Where to now ?
Hello all,
Firstly, I live in the UK, so I use our NHS system which I have no complaints with.
The question I am curious about is that yesterday I attended my regular consultations over my COPD and my Sleep Apnea. Ok, but the bottom line is that at this time there are no new, or different medications that they can give me to help my situation etc.
I do not really remember much of the journey home other than having my faithful dog next to me.
I fully accept the situation, so my question is that I am sure there are others on this forum in a similar situation, so in a way I am calling for ideas in how to handle it.
I keep occupied by making models, I find the evenings and night times the problem.
I should add that my wife died some years ago due to a brain tumour, and although I have 2 daughters and 3 grandchildren, by my own choice, I want them to have their own lives.
How do you cope please ?
Bob S
Hi bob, just wanted to say that we hear you and living and coping with any chronic illness, but especially COPD, is a difficult and anxiety-ridden thing! I can certainly link you to some of the articles our community members have written about coping if that helps:
https://copd.net/stories/coping-with-copd
https://copd.net/living/let-go-guilt
https://copd.net/living/understanding-end-stage
But above all just know that you are not alone. You can always come here to be with other who really get it, talk, vent, or just be present in a community that gets what you are going through on a day to day basis. Plus if there's anything we can do to help here, let us know! Keep on keepin' on, DPM
I totally understand the frustrations of being 'suddenly' limited in daily activities. I Have worked my whole life and was forced into an early retirement due to COPD. I was not ready for it, and it sounds a lot like you where not either.
I knew something was wrong, pretended it to be old age sneaking up, but now, the denial is no longer working. And finding new ways to escape the day to day changes is a challenge, as you have also found out.
I am a vet. And I do spend time visiting the places where my brothers and sisters in arms tend to congregate. Not like we hold hands and sing Kumbaya or anything, but just getting out and spending time with like minded folks helps. Note: Like minded. Not like ill or incapacitated. What we share, many have and find it also a raw deal, but there are those that still live outside this world of anxiety and pain that can offer distraction and, at time, a new purpose. And are happy to help.
If you are a vet, perhaps this is a possible escape. If not, I have no doubt that there are model clubs that share your enthusiasm for the hobby. Most folks seem to be most accommodating where illness is involved and can help with transportation or communications as well.
Stay in touch with the folks in here. They are al in the same boat, bailing like hell to keep from sinking, but we are all still above water. Something is working.
Keep the faith.
Thank you all.
