COPD Frustrations!
What is the most frustrating part about living with COPD?
Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.
I do have an artistic side but also arthritis. Grrr That sure can make it hard to do anything too intricate. I hope you can find things you enjoy doing on the hottest of days. Do you have any interest in audiobooks and/or online book clubs? I hope the weather is kind to you for the rest of the season so you can get out more. - Lori (Team Member)
My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.
When I shower I have to leave the bathroom door open, the fan on in the bathroom, and the shower curtain as open as possible without getting water all over.
Also there is a shower chair involved. These things do help but not a cure all🌞.
It's tough, I rest after shower for a few minutes. Also I don't have the water as warm as I want to because of the steam.... The list goes on and on 😜. Good Luck
Are you actually tired or just out of breath? I get out of breath easily,l but I am not the least bit tired. I have to stop and let my breathing improve,l so i can continue what I am doing. I have just been put on oxygen and I am having a hard time with that. I hate being seen outside with it on!!!!
Having to bring oxygen with you and hoping it lasts.
thanks heaps Melisa from Oz Davoe321
Personally I am sick to death of people asking me "did you smoke" when they find out I have COPD. The next time some stranger asks me that question, I will respond with the question "why do you want to know"? or "No, I never smoked in my life, is there anything else you would like to know about me"? That question implies to me, that these nosy people think you deserve to have copd because you smoked.
Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep
I get you. Oxygen dependency greatly limits who you are now compared to who you were, independent, self reliant unafraid, and powerful.Yeah, I said it.
