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Bronchial rheoplasty for chronic bronchitis

kerrywest's avatar image

kerrywest

I'm very interested in this clinical trial but my fev1 is too high to be eligible to participate. I've been following previous phases of this treatment and it looks promising to largely mitigate but still not cure chronic bronchitis.

Anyway, many trials have now begun across the US.

https://www.prnewswire.com/news-releases/gala-therapeutics-receives-fda-approval-to-commence-pivotal-trial-to-evaluate-the-rheox-system-for-chronic-bronchitis-301232049.html

  1. Leon Lebowitz, RRT's avatar image

    Leon Lebowitz, RRT Member

    Hi @nobody special, and thanks for your post - we appreciate it.

    Even though you feel your forced expiratory volume in 1 second (FEV1), is too high, you may still want to reach out to participate in the trial. Unless you know specifically that your level FEV1 has been excluded, you may want to let the folks running the trial let you know that themselves.

    What do you think?

    Leon (site moderator COPD.net)

    1. kerrywest's avatar image

      kerrywest Member

      I did that already with this, the Mayo clinic stem cell trial last year and a few others. It was pretty disappointing being turned down after I confirmed my FEV1 with them but that requirement was in the inclusion criteria so I was not surprised.

      The messed up thing is that researchers running the trials don't realize fev1 is not a tell all symptom of severity. The old NIH group does.

      Chronic Bronchitis Is Associated With Worse Symptoms and Quality of Life Than Chronic Airflow Obstruction
      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4524327/

  2. Leon Lebowitz, RRT's avatar image

    Leon Lebowitz, RRT Member

    Hi again, nobody special (@kerrysworld), and thanks for your response and explanation.

    We appreciate you sharing the links which support your point of view.

    Warm regards,
    Leon (site moderator COPD.net)

    1. kerrywest's avatar image

      kerrywest Member

      Hi -lebowitz,
      Can you tell me the rhyme or reason as why I can delete and edit some posts but not others?

      Thank you.

      Take care.

    2. Alesandra Bevilacqua's avatar image

      Alesandra Bevilacqua Community Admin

      Hi @nobody_special! Do you mind sending us an email at contact.net so our team can hear more about this and look into it for you? -Alesandra (COPD.net Team)

  3. Leon Lebowitz, RRT's avatar image

    Leon Lebowitz, RRT Member

    Hi @kerrysworld (nobody special) good question!! I believe it may be based on where on the COPD.net community platform you place your post. I think it has to do with the way the website is designed.

    For a more detailed and complete explanation (that may provide you with more of a specific answer), please reach out to us at contact.net. Our technical support folks will have a more complete answer for you.

    Thanks for asking the question.
    Regards,
    Leon (site moderator COPD.net)

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