COPD Frustrations!
What is the most frustrating part about living with COPD?
Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.
I do have an artistic side but also arthritis. Grrr That sure can make it hard to do anything too intricate. I hope you can find things you enjoy doing on the hottest of days. Do you have any interest in audiobooks and/or online book clubs? I hope the weather is kind to you for the rest of the season so you can get out more. - Lori (Team Member)
My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.
I understand about feeling self conscious about going out with oxygen. I have been on oxygen for years now. I finally was able to get the battery operated portable oxygen machine. I am hoping I can get out more now. I found if I wear a mask when out even on oxygen I am not as self conscious. Some days are easier than others. Though I learned the hard way, it is better to go out whenever it is possible, even when we took 4 tanks around. I also take my concentrator when ever we go for a family visit this way I can spend more time with those we care about.I hope this helps you. God Bless Thank you for your response. I am trying to overcome the going outside with oxygen thing. But if one more person asks me if I use to smoke, they are going to wish they had never been born. I am so sick of that question. I do have a little 4 lb. imogen machine and it lasts for about 2.5 hours. However, I can plug it in anywhere and it recharges. So I guess I should not complain.
Having to bring oxygen with you and hoping it lasts.
Personally I am sick to death of people asking me "did you smoke" when they find out I have COPD. The next time some stranger asks me that question, I will respond with the question "why do you want to know"? or "No, I never smoked in my life, is there anything else you would like to know about me"? That question implies to me, that these nosy people think you deserve to have copd because you smoked.Yes! That's a terrible question and it's no one's business. No one deserves COPD. You've come up with some good responses though! - Lori (Team Member)
Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep
You are so right. I miss who I used to be. I sometimes get scared of losing even what little independence I have left. @
Hello and thank you for your comment. I did research the battery operated portable oxygen generators and they are too expensive. There is regular maintenance where internal components are replaced. The replacement parts are also costly. Finally, the smallest and lightest unit has a limited oxygen volume output which was too low for my needs. I have oxygen tanks which I have used in the past but no longer. I stay home in my safe place.
