I was wondering if anyone has heard of a study on CBD hemp oil treatment for COPD? CBD oil reduces inflammation, anxiety, and depression, and is an expectorant. It has few (if any) side effects. I would like to take this instead of Prednisone. My doc is ok with me taking this product as long as I still use my Spiriva. Any information would be greatly appreciated. Thanks. L. Fetters
Anyone else note how much the cost of Spiriva has increased in the last few years?
Also….anyone else have trouble with the capsule crushing in he handihaler after pushing the button on the side? I never know if I am getting any benefit when this happens.
In regards to your question about the capsule, while you may get personal feedback from other community members, and while we can’t give out medical advice via the internet (for your own safety), we definitely encourage you to call your doctor’s office to ask about this. It’s an important question and they should be able to help you with that.
Hi, lots of info on internet on cbd oil and lots of misinformation. Put wife on full spectrum 10 mg a day now for 3 weeks and so far so good. She seems to be diong good with her breathing. She takes spiriva at 8AM, then 2 hours later 5mg of cbd oil, then again at 600PM for. A total of 10 mg. Yesterday she did not take her breo as she did not need it. She will try 2 days in a row to see how she feels. Its trial and error at this time. Will keep you jnformed of results.
Hi, would like to know if any one has tried cbd oil (Indica)?
for copd (breathing). was talking with people on the COPD
FOUNDATION getting information and they deleted all of the
msg we all were having. This person said it really helped her
that she took it at night but it was in a syringe and took 1cc?
Really want to try something for my breathing any help?
My wife has been taking cbd oil for 30 days snd it is hard to say what impact it has on her copd. More clinical studies are needed. But if you take cbd oil, full spectrum is more effective than the isolate cbd oil. It has the whole plant versus only cbd oil. Clinical studies support full spectrum. Lots of individuals overpaying for the cbd isolate. Do your homework to make sure you are dealing with reputable company.
Seems as though they’re treating emphysema like a cancer – as long as they’re making money off of those with these diseases, they’ll never find a cure or something reasonable as far as pricing goes.
I’ve used CBD oil, 1000mg, but only 5 drops in the morning and 5 drops at night. $80.00 for a small bottle and didn’t notice a difference, so quit it.
As for some Spiriva capsules not having powder? Yes, I’ve had some without powder – can tell because it’s hard to inhale and there’s no “noise”, which there should be. I’ve called the pharmacy and the distributor – Boehringer Ingelheim who ended up sending me a script for 5 capsules. They also tried to say I wasn’t using it correctly when putting the capsule in – but, I was! And the price keeps going up! That’s so I can hit the “donut hole” sooner and pay a lot more!!!!
Willow12, I used to use the Spireva capsules as well & my physician switched me to Spireva Respimat. It is easier to use & there are no capsules. He also has me on Symbicort. Talk to your physician about switching you to Spireva Respimat & ask about the Symbicort as well.
I have the problem with capsules too. I find if I tap the screen out a couple times after each use, the issue resolves itself. I see tiny green bits on the counter after tapping. It is probably just enough to block the air flow.
Hi Home-body and thanks for your post about the screen becoming clogged with the capsules. I would tend to agree with you. It doesn’t take much to block the flow. Thanks so much for your input. All the best, Leon (site moderator)
Thanks for your question. While you may get more feedback on personal experience from community members, I thought this article on smokeless marijuana for COPD might be helpful: https://copd.net/living/risks-and-benefits-of-smokeless-marijuana/. I hope this proves useful in your exploration! We’re glad to hear you’re talking with your doctor about it, too!
Thanks for the suggestion, ebwhittaker. Remember, everyone is different and everyone’s COPD is different. What works well for some does not work well for others. It’s always a good idea to check with your physician in order to change medications or methods of delivery.
I thought you might find it helpful to look over this article on Spiriva: https://copd.net/treatment/medication-overview/medications/spiriva-respimat-spiriva-handihaler/
Leon (site moderator)
I have also been researching hemp oil for COPD. I have had cannabis edibles and they do help. I am more relaxed, my chest doesn’t hurt as bad and I am able to get some sleep. Smoking cannabis will make you cough enabling me to be able to get rid of the crap in my lungs. Personally, cannabis should be legalized across the board as no one has neither died from it or overdosed. It’s natural and does cure a lot of ailments.
Hemp oil is expensive. I have tried the CBD at 500 mg and so, far I really can’t say it has helped or hurt. The CBD is legal in all 50 states and is not habit forming. It may have a calming effect but, then maybe it just calms me down because, I use it to relax. Perhaps if I just sat down and sipped a glass of cola or water and closed my eyes to relax that too would relax me. I don’t know.
