What has your COPD treatment experience been like?
Which medications, procedures, natural remedies, and other treatments have helped you? Which haven't?
Albuterol nebulizer + Spiriva seem to be the best combination for me. Exercises prescribed by the pulmonary therapist have helped a lot. These forums have also helped me to develop and maintain a positive outlook.
hi John I'm in Australia have just been thru flood cyclone which made my copd much worse ,I was prescribed predestone 2 a day for 4 days since taking these my feet are much puffier then usual ,have you heard of this before I'm a bit worried as I'm 72 yr old had covid last year that I don't feel I ever got over properly, thanks mate 
, bloating and swelling is something some of our community has shared they deal with, but if you are concerned it is a reaction to your medication, I would reach out to your doctor or pharmacist to see what they think and if they have any concerns! Best, Sam S. (COPD team).
The Breztri does nothing for me I tried it. Trelegy cost to much here in the states. I use Budesonide and Ipratropiom with Abuterol Sulfate. The fist one 2 times a day and the second when needed. Both of them are used in a nebulizer which seems to work the best for me. I also exercise and eat right. I seem to not have much mucus like most people maybe because I use dairy substitutes which I recommend to every one. I have very few execrations during the last 6 years . I am stage 4 and feel really good for a 69 year old with COPD. I am on oxygen at night while I sleep. Also stage 4 at 68. I use Wix,abuterol,and just started Trelogy 2 weeks ago. I have a home concentrator in my spare BR and go in 4 times a day for 10 min. I'm lucky my OX level is mostly 90-92. when I put on the tube it goes to 95-96. I also use Boost OX in the spray cans. They work great. I take Trelegy, I contacted GSV, filled out paperwork, my doctor sent script. I met the $600. Co pay in January, so now I get it free the rest of the year. You order at the end of the 3rd month, delivered to your home. You have to reapply every year.
Trellergy and Montelukast are my prescribed medications alongside eye drops, nasal spray and Fexofenadine (I think it’s branded Alleve in the US as it’s OTC there - in UK it’s prescribed only) for allergies and a handful of supplements of all varieties to boost immune system etc
On top of this, apparently having had Covid in March last year may have caused pneumothorax leading to LVRS on my left lung in July last year and, having just got over that and fit again, laparoscopic bullectomy on my right lung 6 weeks ago that has to be switched to open on the table as “things didn’t go to plan”
Now I’m working to recover again
Hey there Davoe, how are you doing? Sorry to hear your area has been beaten down with a cyclone and floods. Big changes in the weather can definitely cause problems for COPD; I'm glad your doctor has you taking steroids.
I am not a doctor or an expert, so I can't give medical advice. The Cleveland Clinic, an academic medical center here in the U.S., has written that swelling in the legs can happen with prednisone because it can sometimes cause you to retain fluid.
That said, the only way to know for sure is to be examined by a doctor ... like Lori said, there are many possible causes for swelling, so it is a good idea to inform them as soon as possible and see what they suggest.I am thinking of you and hope you can get to the root of what's going on. Keep us updated, both on your health and on the weather conditions. Be well! Thanks for reaching out to us. -Melissa, team member
Looks like both of your messages did go through. 😀 I responded to the other one. -Melissa, team member
Hello everyone! I had a "melt down" at my dr.'s office a month ago -- oxygen at 80%. Got a lot of attention on that one! This happens occasionally when I feel anxious. I had never actually told my pulmonologist about these episodes, I thought it was just going to be one of those things. Anyway, he prescribed Trelegy in place of Spiriva and I have been using that in conjunction with a nebulizer (budesonide and perforomist x 2 per day). I remember what a miracle the nebulizer was and what a change it made in my life. At that point I was also using Spiriva. However, I wasn't prepared for the improvement in my entire life that Trelegy provided. I was diagnosed with COPD seven years ago (moderate to severe) and have tried to not be affected but if you can't breathe, nothing else much matters. With Trelegy I have resumed my treadmill and exercise bike!
I've gone on quite a bit - thank you for reading and have a blessed day! Cynthia
Hi again, Jcrouch54, and thanks for expressing your concern for combining different medications. This is actually a perfect question for you to ask of your prescribing physician. The doctor will be able to explain the interactions between medications and what can, and cannot, be combined. What do you think?
Please do check back and let us know how this all turns out for you.
All the best,
Leon (site moderator COPD.net)I don't know. When I began using Trelegy I stopped using Spiriva.
