Tyvaso
Hi everybody. I'm a newbie, so cut me some slack. I've been on Tyvaso since Dec. 2021, with limited improvement in breathing and endurance. Would like to hear from others using Tyvaso and what your experiences have been.
Also, has anyone used the fairly new powdered inhalation treatment by Tyvaso? Seems incredibly simpler and convenient than piecing together that other inhalation system.
Many thanks for any feedback.
Hi Chesty, and welcome! Please know we are the type of community that welcomes folks to engage in conversation with the rest of the members and the team moderators and advocates. We do everything we can to provide support, informational materials, share experiences and, when necessary, just lend an empathetic ear.
I understand that some patients would rather use the dry powder inhaler (DPI), than a nebulizer system. The choice, naturally, should be yours in concert with your prescribing physician.
I am hopeful others in the community will see your forum post and respond by sharing their own anecdotal experiences using this medication with you here.
If you find you are feeling only 'minimal' improvement using this medication to treat pulmonary arterial hypertension (PAH), you may want to discuss this with your prescribing physician.
What do you think?
Leon (site moderator COPD.net)My prescribing physician has relocated, but as soon as I begin with my new doctor, I am definitely going to discuss this with them. I am 81 years old with the mind of a 40 year old, so I'd like to be here for a bit longer. 😊 Thanks Leon.
