I’ve had COPD for 14 years. I was on oxygen 2L while sitting and 4L while ambulating. I developed emphysema in my early 40’s. Pulmonary doctor said it’s genetic. From constant lung infections I developed bronchiectasis. Then on Thanksgiving I was found by my husband that I was unresponsive. I was in critical condition in the ICU with COVID, infectious pneumonia, sepsis, and hypoxia encephalopathy. I spent 5 weeks in ICU and 3 months in the hospital. I suffered severe blood clots, it attacked my heart, and I was 90 L of high flow oxygen. I was able to recover and get down to 10L of high flow oxygen so I was finally allowed to go home.

My life after COVID

My issue is now that I’m home, I’m on such high amount of oxygen that I can’t leave the house. My freedom is a 50 ft. cord. I have developed pulmonary hypertension. I have a-fib from the COVID. And yes thanks to COVID my hair is now falling out ugh...

My family doesn’t understand that I’m not all that happy living this life. I was sick before COVID, but COVID pushed my lungs over the edge and I need a double lung transplant. I’m not really interested in doing that. It’s a whole lot of risk and no guarantees. I’m loved greatly by my family I know that and I have great friends but being attached to a 50ft cord and not being able to leave the house, walk the yard, enjoy my life. How can I get them to understand that this is not living. This is existing.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you have an exercise routine?