With all of my treatment, why can't I breathe?
My problem is I have emphysema. I was told from the visiting nurse they are clear of wheezing and that type of thing and my upper lobes are affected. But here is the problem no matter what I try I can't breathe.
I take Trelegy in the morning and a nebulizer every 4 hours and my rescue inhaler more often than I should. I sleep with a home ventilator and take an occasional nap with the equipment. I am on oxygen 24/7. I still can't breathe. Anyone know why?
Hi Beccalynne, and thank you for your post. You may be aware we cannot provide medical advice or diagnostics over the internet (for your own safety), but your concern certainly warrants a reply.
Based on what you've shared, it sounds like you have been provided with a suitable medication regimen for the treatment of your condition (emphysema). The use of Trelegy, nebulizer treatments, and a rescue inhaler is a well known approach to the treatment of COPD. As well, you have shared that you are using supplemental oxygen around-the-clock.
Sometimes, when a patient (such as yourself), is not getting suitable relief using this approach, it may be time for a reassessment from your diagnosing physician. It is possible that an adjustment to your treatment plan may result in your feeling better. You may want to reach out to discuss this with your physician. The doctor would want to know that you continue to have difficulty breathing even though you have been compliant with your medication schedule.
What do you think?
Wishing you well,
Leon (site moderator)It has been a while since I posted. I haven't because I have been doing alot of thinking about this illness and the end result. I have been fighting and will continue to fight but I can not fight with the attitude I will cured. When we all know that isn't happening. I am taking meds that may or may not ease my symptoms. That may or may not keep me physically sick. I guess I need to call palliative care back even if they scared that hell out of me. But I want to live what I have left happily.
Hi again, Beccalynne - nice to see you posting here again. You are certainly not alone in the way you are feeling and I am glad to hear you plan on continuing the fight with COPD.
Treatment and one's future can never be predicted or forecast, but remaining compliant with one's treatment plan and medication regimen is a good way to help to manage this condition.
Perhaps this time around, since it's not your first time, speaking with the palliative care team will be less intimidating.
Please do check back and keep us apprised of your progress. You are always welcome here in our online community!
All the best,
Leon (site moderator)
