Seems like one long long flareup.
I got a flareup abut 5 weeks ago. It wont go away, even with meds. Hospital full, so no beds for iv treatment. Shot in the butt. Hope it works. I do live in the woods, and there is a lot of leaf mold. Cant do much about that except move Anyone else having tree mold make them sick. Love to hear from you.
Hi
, and thanks for your comment. I am hopeful that others in the community will see your concern and respond by sharing their own anecdotal experiences. I have something to contribute as well.
I have a concern this flare-up has lasted five weeks despite being on medication. Is it possible that the medication regimen can be changed to provide you with some relief? Do you think reaching out to your own private medical doctor (PMD), might be of value to your now?
Leon L (author/moderator)Have great pulmonologist, but hospital had no rooms left. Small town middle nowhere. Shot in butt and stronger meds for now. At least I am not stuck in bed today. Have big freeze coming, in an RV so have to fix stuff for cold. Take a long time as I am slow. Hope this new stuff helps. Just feeling like life not worth living, due to friend who is now deaf and no help to me. Have no family and no friends in this new town or anywhere else. I can choke to death and he would not hear. Wish I knew what to do. Dont have a lot of money, but enough to leave. Fed up of screaming at him and still being ignored.
Hi
. That sounds like a very frustrating situation. I am guessing he is not ignoring you intentionally, He simply can't hear you. Would your friend benefit from a hearing aid or can he not afford one? Are you in an RV park or out on your own in the woods? If you are on your own, might it be helpful to move to an RV park where there are more people and you would have a better sense of community? You might find your tolerance for your friend improves with other people around. In RV parks, you might also find other people who have no family around. That common void can lead to lifelong bonds. I am very concerned for you with the colder weather coming. An RV is no place to be in freezing temperatures. Is there someplace you can go for the next few days? Have you tried contacting social services to see whether they can help with temporay shelter? Please keep in contact here over these next few days. I'd like to know how you are doing. If your condition worsens, I would also urge you to both contact your doctor and go back to the ER. If you are sick enough, they will transport you to a hospital that does have room. We are hear for you whenever you need us. Gentle hugs. - Lori (Team Member)
RV park solves nothing, apart from having to pay lots of money to stay there. I would still be alone most of the day and night with no one to call 911 if needed. I am very independent and have everything I need. I also know what to do in these low temps in an rv. Been using them since the 80's. Bruce has already broken 3 pairs of hearing aids and goes to the VA. He can afford to buy his own if he wanted to. He also wont do anything unless I yell and scream at him to make the phone call to the VA.After 5 years of this I am frustrated, His driving is also getting bad, and I hate to go to the store or anything when he drives. WE share the truck, but I am looking for my own vehicle. Our lot is only 10 minues from town with plenty of people in the village. Thanks for trying to help though. My shot in the butt is helping, extra strong meds and rest is also good.
I am glad the shot is helping,
, and that you are getting some rest. It's good to hear that you are close to town. My heart aches for you and your situation. Very often, people who grow deaf later in life or become hard of hearing don't understand the impact of their hearing loss and of their refusal to get help on others. My mother-in-law was that way. She didn't like her hearing aids, so she rarely wore them. For her, that was the perfect solution, but not so for everyone else. Would it be worthwhile to write him a letter explaining how this all makes you feel or do you think he is beyond the point of change? Would it help to get a medical alert system so you can at least feel safe? - Lori (Team Member)
I have written lots of notes. He just cares about his bird feeders and plants. WE are getting 61 hours of below freezing in an area, south east Texas where people are not used to this cold. I have had to tell him we need water pipes insulated , rv tanks filled, propane filled, generator checked, plants in pots bought inside. Although I was supposed to be in hospital, I had to go outside and get stuff done. Cant afford the med alert. Thankyou for your suggestions.
Please keep posting on here over these next few days so we know how you are doing,
. You'll be colder in Texas this week that we are in North Central PA. Warm wishes. - Lori (Team Member)
