Newbie
I don't have GERD. This pain runs from the front of my chest, just above my breastbone straight through me into my left shoulder blade. Only when I swallow. This has been happening for over 6 months every day. I was diagnosed with COPD in September of 2022. Pulmonologist will not discuss it with me. They found a Cavity in my upper left lobe which is empty so now they have moved their focus to that. They will not treat my COPD either. I am at a total loss. I've spent months researching to find answers for everything COPD. Thankful I found this site.
Leon Lebowitz, RRT Member
there. (For ease of reference, here is a link to that conversation : https://copd.net/members/communitymember6782725/status/123734).
I do hope you have an opportunity to look it over when you are able to.
As for this post (above), - we, too, are glad you found our community. We are pleased to have you here as a new member. The symptoms you've
shared with us here, are not uncommon for a patient with COPD, as there are pains that can be associated with this disease.
What is unusual is for you to have a physician (pulmonologist), who will not discuss this with you. Although it's understandable the doctor is focusing
on another area of interest (the cavity), it should not be at the expense of neglecting your overall health condition (inclusive of the newly diagnosed
COPD, in September 2022). This is all something you may want to address moving forward.
Towards that end you may want become a little more aggressive as a self advocate. A doctor who will not discuss all aspects of your care may not
be the right physician to provide your overall care.
What do you think?
Leon (site moderator COPD.net)
Newbie Member
Leon Lebowitz, RRT Member
I am sorry the time you spent with the initial pulmonary group seemed to be fruitless. Now that you are at Ohio State's Pulmonary Group Hospital, I would hope there is more direction, care, and treatment for you. If you think there is a rescue inhaler that will suit you better, try advocating for that on your own behalf. If you feel that a course of oral steroids will help, too, then go after that also! A new group of doctors, who are university based, should be able to discuss this with you intelligently, and try to direct you towards therapy that will be of benefit to you.
I will wish you 'good luck!' on your visit this coming Monday. Please do check back and let us know how this all turns out for you.
Wishing you well,
Leon (site moderator COPD.net)
dltld Member
MaryBlue Member
Leon Lebowitz, RRT Member
I also want to underscore your point about advocating for oneself - this can be a great help towards insuring one receives the care and treatment which is necessary and warranted.
All the best,
Leon (site moderator COPD.net)
kloker Member
continuously gag until I literally cannot catch a breath for hours. This happened again two weeks ago. I literally
had bruised ribs, and my neck, chest, back, and abdominal muscles were so sore for about 3 days I could only
breathe shallowly. After a week or so the muscle pain went way. Crazy! I am going to the Urologist next week.
Already finished with the Gastro doc. The gallstones, hiatal hernia, bladder/kidney/prostate issues altogether
are a complex issue. Hopefully I will get some relief soon. But my muscle issues mostly cleared up in a week
afterwards.
The other thing I wanted to mention is that I have sometimes had issues with doctors. I do NOT put up with it
at all! Luckily I live in Austin, Tx, where there are a lot of medical options. Regardless, though, I won't tolerate
misbehavior from doctors. They are supposed to be pros. Also, I am the boss. They work for me, and I pay the
bill. They are there to serve me, and I require them to do just that. Of course, the good ones you don't even
have to ask. But I have literally fired one doctor, and I won't hesitate to do it again if I have to. It is my money
and my lifetime of hard work paying their outrageous prices, and I have a right to expect stellar care. So do you.
Remember that. You have every right to question what they do and don't do and make them comply and take
good care of you, and if they won't, then I'd report them to the state medical board, and replace them, and
make
kloker Member
SamanthaSarube Community Admin