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End Stage C.O.P.D.

Was looking for anyone who is experienced with end stage as I would like to know how long I have to live.

  1. My husband has end stage COPD and on May 17,2021 he was told 2-6months and put on hospice.
    He did pretty good the first 6 weeks but it’s gotten progressively worse this past week. 🙁


    1. Hi 2choozee - I am sorry to hear what you and husband are going through at this time. Are you getting the support you need from the Hospice team? Since you've shared that your husband became progressively worse this past week, is the Hospice staff helping him to be more comfortable?
      I know how challenging this can be for you in this new role. If there is anything we can do to assist you, please let me or any other moderator / team member know. We do have some excellent material, available right here on COPD.net, which focuses on Hospice care. You may find it helpful to look over this material. For your convenience, here is a link to the information: https://copd.net/search?s=hospice.
      Please know, we are here to provide whatever support we can and/or a listening ear should you need one!
      Warm regards,
      Leon (site moderator COPD.net)

  2. Hi and Good day to you both. Just want to share something with . As I know just the thought of this copd can really weigh us down so much. I was diagnosed with stage 3 copd in 2018. I was so depressed. As I surfed the net looking for answers, fortunately I came across one article about the “ end stage” by Mary Ultes in August 2015. She was on her so called “ end stage” for 17 years. She passed away in March 2018. So she’d been on “end stage” for 20 years!..... Oh here I am. Her story gave me hope. I’m doing very well now. As I know it’s just a term for Doctors to say that there’s nothing else they can do anymore. But you still can do something for yourself. As for me, I was born and raised Roman Catholic. I believe in miracles.Have been doing so well for a year now. Not even a cold or flu. Just my depression and anxiety sometimes. You can still find the article here. Have a Blessed Day!


    1. Hi again, glacesoundracer - glad to have been able to help. So glad to hear you found this was helpful for you. I appreciate your feedback.
      Warm regards,
      Leon (site moderator COPD.net)

    2. - I'm so impressed with your story....and your attitude. Not living by someone else's definition of "end stage" is the best thing you can do for yourself. I loved the articles Mary wrote about her experiences, they always motivated me and obviously others, like yourself as well.
      It's so good to hear you're doing well. I hope that continues for a long time.
      Best,
      Lyn (site moderator)


  3. Hi amysue1963, and thanks so much for your post. Many folks have posted similar concerns as you have about end-stage COPD - you are definitely not alone, in that regard! As you may be aware, COPD affects all people differently. Even stage-by-stage, the effects on patients can vary quite widely!
    I thought you might gain some additional insight from this article that focuses on COPD and the so-called end-stage: https://copd.net/clinical/tips-living-with-end-stage. I do hope you find it to be helpful in a practical way.
    Please know, you are always welcome here!
    If there is anything we can do to assist you, please let me or any other moderator / team member know.
    Wishing you well,
    Leon (site moderator COPD.net)

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