I thought maybe vaping the CBD would be a good way to help me stop smoking. Well it did but, as to anything else I really can’t say. It does come in a higher dose I think they had a 1500 mg but, I didn’t want to try that till I saw how this worked for me.
If I do decide to try the stronger 1500 mg. I will get on here and let you know if there is a difference. I now have not smoked a cig. for 5 years. This is after smoking for 50 years..
Well, so, far so good. I now use the 1000 mg. of CBD and I still vape it. I can tell a big difference in the 1000 mg and the 500 mg. It does relax me more. I have anxiety and do take meds for that but, since I started using the 1000 mg I have noticed I have been able to cut back on the Zoloft for anxiety. It is a shame you can’t get a prescription for CBD like I can for the Zoloft. The CBD is very expensive. 1000 mgs. cost 100 dollars in the usa. My Zoloft is more than that but, with insurance it cost me nothing. Now what is wrong with this picture? lol Well, I guess I should just be happy so, far I can afford to purchase the CBD just don’t know for how long. lol
Hi again carolcole and thanks for sharing your experiences with CBD and vaping CBD. Congratulations, especially, on being without cigarettes for the last 5 years. That is a true accomplishment and one of the most important things you could have done for your COPD.
Keep up the good work!
Leon (site moderator)
Yes it is. After smoking for so, long and trying so, many different things to quit smoking. It sure is great to not smell cigs. on my clothes, and my house smells good now and my car. What a big difference it has made in my breathing and everything in my life. Even my grandkids love it they now say gee mommaw you smell good. Now they smell my perfume instead of cigs.
Hi again, carolcole and thanks for updating us on how much your life has improved since you’ve stopped smoking. I’m sure the positive reinforcement (you described) from your family serves to reassure you that you’ve done the right thing for them, and of course for yourself! Warm regards,
Leon (site moderator)
I have tried CBD oil 500mg and I think it helps me. I had one dropper before going for a swim yesterday and I was able to complete 30 lengths( it’s a small pool]😊without respiratory distress. It may be that it slows me down to a steady pace without rushing. I used it when I was recovering from a chest infection and felt sure it helped but as the cost is too prohibitive I can’t use it regularly as I would like. It’s a pity it’s not available on prescription.
I agree that CBD oil does help. In fact even smoking a joint helps to relax our lungs so we can breathe better. I also agree that it is just way to expensive to be able to use on a daily basis. In Minnesota, medicinal marijuana has been approved for people with COPD. I believe there is a lot to say about taking a natural medicine instead of using synthetic medicines that have too many side effects.
I have stage 4 COPD and have been using 100 mg cannabinoid isolate oil under my tongue for the times I already know I’m going to have difficulty breathing. 5 min. Before I have to walk out and get in my car. It works to minimize the distress and lessens the duration of the distress episode. I know it works to increase my oxygen gas exchange because I have my own pulse/oxy for my finger and I can see the difference I real time in my pulse ox % and my heart rate when I use the oil and when I don’t. I’m on oxygen 24/7. And CBD OIL is the only thing that has allowed me to keep my job for the last year.
It also helps me sleep al9ng with melatonin so I don’t wake up in distress. .
I have been on every single Traditional COPD medication there is….and I’m at the end of the road…there is nothing else they can give me but a lung transplant. I consider the expense of CBD worth it. It really has increased the quality of my life.
Hi willow12 and thanks for your post. The pricing of these medications can be off the charts – many in our community have commented on how expensive pharmaceuticals can be.
We’ve also had comments about the capsule-style inhalers seemingly not delivering the medication with each actuation and inhalation. Are you feeling the powder in your oral cavity? How are you determining that it is not delivering the medication? And lastly, are you certain you’re inserting the capsule and setting the device correctly to deliver the medication when you inhale? If you still feel it’s not working properly, you may want to reach out to your dispensing pharmacy and/or the manufacturer.
I thought you might find it helpful to look at this brief video which explains the proper way to use the inhaler: https://www.youtube.com/watch?v=Rp-Q1y937B8
Wishing you the best,
Leon (site moderator)
I know I have had Spriva capsules without any powder or medication, but its hard to tell. A correct dosage has a little wisp or rattle as you inhale. But the whole system for loading it, puncturing the little pill while locked in, makes it hard to determine if you have an occasional empty dose. But I am pretty sure, now and then, once in awhile they are empty.
also is like POSITIVE thinking the ONLY help for suffering copd people? I want to try the marijuana oil, anything. I can’t believe the professional community (basically) only offers: “THINK POSITIVE”. isn’t there some actual medication or therapy to help us? I saw a Duke or UNC scientist reversing terrible respiratory illness in mice? I want that stuff? HELP! for God Sake.. positive thinking only goes so far!! actionable help via medication???? hello!!
