Take care, Covid still here in Australia
I have MSA(Parkinsons +)
ACLeukaemia aswell as depression with COPD some days things are a little harder than others but I recently recovered from Covid, and since then my breathing seems to be 100% worse. So be careful Covid is still hot it's bite...
Hi
, and welcome! I know you have been a member here since July and we appreciate your membership. It's good to see you engaging with the community through this, your first post.
Based on what you've shared here with the community, you are certainly managing some serious medical concerns. How do you manage?
If there is anything we can do to assist you, please let me or any other moderator / team member know. You are always welcome here!
All the best,
Leon (site moderator COPD.net)Thankyou Leon, for being so kind...I guess I cope with a sense of humour..There is no other way and now I have a friend to keep me on my toes and occupied...he has made a difference already with my depression. I guess my husband realised that talking to myself was getting too serious, as the answers were making sense...I'm getting a little tired er at night which is a lot better than not being able to sleep...breathing not really good since the co-vid but I just take things a little slower...thankyou again
Kath x 😀
So very cute, I am coping so much better better, occupied wth Mr Pickles but lose my breath a lot. I don't panic as much as he makes me smile .wonder if I can get him as one of those service type dogs, so I can have him around all the time when everything goes me down. I was always quite tough but these days I tend to cry over nothing, don't know if it could b the MSA affecting my brain. Hate being a sook Hi again, Kath - so good to hear back from you! I am glad to hear your new puppy (Mr. Pickles), is keeping you occupied and helping you to cope with all that is on your medical plate. Be kind and patient with yourself - these diseases can take their tolls on both the body and the mind! If the doggie helps - that is a great companionship. Based on your expressed interest - I believe there are programs out there to assist folks who need their pets as service dogs for training. It may be something you'll want to look into if you think this will be of help to you.
I do appreciate you staying engaged with this conversation.
Wishing you all the best,
Leon (site moderator COPD.net)
Kathy, thank you for sharing so openly with us. And what a cute puppy!! I'm so glad he is making a difference for helping to keep you active and managing your depression. I see how he makes you smile! You are not alone struggling more with your breathing and COPD symptoms following a Covid infection. Many in the community have been through similar experiences. The recovery can take more time and be even more draining when navigating a chronic illness like COPD. Given that you live with other health concerns as well, it is understandable that you are feeling more drained! Navigating COPD with Covid alongside MSA and AC Leukemia is a lot! In case it would be helpful, we have sister sites dedicated to information and support for living with Parkinson's and blood cancers that you might like to visit:
https://parkinsonsdisease.net/
https://blood-cancer.com/Please know we are here to listen anytime you need a friendly ear! We are glad you are part of the community! Wishing you a gentle day. ~Allyson (COPD.net team)
thankyou so much I will take a look at that site, Mr. Pickles is definitely keeping me going, certainly helps me get better sleep which is wonderful, because of MSA I am usually up till 3.or 4 in the morning, there have been times I've gone 48hrs or more without sleep but now I'm in bed before midnight or sometimes a lot earlier. What a difference in the way I feel...but unfortunately more drama in my life as my son 50yrs old is living in the streets with mental issues. States away hard to do anything or try to find him but that's a whole new episode in the drama of my life...if I knew an author it would be a best selling drama either that or a comedy...take care lovely lady and thankyou for your kind words x 😀
