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End Stage C.O.P.D.

Was looking for anyone who is experienced with end stage as I would like to know how long I have to live.

  1. Hi and Good day to you both. Just want to share something with . As I know just the thought of this copd can really weigh us down so much. I was diagnosed with stage 3 copd in 2018. I was so depressed. As I surfed the net looking for answers, fortunately I came across one article about the “ end stage” by Mary Ultes in August 2015. She was on her so called “ end stage” for 17 years. She passed away in March 2018. So she’d been on “end stage” for 20 years!..... Oh here I am. Her story gave me hope. I’m doing very well now. As I know it’s just a term for Doctors to say that there’s nothing else they can do anymore. But you still can do something for yourself. As for me, I was born and raised Roman Catholic. I believe in miracles.Have been doing so well for a year now. Not even a cold or flu. Just my depression and anxiety sometimes. You can still find the article here. Have a Blessed Day!


    1. Hi again, Klyde, and thanks so much for lending your own support and encouragement here. We also truly appreciate your candor in sharing your own personal experience managing this condition. It can mean so much for all of us when our members share their own personal stories.
      I see that you found Mary Ultes' article from several years back (2015), which is still helpful for many of our community members today! For ease of access, here is a link to that article, published right here on COPD.net: https://copd.net/living/end-stage-the-most-dreaded-misunderstood-misinterpreted-misused-destructive-term.
      We still miss Mary today but feel her memory continues through her contributions here in our online community.
      Once, again, Klyde - we value both your input and your feedback!
      Warmly,
      Leon (site moderator COPD.net)


  2. Hi amysue1963, and thanks so much for your post. Many folks have posted similar concerns as you have about end-stage COPD - you are definitely not alone, in that regard! As you may be aware, COPD affects all people differently. Even stage-by-stage, the effects on patients can vary quite widely!
    I thought you might gain some additional insight from this article that focuses on COPD and the so-called end-stage: https://copd.net/clinical/tips-living-with-end-stage. I do hope you find it to be helpful in a practical way.
    Please know, you are always welcome here!
    If there is anything we can do to assist you, please let me or any other moderator / team member know.
    Wishing you well,
    Leon (site moderator COPD.net)

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