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Anyone else stage 4 trying to stay at home?

After close to 3 years of struggle, it’s finally been determined that I’m an unsuitable candidate for any surgical interventions. I’m told that remaining on the transplant list will not delay somebody who has a better chance of success, so I’m happy for that. I’m finally getting some palliative care and it’s allowing me to function a little. I use the breathing techniques which can be learned here, (they’re quite helpful when combined with an optimal stable medication regimen), and I have nurse visits and electronic monitoring. I’m experimenting with arranging the kitchen so I can put together simple meals without being too fatigued to eat by the time it’s done. I’d like to hear from others how you’re managing, ideas are welcome. (I’m only 50 years old so in some ways I’m still more durable than most people at this late stage) Thanks and nice to meet yall

  1. Have you heard of Zephyr? It has been approved by FDA. It is in the AARP magazine, on page 53.

    Susie Sheppard

    1. Hi susie123, and thanks for your post. And yes, we are familiar with the endobronchial valve procedure for patients with COPD. In fact, we have some material published, right here on our COPD.net website. For your convenience, here is a link to one of those articles: https://copd.net/clinical/endobronchial-valve-system/. I do hope you find it to be helpful in a practical way.

      Are you being considered for this type of procedure?

      Wishing you well,
      Leon (site moderator COPD.net)

  2. Hello there, I am also stage 4, it has become most limiting, particularly this year, as has been for everybody. I read a lot, and enjoy researching anything and everything. The internet is great for this, love listening to the birds, basically all the free things in life. I also have a little dog who has been my constant companion for the past nine years, he has kept me from going too deep into depression, have had a struggle with the loss of what my life used to be. We have a bit a journey through this quagmire, special thoughts to you all

    1. Hi dessy, and thank you for joining in the forum conversation! We appreciate you sharing how you are managing this condition, especially during these challenging times.

      Please know that we are always here for you, to provide support in any way that we can. We value the candor you have shown in our community. You are always welcome here!

      Warm regards,
      Leon (site moderator COPD.net)

  3. Yes, Yes and Yes again. I am not going outside my property lines, but I do go out for air. Fresh air is one of my favorite feeling. I will sit out in my wheelchair, just to feel the air. Keep breathing, that is my motto,

    1. I'm 76 had stage 4 about 3 yrs I was wondering if anyone has had the problem of ringing in there ears if so what med they use to help thank you for any help roger williams

    2. Hi Ward (roger williams), and thanks for your post. You may be aware COPD affects every individual differently. Having said that - it is also true that treatment of various symptoms can vary widely from patient to patient. What works for one patient may not be successful for another patient.

      While I'm hopeful others in the community will respond to your inquiry - you may not want to treat yourself with a medication or remedy that works for someone else without talking with your physician first!

      In the most general of terms, a ringing in one's ears may be indicative of any number of medical conditions and may not even be associated with one's COPD. This is a condition which I would suggest you take up with your physician and/or a specialist (e.g. an 'ear, nose, and throat (ENT), physician.

      What do you think?
      Please do check back and let us know how this all turns out for you.

      Wishing you well,
      Leon (site moderator COPD.net)

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