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COPD Stigma

Vent about a time that you felt embarrassed, ashamed, or frustrated by other’s opinions or the stigma around COPD.

  1. There is an obvious prejudice to having a lung disease. It is easy for people to point a finger and say, "Well, you smoked." It is as if they feel that we got what we deserved. Even those that smoked but didn't get caught, have said this to me! It is discrimination at its best. Barbara Moore (moderator)

    1. exactly. If anyone cared to educate themselves they would know this too. Thx for commenting. This community appreciates your opinion. Barbara Moore (author)

    2. Hi Beverly, and thanks for joining in the conversation here. I see my good colleague, , has already responded and I concur with her remark.
      I also have something to contribute. As said, you've made an excellent point. I thought this would be a good time to share this material (which focuses on this topic), since it underscores the very point you've shared with the community:
      Please note that for each separate possible cause of COPD listed, an article is attached for a further explanation. I think it makes good reading for our membership. I hope you feel the same.
      All the best,
      Leon L (author/moderator)

  2. I'm still embarrassed when my friends ask me to go for rides or go out for awhile I have to say no because I'm afraid I won't be able to breath cuz I don't have my nebulizer with me. The puffer doesn't help me anymore.

    1. I hear how tough it is to admit that you're struggling, even to friends. And it's so natural to feel anxious about going out when you might have trouble breathing. I'm sorry that you're having trouble managing. If you haven't done so already, you might want to talk with your doctor about the puffer not helping. There are many treatment options that may help you to feel more comfortable and allow you to get out more, if that's what you want to do. Regardless, it's always a good idea to reach out to your care team when you're no longer feeling as well as you once were. Please let us know if you have questions, we are here to listen and support you! Take good care of yourself. -Melissa, copd team

  3. Well I have had a lot of up's and downs and now I have found myself closer to the end. I have fought this for 20 years and I am getting tired and don't have the energy to fight anymore. So I am giving it to the Lord. Make it the best I can.

    1. , I hear how difficult and tiring it is to contend with COPD. You are not alone in this struggle. So many in our community have been right where you are and we are here to offer you any support we can. We are not professional counselors though, so I would be happy to share some additional resources with you if you would like. Wishing you a peaceful day. All the best, Sam S (COPD team).

  4. Thank you.

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