How it effects you in ways you never thought of
Ok, have had COPD and Sleep Apnea for a few years now and have had to learn the hard way in how to cope with it. Yes, frustration, yes, weary, yes no energy, yes, on occasions not being able to see the light at the end of the tunnel, yes, having to replace things you used in ones every day's life and took for granted, like aftershaves, cleaning products, type of clothes you can wear comfortable. Having to organise how to go shopping, cleaning the house, doing the gardening and so many more things that I/we did and took for granted. BUT we do it, yes, on occasions it can get on top of us. Learning to not get frustrated, learning to pace one's self. Learning to accept that doing things we took for granted have gone, especially concerning grandchildren.
Organising how to manage going out with whatever form of Oxygen I have available, let alone carrying it and planning how long for. Sometimes pulling my mask off at night in frustration.
Funny thing is I enjoy being able to " beat " some of these everyday problems accept I wish I could find how to stop my skin itching all over 24hrs a day, no matter what lotion, creams or tables etc I am issued to try out to NO avail. Sorry if I sound like an old moaner, but, I hope that anybody reading this realise they are not alone. Psychically you maybe alone, but that is where this site comes in very handy and useful. For that, thank you all, and no matter what the sun is always shing, it is the clouds that get in the way occasionally, so enjoy life. Senile Bob S
This is such a kind, thoughtful and caring post. Thank you,
. I hope it lifts someone's spirits. Sometimes, it really helps people to know they are not alone. Have you talked with your doctor about the itching and maybe your pharmacist as well? Certain medications can cause itching as can other health conditions. Pharmacists are great resources for that kind of thing. Warmly, Lori (Team Member) thank you for your reply, am awaiting a Dermatologist appointment at the moment. Must smile though as I typed " table " instead of tablets. Might give smile to someone. 😜 Hi
. I often think I have typed a perfectly correct sentence and then see bunches of mistakes weeks later. Yikes! We are all only human no matter how help technology is. I am sure you made someone smile. I hope the appointment went well and that you got some relief. - Lori (Team Member) am still awaiting to get an appointment date. Thank you though
Greetings Senile Bob ! I am impressed with your words of truth and comfort. I am starting to itch but my lotion seems to work presently. I am stage four with no oxygen. My goal is to encourage those who have lost hope and lose all contact with things they enjoy. Their attitude affects the caregivers so they all give up. I will do my best to help others acquire a sense of Positive mindset on the good days. On my bad days, I cuddle up with a good buck, find a Hallmark Channel movie and nap. My secret recipe is Faith. Faith in myself no matter who many obstacles I find in my path, forgive others because does it really matter? You will find Peace that we all need in our lives. Keep up with your attitude and remember to keep your life Sparkling for all to see. Carolyn Susan
Hello Carolyn and thank you for your reply. Had to 😊 It is nice to see I am not the only one to make a typo mistake. Mine was table instead of tablets, so am curious how many pages in a " buck ".
The way I cope is 1, having a fantastic dog by my side, and 2, making models in various forms and then passing them on to a charity shop to sell.
Enjoy life.
Bob S
It's neat that you make models! What sorts of things do you build? I am pretty sure it's our community member that also builds models, if I remember correctly. He has shared some cool photos in the past. Feel free to share some of your own if you want! We all have to find our own ways of coping. It looks different for each person. But I'm glad you've found what helps you and that we get to be a part of your support system. 😀 Thanks for being here with us! -Melissa, team member