First of all hemp oil and cbd oil are two different things. You need to do a google search on what the difference of these two are. What you want to purchase for COPD is the CBD oil. I use 1000 mg. I vape it in a vape pen which has very low wattage. You can also, get it in a candy form or drops. It does seem to help calm me down yet you do not get a high off of it because, it has no THC and it is legal in all 50 states.
In a safe and structured manner of course, I would like to see a clinical or medical trial on the proper dose of CBD for COPD, if it does work at all. Some people have posted that 500 MG did not do anything. While increasing the dose to 1,000 MG CBD seemed to have quite a good effect.
So as a nutritionist, I immediately thought of the many PROVEN medical studies on high dose Vitamin C. There are videos on YouTube that cover this topic.
The studies show that small amounts, or what most people consider to be ‘normal’ amounts of vitamin C do very little. While extremely large amounts of vitamin C often have a tremendous effect. One doctor in Africa cured 100 people of the Eola virus by giving them 200,000 MG of vitamin C a day. That seems like a CRAZY amount, but seeing they were all dead soon anyway, why not take a shot? This well documented event stunned the medical establishment.
So, when a person w/ COPD stated “500 MG of CBD did nothing, but 1,000 MG did. My little antennas went up. Because what this means is that “something (for example CBD), did something”. This means that improvement CAN occur. That in itself is huge.
This of course opens up a host of questions. What is the right dose? Does a higher dose create an even better effect? Has anyone ever tried 100,000 MG of vitamin C taken intravenously? Is COPD inflammation based? Does reducing the inflammation help. Can the inflammation be completely eliminated?
Lastly, since 4 scientists won the Nobel prize for discovering that Nitric Oxide is responsible for vaso-dilation, which is the constriction and easement of vessels, what is the affect of high dose Nitric Oxide on COPD? DARK leafy green vegetables and BEETS are extremely high in Nitric Oxide.
It seems to me that many clinical trials are immediately needed. If 500 mg of CBD did not help, but 1,000 did. What would 20,000 mg do? What would 100,000 mg do, if a person’s system can even take that much?
I have been reading your posts on CBD but I am confused on the dosis people take. I read about people mentionning 500mg and 1000mg, 1 drop or several drops.
I have a bottle of 30ml with recommended dose of 4 drops = 6.3mg for my mom that has COPD stage 3.
Could someone advice me what could be a good dosis to start, she sometimes needs it when she gets anxious and can not breath well.
Hi sven and thanks for your post/inquiry. You may be aware we cannot provide medical advice or diagnostics over the internet (for your own safety), but your concern should be addressed. Anyone who provides feedback for your question is only giving you their anecdotal experiences with the product. It is completely up to you how and if you administer this product to your mother. You may want to do more research on your own and/or bring this to the attention of your mom’s doctor.
Good luck and please let us know how you (and she) are doing.
Leon (site moderator)
Off topic, but researchers at Univ of N. Carolina in clinical trials have found stem cell cure for CF. method is micro biopsy of lung tissue, isolate lung stem cells from patient or another donor, re-infuse via iv. the stem cells go to the lung and create new alveoli – the process the entire medical establishment claim is impossible. they are not taking any copd patients in these trials, and the fda will probably delay the process from approval for 20 years, but since Germany and Japan are not operating in the grips of big pharma, they may offer this sooner. stay abreast of the research.
Hi emmaportman – why would you go off topic here? Please familiarize yourself with our community rules before posting. You can access those rules here: https://copd.net/about-us/community-rules/. I have also sent you a private message within our website. Thanks, Leon (site moderator)
Hi @emmaportman! I wanted to thank you for sharing with the community. While you can create a forum topic around this matter, (always feel free to do so) I also wanted to share this article on stem cell therapy that you might find interesting: https://copd.net/living/investigate-stem-cell/. Please let us know if we can help you find any topics or articles on the site. Glad to see you newly registered with us! -Graceann (Team Member)
Regarding “stem-cell” replacement. A woman in my Better Breathers had this about 1 year ago (summer 2018) and doen’t believe it helped. It was part of a “trial”, but she still had to pay around $10,000.
Do you know anyone that has had the Zephyr Endobronchial Valve Treatment? I have done all the testing, and qualified for this procedure. It is FDA approved too. Anyone that can refer me to someone that has had this done would GREATLY be appreciated. Thanks, sewingkaren
I’ve been taking CBD for pain for several years now the stuff is actually better than what the doctor has prescribed. But instead of getting it from a store I get it online because the prices are much cheaper I’m on a set income.
