Trying Trelegy and Not Liking It
My doctor, whom I saw July 24th, gave me a two week sample of Trelegy to try. AstraZeneca is stopping Symbicort in any assistance program at the end of the year. So my doctor wanted me to try Trelegy. When my current Symbicort inhaler was empty, I was instructed to try Trelegy. Well, that lasted all of two days. On day two I had a sore throat, constant coughing, a stuffed up and runny nose, sneezing, a headache, and sore joints. I immediately went back to the Symbicort today. I will be calling my doctor in the morning and letting him know that Trelegy is not for me. One thing I really did not like was the powder in my mouth. Nasty stuff. We will see what the next suggestion my doctor has. I will refuse any powder inhalers. I was curious what others have experienced with powder inhalers. I know not every medicine works for every person, so we shall see. I will let the forum know what my pulmonologist decides.
Hi, as I was only recently diagnosed this past Memorial Day weekend, I don't have a lot of experience with inhalers. My pulmonologist prescribed Anoro, which is a powder inhaler. I can't say anything bad about it, not thrilled with the powder, but the sensation only lasts 1 or 2 seconds. I know it's not much, but that's all I've got. Wishing you a wonderful evening. Susan 
Hi
, and thanks for sharing your experience using Trelegy with the community. I am glad to hear you stopped it right away and went back to Symbicort, with which I know you've had good success. I also will be curious to hear what your physician has to say.
For what it's worth, I have been using Advair Diskus for many, many years. It is also considered to be a dry powder. I am not fond of it (at all!), since I do not like the feeling of the dispensed powder in my mouth. However, it has worked extremely well for me over the (many) years in keeping my asthma well-controlled. All that to say, I have stuck with it BECAUSE it works so well. I make sure to rinse my mouth and oral cavity out thoroughly with water after each use.
Wishing you well,
Leon (site moderator COPD.net)Hi, I was on Trelegy for a couple years & finally told my doc I didn't like it & he put me on Breztri which has a better delivery system & seems to be doing s good job. Hi trevose - I am just seeing your post now (from August) - somehow, I missed it back then. I am glad to hear that you are doing well on the medication Breztri, which your physician was able to prescribe for you instead of Trelegy. We appreciate your feedback on this topic.
How are you feeling nowadays?
Leon L (author / moderator)
I tried using trelegy a couple of years ago. It worked well for about the first12-14 hours but that was as long as it was working for me. It wasn't lasting for the 24 hours that it claimed it worked for. The doctor said it wasn't working because I wasn't able to take a deep enough breath to get the powder deep into my lungs for it to work correctly. I am now using Breztri and I really like it, however I will have to change from that inhaler to another as I will be going on medicare in June 2024 and on any drug plan it is considered a tier 3 drug and is very expensive. They also rated my albuterol inhaler as a tier 3 drug and will also be very expensive to have filled. So I am in a real dilema right now with the powder drugs not working and any aerosol inhaler being considered a tier 3 drug on any medicare drug plan.
, I suggest you check your insurance options. I'm on Breztri and Albuterol, the first 6 months or so, my Breztri runs $47.00 a month, when I "fall" into that proverbial "hole" it goes up to $167.71 a month, which is pricey, however, there are programs that will help with cost. My Albuterol is $9.71...Good Luck!
Hi Dminor9, I was wondering was it worth a longer try, saying that though I was on a powder inhaler got a dry mouth, but you are supposed to was your mouth out with water straight after it.I was taken off that though in the end by the hospital, so was put on Trimbow but not the powder one, up to now hopefully anyway I find it great. I never dare say anything what is good for me because it is like tempting fate and go all wrong for me, like it has in the past. What am I like eh.It’s like if I start smiling to much or be happy to much something happens and wipes that smile off my face , my sister says the same thing, we are not aloud to be to happy for to long, or smile to much.Well I think I have babbled on to much now so I hope you find something that suits you and works for you.Take Care and God Bless,X
Hi Dminor9, how are you doing now, hoping you are back to the Dminor9 we all know and love. Ihave taken a leaf out of your book. I am moving more eating healthier food going to lose a little more weight, try and get my Lungs if possible a little stronger.Ready for when my little Granddaughter arrives in December.X ,
Hi young lady. How are you doing since your hospital visit? Well, I hope. First, thanks for asking about my health. Second, I am glad to hear you are trying to change your diet to a better one. I got over my thrush in 3 days by saltwater rinsing. I didn't realize that anything sugary feeds thrush and makes it worse, so there is that little tidbit to remember, and salt kills thrush. My cough is basically gone except for the normal everyday COPD coughing. I finally got the sinus and runny nose symptoms under control also. So basically, I am over it. I haven't heard back from my doctor's office yet, which is a bit unusual. But I know they were going thru vacation time for their office. So that may be the reason. I will contact them again in a week or so if I haven't heard back. I also wanted to say it is never too late to change your diet for the better. I eat a high protein, low carbohydrate diet. I also do enough exercise daily to work my lungs and do my best to strengthen them. It just takes dedication and not giving up to easily. Take it slow and work up to as much as you can handle. Stay in touch CopdGirl and Take Care! God Bless!
