Going at copd alone
Dealing with copd alone. 1 heart attach 2 bad flareups 3 hospital stays all by my self. Has anyone one else been here
We're in a similar boat. I didn't know I had COPD until I got Covid and ended up at the emergency room...couldn't breathe. Over the past two years 5 ER visits and 3 stays in the hospital.
A year after Covid turned my world upside down I caught the Swine Flu while waiting in the waiting room to get an x-ray of my back. Waiting room was full of sick people and I picked up the Flu there. Two days later I was back in the hospital for 3 days...felt like I was run over by a truck and was told I had the Swine Flu which did more damage than Covid. Now I get winded just walking from my sofa to the kitchen or even shorter distances.
I'm alone too but have neighbors that help sometimes...I don't like being a burden.
You might look up "Visiting Angels" and see what the offer...I might talk to them myself. They come to your house and help you with what you need....almost anything...24 hours a day 7 days a week. Not sure how much it cost probably expensive but worth looking into.
It is difficult for me being alone but I can function....slowly and pace myself.....slowly like a turtle. My hurdles are climbing stairs at home and taking a shower.My heart goes out to. It takes a toll on me big time. I am a little more fortunate I do have a room mate/ girl friend she has never once went to a doctor app. Or the hospital with me her dogs or our dos are more important than my health. I didn't mean to miss lead anyone plz forgive me for that. But I am alone we don't talk or even act like a couple. I use to want To be alone at one time I wanted to die alone an I was fine with it. But now dont want To be that alone. But sum days I do. I feel so bad for the miss leading In my post. I don't no what would worse.. I DID spend many. Yrs liv
ing alone but I worked 2 jobs so I never was home. When I got with this girl i thought she was the one I wanted to die with. Then i messed up an cheated she said she forgave me then I got sick. She has took care of me but at a price no one should have to pay. So now I get what I deserve is what she says. The way she talks to me keeps my nerves tore up talks to her self nonstop says things that make me So mad. When I say anything she says dont take it personally she wasn't talking. To me but if the shoe fits wear it. If I say anything she shuts me down so fast. I get so upset an Then lose my breath and can't talk Breath I ask her to not do it stop saying hurtful things. That makes it worse I have told her what it does to me but she will laugh an say it ant her problem. She nows what she is doing and nows I no to. But I swear she enjoys it. This last hospital stay was because of my nerves getting tore up till I couldn't get any air my o2 dropped to 87 and she wouldn't let up at all. Luckily a friend was here an got me out of the room an away from her an call a ambulance was in the hospital 5 days not one visit I did get plenty of text saying stuff like I was not even In The hospital I was out with someone and so on.. I am sorry but ivould go on for days with this. But i will. Stop.
Hi
and . My heart goes out to you both. This disease is hard enough, but handling alone must be so much harder. Have either of you asked your doctors for a referral to home health care? If you have a referral, it is usually covered by insurance. Like Visiting Angels, they will come to your home and evaluate your needs from all angles and then provide help. They have health aides who can help with such things as light housework and bathing and other health professionals who can arrange in-home physical therapy, wound care, blood pressure checks, all kinds of things. It might be worth looking into before you pay our of pocket for private services. Wishing you both the best. - Lori (Team Member) Thank you for your u r reply again I am sorry if I miss lead anyone here plz forgive me
Please don't apologize! You didn't do anything wrong. This site is all about giving you a place to talk about life with COPD, especially when you need to hear from others who understand. Everything you shared is completely valid -- managing a chronic condition like COPD is demanding enough without the added exhaustion of feeling unheard or unsupported. You are going through a lot!
I saw your other post about not getting the best care from your doctors. You deserve a doctor who truly listens; sometimes, writing down your top three concerns before an appointment can help.
Another one of our community members asked for advice for finding a person to support them during doctor’s appointments, when they didn’t have a friend or family member who could do that. This article put together some of the community responses and advice: https://copd.net/living/finding-support-person
Also, please know that the emotional toll of COPD is often overlooked and is just as important as the physical toll it takes on the body. This article https://copd.net/living-with-copd/pulmonary-rehab/coping may be helpful and has some great resources for when you might be feeling down, lonely, or overwhelmed.
I hope some of this helps. We are all here for you. Sending hugs. -Melissa, team member
