i dont feel anyone "really gets it" unless they too experience the same. They can see the struggles and sympathize and try to help but they dont see the other struggles inside our minds, the anguish, feelings of hopelessness that come and go and that I myself try to hide when my adult kids come to visit as I try to make it as it once was, before my diagnosis but sooner or later, time to time, they see the struggle with me walking back from the kitchen or bathroom, tripping over my oxygen tubing, breathless, nearly in tears, as i reach for my inhaler, feeling inside i am smothering......then they react, get up, concerned, trying to help........i just dont feel anyone will totally understand fully.......yet i hope and pray my kids never are diagnosed so they do. Life can be difficult at best.