Hi rsuem, and thanks for your post(s), you've posed an excellent question! While I'm hopeful others in the community will see your inquiry and respond by sharing their own personal anecdotal experiences I, too, have something to contribute.
I hear you! As a long-time respiratory therapist, we (in the field), have often faced this type of dilemma for our patients. Which is better or, more effective, continuous flow oxygen therapy or pulse oxygen therapy?
The answer truly is, it depends on the patient! Some folks do quite well using the pulse flow. Still others, cannot tolerate pulse flow and do much better and feel more comfortable using continuous flow.
In your particular case, it sounds like you would do better using continuous flow oxygen therapy. If you and your lungs, and breathing are becoming fatigued, you may want to discuss this with your prescribing physician. The doctor can easily change the order to read 'continuous flow' only. Then, the equipment provided to you will be able to provide that type of therapy.
There are a few other concerns you will want to consider. Pulse flow allows oxygen cylinders to last longer than continuous flow. Some of the performance characteristics of portable oxygen concentrators will be compromised with continuous flow. They may work better using pulse flow rates but, that may be less comfortable for the patient. It often times is a trade-off.
Perhaps some of the other team members with clinical experience, will also weigh in with their thoughts, experience, and first hand examples!
What do you think?
Leon (site moderator COPD.net)