Having an "Invisible" Condition... Like COPD
What "invisible" part of COPD do you wish other people could see?
IOne of the worst things about having an invisible condition is slowly bowing out of friendships. Every friendship has a base, a place where it lives and thrives. Most of mine were activity based. I was a very active person and most of my friendships reflected; this. Hiking and camping buddies, walking our dogs in the woods, etc. As my illness progressed I did these things less and less. Even though I told my friends about the illness they couldn't see it . The friendships couldn't adjust to less active based. They continued to schedule our time doing strenuous activities that I would have to say I couldn't make it to. They just couldn't understand, there was no visible change in me. Some; thought I was just blowing them off. Over time all of them stopped calling. Now when we run into each mother they are shocked, its not invisible any more.
Hi TraceyCarnahan -
I'm so sorry to hear about what you've been through with friends. It's really hard, and we appreciate your sharing about it because others can certainly relate. Were you able to meet anyone through the COPD "base", like if you go to any programs or events to help with the condition?
Thinking of you and grateful you're part of the community.
Best,
Jenn (COPD.net Team)
This topic excludes those of us who are on oxygen..It would be interesting to know if the majority are. I am and I am encouraged because many people tell me how well I handle my oxygen. I welcome any and all questions they might have about it.
I've been lucky so far so I haven't had the need to use oxygen. I am not quite ready for that but I know of some people who adapted well and others that resent having to cart it around.
Hi again, Ginny13 and thanks for your post about oxygen (above). The best way to approach supplemental oxygen use and COPD is that when you need it (and it's physician prescribed), it is prudent to use it. Oxygen can be a big help to those with COPD who need it. I thought this article might provide you with some additional insight for your concern: https://copd.net/treatment/medication-overview/oxygen-therapy/. I do hope you find it to be helpful. All the best, Leon (site moderator)
Great point, buckybuck! Thank you so much for bringing that up. I'd be curious to hear what you do to handle your oxygen so well - please do explain! I look forward to hearing more.
Best,
Jenn (COPD.net Team)Hi buckybuck and you're certainly correct about that. Using supplemental oxygen does prevent someone from falling into the 'invisible' category. Like Jenn, I too would enjoying hearing your story of how you handle it and how you handle it so well. All the best, Leon (site moderator)
