One in 2500!!...I am an ALPHA 1. This is a genetic (inherited) condition. It affects about one in every 2500 people. My Geno type is MZ and am at level 112.... By waterboy4911 min readBookmark for laterReactions 0 reactions Comments2 comments
Has anyone used augmentation therapy for Alpha-1?...Has anyone with Alpha-1 used augmentation therapy and then stopped it? I am curious to know if breathing was better, worse or the same after?...Reactions 0 reactions Comments0 replies
A Quality COPD Nurse Can Make All the Difference...So now, most Alpha-1 patients receive an IV infusion once a week.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
Reflections From My Past...Having Alpha-1 has given me so many bad things, including unhealthy lungs, liver, and heart, but it has given me so much more like having those Alpha-1... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments8 comments
Prolastin-C (alpha1-proteinase inhibitor)...The active ingredient in Prolastin-C is alpha.1-proteinase inhibitor (human).... By Editorial Team 2 min readBookmark for later
Donating Plasma for Alpha-1 Patients...Jackie strongly emphasizes the essential significance of plasma donation in bringing hope and support to persons who struggle with Alpha-1.... By Jackie English1 min readBookmark for laterReactions 0 reactions Comments3 comments
What You Wish Friends and Family Understood About COPD...For example, alpha-1 antitrypsin deficiency is a very rare genetic disorder that causes insufficient protein development within the liver.... By Stephanie Huston3 min readBookmark for laterReactions 0 reactions Comments3 comments
Placing Hope in Research...I'm going to Birmingham, Alabama, for an Alpha-1 lung study.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments5 comments
What I Have Learned While Traveling With Oxygen...My first airline trip with oxygen was to the 2012 Alpha-1 National Conference. It was also my first flight in over 25 years.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments19 comments
Giving Up Smoking Due to COPD Diagnosis...You can find that in this article if you want to learn more about Alpha 1 and my getting diagnosed with Alpha 1.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments42 comments
You Have Alpha-1, Now What? Diet and Exercise (Part 3 of 3)...When I was first diagnosed with Alpha-1, I was still working but barely making it through the day.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
COPD 101: What Is COPD?...A rare genetic form of COPD is called alpha-1 antitrypsin deficiency. This is caused by a genetic defect on the alpha-1 gene.... By John Bottrell, RRT3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Could Have Caused My COPD?...It’s called alpha-1 antitrypsin deficiency.... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments1 comments
5 Tips To Help You Get Through Summer...Summer is almost here, and I don't know about you, but I have a lot going on this summer: grandkids' sleepovers and sports, the Alpha-1 National Conference... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments0 comments
All the Positives That Came With My COPD Diagnosis...Second, the friends that I have made in the COPD and Alpha-1 communities are like gold.... By Jackie English2 min readBookmark for laterReactions 0 reactions Comments0 comments
Having Covid While Having COPD...Having Alpha 1, we all know how much more frightening and damaging having Covid can have on us. It has been very scary even to imagine.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments12 comments
My Own Experience Through the Disability Process with COPD...Another thing that helped me decide was talking to other Alpha-1 patients about their process.... By Jackie English3 min readBookmark for laterReactions 0 reactions Comments2 comments
My story...Also, I have to get regular blood tests to check on my status with Alpha-1. So far, I am only a carrier.... By x0iu4i1 min readBookmark for laterReactions 0 reactions Comments3 comments
Romancing a Cigarette, Part 2...If COPD runs in your family, get tested for Alpha-1. I do not have Alpha-1 antitrypsin deficiency, which is the genetic form of COPD.... By Janet Plank4 min readBookmark for laterReactions 0 reactions Comments4 comments
COPD Basics...It is called alpha-1-antitrypsin deficiency (AAT deficiency). However, AAT deficiency is only responsible for about 1 percent of COPD cases.... By Editorial Team 2 min readBookmark for later