COPD Frustrations!
What is the most frustrating part about living with COPD?
Not being able to interact with my grandchildren like I used to do. I miss not being able to go to their games because of the weather or the way I am feeling.
That is understandable,
. Here is an article about coughing that includes a discussion of "huff" coughing, which is a gentler way to cough: https://copd.net/clinical/mucus-with-copd. Maybe it would help put your wife at ease if she read the article as well. - Lori (Team Member) I feel for you try take care
My most frustrating part is not being able to do things I use to do. I can't walk a block any more without getting tired. I can't sing in church. I can't go shopping without getting tired. Tiredness is my culprit because I can't breathe.
I was told over a year ago this is the grieving stage. We are missing our old life, which makes perfect sense but I need to move on from that so I can continue enjoying life. Open to all suggestions. Hi
. It can be really frustrating when you can no longer do all the things you once enjoyed. Is there another role with the HOA you can take on, maybe something less demanding? Are there new hobbies you can pursue, maybe things you've always wanted to try but never had the time for, like painting or writing or crafting? Please know we are here for you whenever you need us. Gentle hugs. - Lori (Team Member)
Having to bring oxygen with you and hoping it lasts.
This is so confusing to me. How are you supposed to prove that you don't smoke? I hope that you're able to get the oxygen support you need ... just please remember to never smoke while wearing your oxygen as that's very dangerous. No need to apologize for being negative -- it's frustrating and upsetting when we can't get the help that we need or reach a goal when we are trying our best! I think all of us feel that way at times. You can always talk to us, Davoe. Hugs. -Melissa, team member thanks heaps Melisa from Oz Davoe321
Not being able to go without the oxygen. Just like a dog that is tied up all the time. Even when you try and sleep
I'm in Australia copd is a nightmare it's hard to even see a Dr I'm 72 and feel as if I'm in the too hard basket always get same message you must stop smoking then I'm told damage already done to lungs , so why put myself thru hell trying not to smoke ?first packet of cigarettes I bought were in the local shop at the hospital 50 yrs ago those days it was cool to smoke seems having a wife for over 45 yrs then having to watch her loose memory big time plus listen to the crap news from so called world leaders or murderers is so depressing makes me feel likegiving up ,sorry for being so down but I just watched the world news thank you. No need to apologize here,
. That's one reason we're here - to give you a safe place to vent. I stopped watching TV news a long time ago. Now days, I get all my news from print (online) media and I limit myself to publications I can trust. Reading the news helps me control the input. If it gets too depressing, I can simply stop. Witnessing memory loss from someone you love is truly difficult. Is there another family member who can give you a break sometimes or at least listen when you are feeling at your worst? Thinking of you. - Lori (Team Member)
