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Diagnosis of pulmonary Mycobacterium Avium Complex

Has any one else been diagnosed with MAC. What was your treatment. My pulmonologist thinks this may be causing my chronic bronchiectasis, cough, fatigue and weight loss. She is still waiting for a final culture result.

  1. I was diagnosed with Mycobacterium Avian after a bronchoscope in 2017. I was put on an antibiotic cocktail for 2 years and my pulmonologist didn’t have a clue. I saw an infectious disease doctor who mentioned NJH and I jumped on it. National Jewish Health specializes in pulmonary medicine. My cultures have been negative for over a year. The bronchiectosis will always be a factor, but I have learned how to manage.

    1. Thank you. My sputum was sent to NJH for confirmation and sensitivities. I am aware it takes at least three months for results. I just do not want to be treated for something I do not have.

  2. It looks like my post was cut off. I was referred to an Infectious Disease Doctor to see if one or both infections should be treated.
    Should be interesting.

    1. Hi again, Elizabeth - thanks for completing the post that was cut off. By reading both I can see what you said! I'm hopeful the infectious disease specialist will be able to determine exactly what the microorganism(s) is/are and be able to treat it.
      I will look forward to your sharing the outcome if you so choose.
      We are all pulling for you!
      Leon (site moderator

  3. My pulmonologist has a sense of humor. She said my sputum has a habit of growing out exciting things. In addition to MAC "it is now growing a rare species of Norcardia".
    She believes they are both opportunistic bugs taking advantage of the "altered architecture in your lungs."
    She is referring

  4. Hi ziel, and thanks for your post. I am hopeful others in the community, who have experience with this bacteria, Mycobacteriaum avium complex, (MAC), will chime in and share their experiences here.
    I did want to wish you 'good luck!', as you await the results of the culture. Please do check back and let us know how this all turns out for you.
    Wishing you well,
    Leon (site moderator

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