This is actually very accurate, I have been taking CBD for quite a while now and I must say it has been very helpful all thanks to “edited by moderator’ for their amazing job in supplying me with the best for my medication
I hope moderator puts this out there so others can benefit
CBD is one of many compounds, known as cannabinoids, that are found in the cannabis plant. Researchers have been looking at the potential therapeutic uses of CBD. And it can help also to cure illness including epilepsy i read on this: (Edited commercial link by moderator 6/5/19) that i know it will help you lot with your going through right now. Its hard to have a problem like that. hoping that i help you with that.
I am new to this group and wanted to share my experience. I am 64 with late stage 3 COPD, I was diagnosed 10 years ago. I am at the point where I am short of breath 24/7, just dressing myself is a herculean task that leaves me gasping for air. I am on Spiriva once daily, Symacort 2 puffs twice daily, Ventolin 2 puffs x 4 hours, Combivent 2 puffs x 4 hours, Neb/Albuteral x 4 hours, DuoNeb x 4 hours plus a plethora of pills. I am still constantly short of breath.
I have started using full spectrum cannabis oil and it has been a great help. I can go up to 8 hours without treatment or inhalers, I can breath deeper, sleep 7 to 8 hours a night, helps with the cramps and pain, my recovery time after exertion is lessened, my base line O2 levels on room air are between 90 and 93 with oil it’s at 97% on room air and it helps with my anxiety.
I am not advocating illegal drug use or suggesting this is a cure because it is NOT but is has given me some wonderful relief from this horrible disease. I do live in a state where medical marijuana is legal but not for COPD so I am forced to make my own. I talked with my doctor and was given the ok to use it and even he was impressed with my results. I take 1 teaspoon in my coffee in the morning and 1 teaspoon under my tongue at night.
I am wondering if anyone else has used it and what kind of results they may have had and for how long.
Hi DjBigDonna, I’m curious about the amount of full spectrum oil you take twice a day. It seems a very large amount, are you able to function at all? Did you have to build up to this amount? I too take full spectrum oil for my emphysema but there’s no way I could tolerate that amount!
Hi Helen, Happy Saturday! I am a LARGE woman and have not had an issue, as I stated I do make my own oils so I am not using a high grade marijuana. The potency I assume would vary according to what strain you start with. Do you make your own oils as well? This journey is new to me so I would love answers. How much do you take? Maybe I should take less.
Hi Donna, I am a very small woman 😁
No I don’t make my own oil and I use about 2 pinhead size per dose. I prefer to microdose so that I don’t get too high. I’ve been taking it most days for about a year and it certainly works as a bronchodilator. I rarely use my rescue inhaler and in the last year I’ve only had one chest infection. In the last 10 years I would normally have at least three a year. It sounds as though you are doing very well on the amount you take so I wouldn’t be changing it. I’m also 64 diagnosed 10 years ago 😊
Hi again Helen, I don’t really a get high. I guess a light buzz would best describe it, probably equal to having one cocktail feeling. My kids say I function better on it than off. Your oils must be quite powerful!!! I would be under the table if mine were that strong…lol
Hi Donna, the oil I take is very strong but as I said I microdose and so I get the feeling as though I’m on the edge of a high but still able to carry on with all my normal everyday activities. It also helps with sleep and stress and my mood generally. In fact I’ve probably laughed more in this last year than the previous 9! I think in the years to come and after all the trials required full spectrum cannabis oil will become a standard treatment for copd. It doesn’t have the side effects of so many of the inhalers other than to make you eat and for people like me who are thin that’s another plus 😊
Happy Sunday Helen, I see by your reply that we have another thing in common as I am often up in the middle of the night. My own doctor said he believed in 10 years or less cannabis would be widely used for many medical conditions. I just found out last night that my city is having a forum meeting to discuss medical cannabis, which is new to my area. I want to go and talk to the doctors that will be speaking about adding COPD to the list of conditions that qualify. Right know we only have 5 or 6 conditions that are accepted for a prescription.
Hi Fugawe! My daughter makes it for me, she uses an organic avocado oil and processes in her insta-pot from a youtube video. She has made it a few different ways but the insta-pot method has produced the best, most consistent “magic oil” so far. She starts out with what back in my day they called “dirt weed” but she calls it “shake” After chatting with others I am taking 1/4 tsp in the morning and I am doing great so far (knock on wood) even with the reduced amount. I do not know why more research is not being done on this. I wish you the best on your journey, Joyous Holidays to you and yours.