caret icon Back to all discussions

Lonely

Feel very alone with my COPD looking to speak to people who have similar problems & goals


  1. Hi, I think may be in a similar situation. Stage 3 COPD. Currently having a flare-up with little medical assistance. I am widowed & live with my son & 3 grandchildren that I am primary caregiver for, since my son works a lot to provide for us.
    It seems like nobody understands what I tell them when : I walk slow, need to rest, or just can't do some things I usually do. Do you have any help available that is actually understanding? If you want to chat I'm willing. My only adult conversation is with my son when he gets home from work.
    Thanks for listening I collect gemstones & make jewelery as a hobby(getting harder to do though)

    1. Hi scatty , I have been dealing with my copd for a while now and I also live with my son , I get very lonely when he’s at work and now I’m not feeling well and I had to get chest x-ray this morning because I’m so susceptible to pneumonia when the weather gets cold and it seems to happen every year, I was also diagnosed with severe copd. It was nice to talk about this for awhile. I’ll talk anytime!

    2. Hi . Please feel free to hop on here anytime you are feeling lonely or down. That's why we are here - to offer support and a safe place to vent. I hope your x-rays showed no signs of pneumonia and that you can steer clear of infections through the holidays. Though I know your son is gone a lot, I'm glad you have him to lean on. Sending lots of gentle hugs your way. - Lori (Team Member)

  2. Well, you have definitely come to the right place! If there's one place on the internet that I'm sure people talk about their COPD issues and goals, it's here! If you like you can check out the forums, which have many different ongoing discussions, or some of the articles from our wonderful patient leaders. I more or less guarantee that at least of few of their concerns will resonate with you. Finally, you can always come here and just post! Let's just say I have "inside information" that lets me pretty much guarantee that someone will always eventually answer! By the way, what are some of your big concerns vis a vis COPD? We might be able to help you find some similar discussions! Above all else, though, just know - you are not alone! Keep on keepin' on, DPM

    1. Thank you for getting back to me, where do I start have severe COPD on a lung transplant list every day is a struggle have to try & keep as active as possible I have a little dog Eddie who I take out everyday weather permitting,have a son who lives in Liverpool (don’t see him as much as I would like ) have a daughter & twin granddaughters who I try & see at least once a week have not got many friends, was in a long term relationship 9 years but now he has decided can’t do it anymore 😢makes me feel I was not good enough, really need some companionship so I don’t feel that I am no good , sorry to go on Scatty

      1. Hi. Thank you for sharing more about your life—it takes courage to open up, and I’m glad you did. It sounds like you’ve been dealing with so much. As you can see from the comments above from other community members, you are not alone here. We understand how isolating COPD can feel sometimes. It sounds like your family, especially your daughter and granddaughters, are a bright spot in your life. I hope those visits bring you joy, even if they can’t be as frequent as you might wish. It's also wonderful that you have Eddie to keep you company and give you a reason to get out each day. Dogs have such a way of lifting our spirits, don’t they? I just want to say we are here for you whenever you need to talk. John. community moderator.

    2. Thank you all for your kind words, my life seems pointless at moment didn’t want to tell my shit story but was in a relationship for nearly 9 years k new from the beginning about my condition & that it would deteriorate so now when I needed him the most decided he wants a life &?I can’t give him that & I stop him doing things I must be a ugly no good to anyone, waiting for a lung transplant so much more to say wish I could speak to someone in person feel very alone so sorry to burden everybody 💔😢😢

      1. I’m very sorry to hear about your wife leaving, my youngest son told me that I was dead too him and that really hurts then he went on to steal from me all of my photo albums that I had through the years, he just wanted to take everything away from me that he could and he also somehow turned my granddaughters away from me and my heart hurts so bad! I don’t want to sound like a cry baby so I will stop talking about that! Thank you for your time!

      2. I'm so sorry to hear this. You're not a cry baby, these are very real and emotional things you are dealing with! We are here whenever you need to vent. Wishing you a peaceful day. All the best, Sam S. (COPD team).

    Please read our rules before posting.