesEnd StageExercisePulmonary Rehabilitation
FeaturedDoes anyone have or used a portable oxygen system?...Do they work as well as dragging bottles of O2 around? Wishful thinking on my part....Reactions0reactionsComments159 repliesBreathing
What Generator type do I need to get as backup for an oxygen concentrator...Some background, my husband has been using supplemental oxygen 24/7 for a number of years....Reactions0reactionsComments10 repliesTips & Advice
Does inhaling steam with salt water help bronchitis?...Seems to make me feel better or is it just the placebo effect? Or even if it's not the case, is there...Reactions0reactionsComments1 replies
FeaturedIf you'd like, share a picture of yourself so we can put faces to names in our community 💙...Looking forward to seeing everyone's photos!...Reactions0reactionsComments113 replies
Flare up...Dear all I am not a native English speaker and want to know the meaning of flare up exactly , Is it...Reactions0reactionsComments2 repliesDiagnosis
For all that have gone before us....A video song I made... When I Cross over the Rainbow - https://youtu.be/wZOHBxbWSNo...Reactions0reactionsComments1 repliesFriends & FamilyEnd StageCoping
Why do I sleep all the time? This fatigue is dreadful...Hi my lovelies why is it I’m so tired all the time I sleep every afternoon for about 3 hours I sleep...Reactions0reactionsComments1 replies
Foundations Merge to Do More for People With Lung Diseases...https://copdnewstoday.com/2021/03/02/montreal-foundations-merge-helping-patients-with-lung-diseases/ Good to see Canadian researchers are working together...Reactions0reactionsComments0 repliesResearch & Clinical Trials
Concentrator electricity usage...We have 2 EverFlow stationary oxygen concentrators running 24/7 in our home. Electricity costs are $60-70 a month....Reactions0reactionsComments0 replies
What can I expect with a maintenance of prednisone?...I have been prescribed a course of prednisone. I am starting out on 60mg for 3 weeks then then 50mg for 3...Reactions0reactionsComments3 replies
Thin skin due to steroid use...I suffer from extreme thin skin due to prednisone use I get nasty bruises just from bumping into a wall and skin tears that take months...Reactions0reactionsComments8 replies
