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COPD Research

Stem cell research….

  • By PJ Johnson

    I was wondering if anyone has tried stem cell replacement? I’ve been looking into it but I’m not sure if I should do it or not. I’ve spoke to two people who had it done and they say their life has improved, however my pulmonary doctor wants to know your clinicals and many cannot provide them. It costs lots of money also…any ideas?

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi PJ and welcome.
    Stem cell research and its applicability warrants serious consideration. Looking into and evaluating if stem cell therapy is suitable for your particular level of disease will require a thorough assessment by your physician(s). Results of clinical trials are beyond the scope of this community as of now. I’m certain your physician can avail himself of data accessible through the medical community and his peers.
    Good luck to you and please stay in touch.
    Leon (site moderator)

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  • By Jean

    A review of http://www.clinicaltrials.gov shows that there are several different studies being conducted in the US by various groups. Almost all of them are designed only to determine if the procedure is safe for people. If you decide to pursue one of these studies, don’t be surprised if you are asked to pay for the privilege of participating. Paying for participating in a clinical trial turns out to be both legal and ethical; however, most clinical trials are designed and constructed so that the patient donates their time or is paid for various aspects of the research.

    If you choose to participate, please remember that there is no scientific, clinical evidence that the procedure makes any difference at all to patients; all the evidence I’ve seen has been anecdotal by the patients who’ve participated.

    Cellular research has already provided some remarkable results and I do believe that it holds the best hope for either a permanent “fix” or a cure for COPD. I don’t believe that any of these current trials will contribute much to our knowledge or lead to additional research.

    Jean

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  • By Jenn Patel

    Thank you SO much for your thorough reply and all the information, Jean! We are so glad you found are community, and appreciate your sharing your experience and knowledge here!

    Best,

    Jenn (Community Manager, COPD.net)

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  • By Andrew347

    I heard that Stem Cell research is a growing trend for alternative medicine in COPD. In Canada we are behind in the medical field compared to the USA. Lots of friends talk about going to the USA at a very $$$ cost to get various treatments. Some even went to private clinics. Is there any new changes on the attitude of stem cells or breakthroughs that look promising?

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi Andrew347 and thanks for your inquiry. There is still quite a bit of controversy and differing opinions when it comes to stem cell therapy and COPD. I thought you might find it helpful to look over this article on COPD and stem cell therapy: https://copd.net/news/stem-cell-therapy/
    All the best,
    Leon (site moderator)

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  • By Brie

    From my research on stem cell treatments, there is no data currently available that demonstrates the efficacy of stem cell treatment for COPD. In fact, not only are expected to pay for it, but it can also be quite dangerous. I read an article about a woman who tried stem cells to treat an eye disease; she went blind. So far, there are only a few diseases that are helpful by using stem cells: leukemia, some forms of anemia-and in some cases to help burn victims. The FDA has acknowledged the problem of underrated stem cell medicine. In November it declared that going forward agency would be required for some cell therapies (the way it is for prescription drugs and that clinics where people are harmed would be subject to enforcement action. Patient-safety advocates say these measures fall short. Please read the article in Consumer Reports March 2018 for more information!

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  • By Leon Lebowitz, BA, RRT Moderator

    Thanks, Brie, for sharing your thoughts and opinions regarding COPD and stem cell research. We appreciate your input.
    All the best,
    Leon (site moderator)

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  • By Domino3076

    Let me start by saying I have Alpha-1. I am stage 2 emphysema. Recently I was evaluated by one of the Go-To doctors for it. I asked about stem cell therapy. His opinion is that it is a scam by both the “study” in Mexico and in Tampa. My question is would the new cells be destroyed by the lack of anti-trysin. To me the ideal situation would be augmentation therapy and stem cell therapy.

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  • By Leon Lebowitz, BA, RRT Moderator

    Hi again, Domino, and thanks for this post. You may be aware that we cannot provide medical advice or diagnostics over the internet (for your own safety), however your concern certainly warrants a comment. I think you’ll find that stem cell therapy is yet available for treating COPD. You may want to discuss your concerns further with another physician to get a different perspective OR, a consensus of opinion. We do have some material published on this, our COPD.net website. If you’re interested in reading them, we can point you in the direction if you need help finding them. Please be sure to check back and let us know how you’re doing. All the best, Leon (site moderator)

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