COPD Frustrations!
What is the most frustrating part about living with COPD?
Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.
That sure can make it hard to do anything too intricate. I hope you can find things you enjoy doing on the hottest of days. Do you have any interest in audiobooks and/or online book clubs? I hope the weather is kind to you for the rest of the season so you can get out more. - Lori (Team Member) That's actually a great idea! I'm going to ask their mom and Dad to please do that!
My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.
I feel you I have to always have someone with social life me this is hard ! I now hall to live with family I lived a long for many years and a very social life @
Double Ditto! I really just wanted to sew and garden when I retired. We moved to smaller more manageable place. I took the master bedroom and turned it into a sewing room. That was 2017, 2020 I got Covid and pneumonia several times and it's been a few years since I was able to sew or garden . Yes I miss the old me. I do as many hand crafts while watching tv as my mood allows.
Having to bring oxygen with you and hoping it lasts.
Personally I am sick to death of people asking me "did you smoke" when they find out I have COPD. The next time some stranger asks me that question, I will respond with the question "why do you want to know"? or "No, I never smoked in my life, is there anything else you would like to know about me"? That question implies to me, that these nosy people think you deserve to have copd because you smoked.Yes! That's a terrible question and it's no one's business. No one deserves COPD. You've come up with some good responses though! - Lori (Team Member)
Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep
Hello and thank you for your comment. I did research the battery operated portable oxygen generators and they are too expensive. There is regular maintenance where internal components are replaced. The replacement parts are also costly. Finally, the smallest and lightest unit has a limited oxygen volume output which was too low for my needs. I have oxygen tanks which I have used in the past but no longer. I stay home in my safe place.I made myself pretty much go cold turkey concerning watching the news. It was putting me under so much stress. Wasn't doing me a bit of good.
I'm not exactly sure what is your wife's condition,but I gather that it's not good at all. I'm hoping that you have a way to get a break for yourself so you can recharge. Thinking about you,take care.
