Hospitalized again, then again into ICU, out of icu and now in Hospice

I had written earlier that in another day I would find out if I was accepted into the lung transplant program at the Cleveland clinic that day was April 12. 2023. Here it is two days later and I am sad to report I was too high a risk to be approved. What I do next is To go back looking for ways to enjoy what time I have left. As my doctor said, I can tell you the best solution: a lung transplant. But I can tell you a better solution: no transplant
Hec explained that I will risk transplant such as mine would likely cause substantial recovery problems. And the outlook for me was better without a transplant than going ahead with one.! What a lesson to learn.

Hi again, toplapi - it's good to 'see' you posting here again and sharing this update (such as it is), with the community. I did go back and review all our conversations regarding the complexity of medical issues you have been dealing with for the past 20 years or so. (for ease of reference, here is a the link to all your posts since you began conversing here in January of this year: https://copd.net/moderation/users/6720130).
After re-reading all there was, I can tell you I understand the disappointment you may be feeling since this explanation was given to you about not being a suitable candidate for lung transplantation. I also read the option of 'no transplantation' which, as the doctor explained, may be a better solution in your case. As with any medical procedure, each one is not necessarily the best choice for every patient. This may be the viewpoint in your particular case with your overall health!
I admire your new outlook and the future plans you are resolving to insure. I agree with the way you're managing this new information. Your internal strength sets a good example for the rest of us! Stay strong in your resolve and move forward with the best life you can live. That is what this world is all about! It's not always easy (I can share that from my own health condition(s) and clinical experience), but - it's clearly the way to be!
Again, you are indeed fortunate to have the support of a wonderful wife and loving family.
Naturally, if there is anything we can do, please let me or any other moderator / team member know. You are always welcome here!
Warmest regards,
Leon (site moderator COPD.net)

I have lung disease symptoms so much the same but my doctor calls my disease chronic hypersensitivity pneumonitis. I’ve made some slow progress with managing the symptoms . But with stress and anxiety I, too, get panic attacks. Can you share with me the names of the medicines you used? — the one that was quick acting and the longer life one. These panic attacks were like nothing I ever experienced except maybe the extreme body chills I got during my bout 20 years ago with leukemia. Thx so much!

First, my best wishes and I'm glad to share the meds I've used including other important information. I was diagnosed with generalized anxiety disorder when my wife was in hospice. After her passing and raising my 2 children and dealing with legal issues that went on for several years, a heart attack, major back surgery. Well, let's say the generalized never left. At that time I was put on a low dose of .5 Clonazepam as needed. And I found other outlets such as gardening, hiking, traveling, swimming and even PC gaming. I personally prefer not to take meds when I can diffuse anxiety without them.


The Clonazepam I'm currently on is 1 mg which for me takes longer to kick in, 30-45 min but its effect will generally last 6-8 hrs.


For panic attacks I was prescribed 1 mg Xanax, with directions to take 1 or 2 tablets every 4 hrs as needed. For me it kicks in just about 10-15 min.


And the best advice I can give is pay attention to what your body is telling you. For instance my body will just feel off for some reason and i can sense a sensation, if that makes sense. I may become slightly nervous for no apparent reason. That's when i will take the Clonazepam, find some little thing to keep me busy awhile and I'm good for 6-8 hrs.


My telltale sign a panic attack is gonna happen is I find myself fidgeting, foot tapping, constantly moving my fingers or tapping my head. Its obvious enough for friends and family to ask if im ok. That's when I take Xanax and at times I need a second dose in 3 hrs. But it kicks in about 10-15 min.


Both meds I've mentioned also go by other generic or brand names. And there are also other medications. As after being sent home from hospice I got new ones which appear to work just as well.


Most importantly be sure to consult with your doctor as these medications can effect other medications you may take.


I hope this helped you some. I KNOW panic attacks can be so frightening and scary. I've found that saying I've been through this before, do my breathing exercises, and this WILL end like the others and try my best to remain calm helps me a lot.
My thoughts are with you.
Be strong, be well, be kind❤

Thx, had been HOSPITALIZED twice with AFIB!!
Can COPD and DIABETES bring it on?
It CONSIDERED HEART🫀DISEASE & SERIOUS?

Hi again, hite - I am sorry to hear you were hospitalized twice with atrial fibrillation. In order to determine what brought on the atrial fibrillation in your particular case, you will most likely want to speak with the physician(s) who took care of you. If you decide to do this, please do check back and let us know how the conversation turned out. How are you feeling nowadays. Has the heart arrhythmia been brought under control? Wishing you well, Leon L (author/moderator)