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Update I am Back for now -- Stage 4

Its been a while since my last post / update. Why, well within a couple days all stuff hit the fan again. First there was 2 black outs with falls. Yip had no idea how I got from point a to point b and on the floor, once just before bed, which I hit my head on the toilet or sink, jammed my neck to the middle of my shoulders blades, was able to get up and go to bed. Told my hubby the next morning of course, felt ok except the neck. He went grocery shopping and while he was gone, again I was just sitting at the computer and the next thing I know I was waking up on the floor. No injuries, but my left leg was not working. I laid there until he came home, explained to him when he say me I was ok to get the groceries in and then deal with me. He did that. All went ok for the rest of the day, the leg came back to working. Next morning I was having all sorts of breathing issues and 911 was called. With in the matter of a short period it was found that I had a unique blood clot in my left lung. No room in the ICU unit I was kept in the emergency room for 24 hrs. Keep in mind that I was and am still fighting a fungus in my right lung at this time, oh and the back took a hit with the T2 having an "end fracture"- not a good thing at all, then the discovery of neuropathy, caused by Cancer treatments and DD in spine to help it out. Anyway, 8 days of treatment and meds, no walking until day 7 asking what they were going to do to get me home and up safe walking, for my legs had weakened just laying there. Ok so they sent the rehab people up and yip failed their test. Was released with a walker and home health care to come for rehab in a couple ways. The blood clot and fungus are now umbrella of COPD.
Home health called the next day and arrived with in 3 hours to evaluate me. Since then I have had Wound care nurse for edema leg wounds, yes that too! Phys. Reh person, Occ. Rehab. and a CNA for bathing, all twice a week and working my bottom off. They asked what my expectations were I told them, the intake nurse told me I was expecting to much. Well I am graduating this week with MY expectations being met! They are surprised. In between this there has been various emotional things happen. On Nov 24th my oldest sister passed, unexpectedly. Thanksgiving came, our oldest daughter has a Family and Friends gathering, I sure did attend, I am living my life now no matter what. People that was guest were asked if there was any sniffles, headaches etc not to attend, 1 family did not attend because their child had a cold. There was a total of 19 people, including my other daughter and her sweet family of 4. We all had some great food and visits. That day I found out that this oldest daughter is Pregnant, yes going to be grandma again! Yeah. Last weekend my daughter and family came back to GA from North Carolina and we all celebrated Christmas as a small family unit. Gee's sure enjoyed those grandbabies and of course the adults. Current time, 2 days ago I lost my youngest sibling, a brother to throat cancer, it was expected for months he has been in hospice care, but it still takes a blow. A third sibling had 2 new stents placed in her heart and doing great! so what to do next, well I am continuing on living the best I can, not letting this nasty disease ridden body win yet. I have a couple Christmas Pranks to pull with help of course for they are for family in yet another state, a little bit of fun to ring out the year.

Lessons learned in this:
1. love yourself and family as you never have
.2. If your body is trying to tell you something, get it looked at by a professional
3. Always work to reach your goals, not those others might set for you
4. Cancer treatments can cause side effect issues to you for years to come, treatment was worth it though, I have had a another year so far and looking forward to many more.
5. Keep a positive outlook on life and try to add humor
6. Never ever ever ask for a prognosis for you might not like the answer, should have stuck to my own advice and now I will prove those doctors wrong, WATCH ME !!!!!!!!!

Hugs to you all, thanks for listening just needed to get this out of my head and move forward to the Christmas Pranks planned.

  1. ,
    Wow! When it rains it storms for you. Sorry to hear of all this happening to you at any time of the year, let alone during the Holidays. I am sitting here in the waiting room at the Surgical Center waiting for my wife’s pre-op prep and reading your post. Your total outlook is admirable! I wish nothing but the best for you! It seems like every year during the Holidays all this kind of crap happens. I always do not look forward to this time of year. Anyways, keep your chin up if you can avoid falling down! Kind of morbid humor there. Sorry. Take care and I will keep you in my thoughts and prayers! God Bless you, you sweet caring, loving, strong minded Lady!

    1. Hope this response finds you and the MRs at home and resting comfortably. My prayers are with you both. Here cheering for you!
      As for morbid humor, bring it on, I love morbid, warped, naughty and even nice once in a while LOL Hugs to you both! Keep us posted please

  2. You are the Champion of Champions!!! Your attitude and resilience is something many of us need to learn. Along with your wonderful, outspoken advice, I truly appreciate you. In all your threads, since I started following you, you have given me hope, where I thought there wasn't any. I, too, am a 4, along with Parkinson's Disease. God Bless You.

    1. Thank you for your kind words, it means a lot to me! Hey we need to get together in a crowded public place with some good old rock music, say between the late 60's to late 70's time frame, play it loud and then let our bodies shake and shimmer all they want, people will just think we are dancing in a weird way. Great way to people watch, but also let our sorry butt bodies do their thing too! What do you think? My husband said he would be the driver for us and is just shaking his head at me about this.

      Seriously though, I feel we all have a purpose for being here. Tht task or purposes is a secret of course to us as individuals. Once we reach this task then our time is over, so to speak. Your time is not over so do the best you can, you have so much to give to others. You have been through so much in your life time, have handled not only your medical problems but have seen things many of us never or would ever want too. I am so proud of you for being the strong person you are!

      Now lets dance okay LOL


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