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Looking for others confined to one room on High Flow Oxygen

I was on prescribed 2 liters and then in hosp put on 45 liters. Now it seems I can't ween off.

  1. Hello, !
    I am so sorry to hear that you are going through this. Are you in the Hospital right now? I don't have an answer for you but one of my colleagues may. @LeonLebowtiz or @JohnBottrell In the meantime, here is a great article on high oxygen flow. I hope this helps. https://copd.net/clinical/hospital-oxygen-devices.

    1. Paging and ... looks like Jackie's tag didn't work. 😀

      1. Hi Nonie. It's been a few days since you wrote this. How are you doing now?


        I am not an expert, but I hear how frustrating it is for you to have greater oxygen needs and to feel confined. For now, it's important to give your body time to recover from your hospital stay, even if it was quite a while ago. The body can take a long time to heal from a COPD flare or other illness, and trying to "wean off" the amount of oxygen you need at this time might slow down that process. It is best to use whatever your team has recommended. You may want to discuss your oxygen needs and goals at your next appointment.


        Thinking about you. We are here to listen and please know you're not alone. Hugs. -Melissa, copd team

        1. Hi. Thank you for sharing your personal experience with us. And sorry for the slow response to your question -- I did not see your question (which is a good one) until I was tagged by above (So, thanks for the tag). It is not uncommon for people to need higher amounts of oxygen when experiencing a flare-up and requiring a hospital stay, as you say you needed 45 liters of oxygen. A remarkable aspect of modern medicine is that once you start feeling better and your doctor determines that you are well enough to be discharged, and your oxygen requirements have dropped to less than 10 Liters, you no longer need to remain in the hospital to receive the necessary oxygen, thanks to the availability of home oxygen therapy.


          As you've shared, you are currently on 2 lpm of oxygen at home. Over time, some individuals experience continued improvement and may eventually no longer require home oxygen therapy. This improvement can occur rapidly for some within a matter of weeks, although for others, it might take longer. However, it's important to note that in some cases, ongoing oxygen therapy remains necessary.The duration of oxygen therapy and whether it can be discontinued depends on your specific medical condition. If you don't mind sharing, how long have you been on 2 Liters home oxygen therapy? John. community moderator.

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