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Question about diagnosis

I had a pulmonologist write in my chart that most likely my lung function will remain stable. Since i am not smoking, my emphysema is not likely to get worse.
Does this sound right? Doesn't make sense to me! Anybody?!

  1. Hi - thanks for your post and question, it's a good one! You may be aware we cannot provide medical advice or diagnoses over the internet (for your own safety), but your concerns certainly warrant a reply.
    Just as COPD affects each patient differently, so too, does the progression of the disease. It can vary considerably among patients. There is no question that the disease is an insidious one and, generally speaking, moves slowly over time.
    For folks who have been diagnosed early, there are life style changes that can be made that can actually slow down the progression of the disease.
    From my own perspective, I believe your particular concerns would best be addressed by your diagnosing physician. However, before you have that conversation with the doctor. you may want to read up on this a little more. Towards that end, I thought the information in these two articles would be beneficial for you to be aware of prior to revisiting your (valid) concerns with the doctor.
    First, this one, which speaks to the early stages of COPD: https://copd.net/clinical/early-stages-what-to-know.
    And next, this material, which addresses treatment during the early stages: https://copd.net/living/early-stage-treatment.
    What do you think?
    Leon L (author/moderator)

    1. Hi . I replied to you on another thread as well, The fact that you quit smoking is aswesome. That can dramatically slow down your progression. Emphysema is a progressive disease. So, it is likely to worsen at some point, but the rate of that progression is different for everyone. We are not medical experts though. There might be a reason your doctor said this that we are unaware of. Has you doctor said what stage you are in? If you have mild emphysema and you have quit smoking, it can be well-managed. Here is an article about emphysema with a link at the end to a second part: https://copd.net/clinical/explaining-emphysema-risk-symptoms. I hope it helps give you a bigger picture of the disease. It might be helpful to make another appointment with your doctor and ask for a better explanation. As I noted in the other thread, if you lack confidence in this doctor, you might want to find someone new. Emphysema treatment will be part of your life from now on. You need a doctor whose guidance you trust. Best wishes. - Lori (Team Member)

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