caret icon Back to all discussions

Stage 4 COPD

The most frustrating thing is not having energy to do anything trying to walk gets my heart rate going so high. I have no strength now it takes awhile to catch my breath after walking and I can't walk very far. I've been on oxygen since 2013 24/7 I use concentrators. I'm glad to be I've even though I can't do anything but watch TV or read.

  1. Hi . I wish you were able to do more, but I am glad you are optimistic. Are you at least able to get a change of scenery now and then by sitting on a porch or a patio? Do you ever encourage people to come by and visit? If you can't get out to see them, maybe they can come see you and play a card game or a board game for a bit. Thank goodness for the internet. It at least allows everyone some support and interaction. What genre do you like to read most? Wishing you the best. - Lori (Team Member)

    1. We are identical in everything that I read. I have been accused of "exaggerating' my level of lung use. Oh, they get used, because like you, even walking to the bathroom and back is like working a 20 hour shift waitressing with no breaks. I hope you feel better and be happy that you have a supportive family.

      1. Hello. My mom is the same. She hates not having the breath/energy to do anything. The worse part is that she now doesn't want to leave the house because of it...especially to go to the doctor's. I'm trying to keep her from getting too in her head worrying about things. It's hard since I know how hard it is for her and yet I don't want her to limit herself before/more than she needs.

        1. Hi . I'm glad your mom has you, worrying about her and thinking about what's best for her. Does she keep busy when she is at home, as much as she can keep busy? - Lori (Team Member)

      Please read our rules before posting.