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Unseen Aspects of COPD

What is something others might not recognize or see about COPD but you want them to know?

  1. I was shocked to find out that you can lose control of your bladder when you get to out of breath.

    1. Understanding what's going on, and knowing that it's not your fault, can help a little. Are you still recovering from your exacerbation? I hope you're doing okay in this summer heat. Thanks for sharing so honestly with us -- it helps other people reading along know that they aren't alone. Take care! -Melissa, team member

    2. CommunityMembera52900i lost control of my bladder and bowels when I was fighting to breath.I understand, thankfully I was at my daughter's house, she and her girls helped me so much . When I was released from rehabilitation I had a couple more episodes turns out co2 was not leaving my body as it should have. Now I yse a by pap machine.

  2. That my symtoms are real. Not fake.

    1. The drop in confidence.etc. is real for many. I have it and the many downs that can go with it. Hang in there.

    2. hugs I understand you.

  3. Your symptoms are REAL. When there is a misunderstanding about that, you must advocate for yourself and set them straight. It may be time to start eliminating some people from your inner circle so you can make room for those that can comfort you. Don't back down because your symptoms are REAL. Barbara Moore (moderator)

    1. yeah. No doubt. But after youve left friends behind. Who's left

    2. Hi . That's a tough call. I would hope friends and family would eventually come around, but that can be a big risk for people who already have small social circles. Not everyone can afford to shoo away those who don't understand their COPD or support them. Do you feel like those who love you most get it? - Lori (Team Member)

  4. There are many different things for you to be on oxygen

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