Has anyone participated in a home respiratory program? They evaluate patient, check out how patient is using medications, inhalers and oxygen supplementary equipment. It is funded by Medicare. They work with the patient's doctor to prevent flare-ups.
My goal is to become fit enough to attend Pulmonary Rehab classes. I want to make sure that I am using my medicine, inhalers and oxygen units for my best benefit. Also, I wish to do as much as possible to perform the best workouts at home. The pandemic and current smoke problems of air quality in my area makes it inadvisable to spend much time outside.
This is interesting. Do they send someone out to you or is it done virtually? I love that you are setting goals to strive toward -- they can provide powerful motivation. I'd love to hear more about what you learn if you decide to pursue this! Good luck!! -Melissa, copd.net team
Hi Audrey, and thanks for your response and further explanation. We appreciate you sharing what you are expecting next for an in home respiratory program with the community.
Once you have an opinion of the quality of the program delivered to you, we would appreciate hearing that. It is not necessary to share their names and service as yet.
Good luck!
Leon (site moderator COPD.net)Hi again, Audrey. I'm thrilled to hear that these services are available in home. When my grandmother had COPD 10 years ago, I'm pretty sure that wasn't an option for her. It's so tough to get out and go places when you're having trouble breathing, so this seems like the best way to go to help everyone get stronger! Did you end up finding out more last week? Hoping it's a great fit for you. -Melissa, copd.net team
I have and still do, on a regular basis. My home healthcare program takes care of it. They are a tremendous help!
and Audreyjeanne. - What at home pulmonary rehab services do you subscribe to ??? I have reached my Medicare quota visits at the hospital and really need help. I have severe Emphysema, Neuropathy, arthritis in both hands. Scolioses & stenosis in my spine. I’m really in terrible pain. depression & anxiety is really getting to me. I would appreciate any help, suggestions that you can give me. Thank You so very much !!! Ann2093
Still trying get my apartment livable as some kid smashed his car into the side of it. He took out half of my kitchen and living room. This too is taking a lot out of me. Can’t do much Due to loosing my breath from the emphysema . Glad to hear that you both seem to be doing well !!!! Ann 2093.
Audrey and kloker. What are the home programs that you participate in ??? I reached my Medicare quota visits to Pulmonary Rehab at the hospital. I really need something to continue my exercises.. Have severe Empysema along with neuropathy and arthritis in both hands. Life has gotten really painful and deep depression and anxiety have been bad. Would appreciate some help. Thank You!!! Ann2093
I did more checking about my home program. They are active in nine states. You could try a google search of Medicare insured home respiratory programs and check out the results. Thanks so much for your willingness to share your program, Audrey. I am going to bring your message to our site admin, . She will be able to offer some guidance. So grateful for how supportive everyone here is to one another! -Melissa, copd.net team
Actually, I have a woman who comes out every 3 months and checks my inhaler, my nebulizer, and the medicine for it, listens to my lungs and checks my O2. Right now, I do not wear oxygen at all unless I am having a hard time breathing. I was on oxygen 24/7 at 3 liters, but something changed, I don't know what, but when I was checking my O2 levels, I waw in the high 90's and I talked to my pulmonologist and he recommended I tried going through the day without it, and I still am usually anywhere from 96-99.
Hi cheryl, and thanks for joining in the conversation here. We appreciate you providing us with this update and, that you are improving to the point that you no longer need the supplemental oxygen therapy - that is good, good news! I do hope this continues for you.
I see you have been a member here since 2018 - and we value your membership. I am happy to see that you were able to 'take the plunge', with this, your first post.
If there is anything we can do for you, please let me or any other moderator / team member know. You are always welcome here!!
All the best,
Leon (site moderator COPD.net)Congratulations on getting off supplemental oxygen. Did you start out by just hooking up to the oxygen for sleeping? I had two doctors recommend that I sleep with oxygen -- even though I passed a sleep test in the hospital. I reluctantly started using it and continue. Most days I can manage without oxygen. My pulmonologist said that my numbers have to remain above 90 with activity. I'm constantly testing. How did you get the services of the woman who checks you out every few months? Does insurance cover?
