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Has anyone heard of actelactisis??

I'm new here and am awaiting to be officially diagnosed with COPD. My partner and I have had a rough couple of years with health and covid has made it hard for the NHS in UK last couple of years. June 2022 we moved to a downstairs flat, as my partner was recovering from an op I had to do a lot of lifting and strained my chest muscles ending up in A&E. They did chest x-ray and CT scan and no lung cancer thank goodness but I have scarring in one lung and actelactisis at the bottom of the other, none of it was followed up. Xmas eve I went down with flu, had all my jabs but it floored me. Had to get AE out as I couldn't breathe which was terrifying. So a month later I am slowly improving but waiting to see a specialist. I have hardly been outside and can't walk far, I have been given a ventolin inhaler. I had been trying to give up fags for a while and haven't smoked since Xmas eve. Would be interested if anyone has any ideas, thank you.

  1. Hi Rosie, and welcome! I see you are a new member here, having joined earlier today, in the morning. We are glad to see you are already engaging with the community through this, your first post.
    You may be aware that we cannot provide medical advice or diagnostics over the internet (for your own safety), but your expressed concerns certainly warrant a reply.
    We all understand how challenging quitting smoking can be - if there is anything we can assist you with in that regard, please let me or any other moderator / team member know. We do have a wealth of material, published right here on COPD.net which focuses on all aspects of that topic. Should you be interested, just let me know and I will provide you with links to the information.
    Your concern about atelectasis is real one. Atelectasis, is usually described as areas of the lung that are not receiving sufficient aeration and lung expansion. Atelectasis can arise from any number of medical / surgical etiologies and, generally speaking is treatable. For a more detailed explanation, I thought you might want to look over this article from the Cleveland Clinic: https://my.clevelandclinic.org/health/diseases/17699-atelectasis.
    I am hopeful that, once you see the specialist, your unanswered questions will be addressed and you will receive proper treatment / therapy for these recent medical developments.
    Please do check back and keep us apprised of your progress. I hope to have continued conversations with you.
    All the best,
    Leon (site moderator COPD.net)

    1. Quitting smoking is an important step in managing COPD and improving lung health. In the meantime, it's important to work with your doctor to manage your symptoms, including using your ventolin inhaler as directed. You may also benefit from pulmonary rehabilitation, which can help improve breathing and physical activity. Stay positive and take care of yourself.

      1. Hi ameliaaria, and thanks for lending your own support and encouragement here. Your comment is much appreciated!
        All the best,
        Leon (site moderator COPD.net)

    2. Thank you for your support which gives me hope. Not a good day today, I rang the hospital and it seems they have lost my referral so nothing is being done. Very sadly because of covid and other things the NHS in the UK has more or less fallen apart, I don't blame them but I can't breathe properly, haven't been diagnosed properly yet and it is frightening. I am doing my best to help myself, breathing exercises and thank goodness I have an understanding partner. The only medication I have got is a ventolin inhaler. Thank you for the information on smoking, I am the generation like a lot on here who smoked but am using nicotine replacement and I am not smoking ever again. Sorry about rant .

      1. We're here anytime you need to rant! I hear how frustrating it is that your hospital lost your referral. Did they indicate that this was something they could fix and get things back on track? All the best, Sam S. (COPD.net, team member).

      2. Hi again, Rosie, and thank you for acknowledging our support. It is actually a large part of what our online community is all about!
        It can be challenging when the health care system has taken a 'hit' from COVID, as you described for us here.
        Please know that we will provide additional support and assistance in any way that is feasible from an online community such as ours, COPD.net. Please don't be concerned about venting - our support naturally includes a listening ear.
        Keep up the good work you are doing towards quitting smoking. This is one of the best strategies you can use to help manage this disease (COPD) better for yourself.
        Is there any way you can consider going back for further evaluation and assessment! That may be what you need to determine if more medication is needed to help you to feel better.
        Please know, you are always welcome here. We will look forward to conversing further with you.
        Warm regards,
        Leon (site moderator COPD.net)

    3. I have not posted here for a while, but at the moment I am feeling a lot better. I have found the support on here invaluable. Well I got over the flu/pneumonia and went for a CT scan a few weeks ago and now have the results. I do not have lung cancer thank goodness not do they think I have COPD but the bottom of my left lung has folded over slightly and apart from having a weakness there now this should not cause any problems for me. The reason they think is because in my younger years I have had a lot of abdominal surgery and the consultant thinks it is a reaction in my chest to this. I am 67 now, but as a teenager I had a ruptured appendix and had 3 big ops then and part of my bowel removed, also had a ceasarean and a hysterectomy when I was younger. The Dr. Has said there is no treatment but it is nothing I cannot live with so I am a lucky lady. When I was I read many of your posts which gave me strength and I hope it is ok to do so still. I have not smoked a fag since Xmas eve and never will now, I do still use a nicotine replacement at times. I can honestly say it is the hardest thing I have done, do done give up trying to give up, my chest is so much better for it. Thank you all.

      1. Hi CMbbce90, and thanks for sharing your perspective and recent medical history with the community. You have certainly dealt with a good number of medical conditions and situations over the years. I am impressed by your positive attitude towards all this and your vibrant interest in life and all that life can bring.
        Naturally, you are more than welcome to access our community website as often and for as long as you like. You are always welcome here!
        If there is anything we can do for you, please let me or any other moderator / team member know. We appreciate your kind words, too!
        Warm regards,
        Leon (site moderator COPD.net)

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