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CommunityMember947

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"Feeling confused, angry and hot. Almost every night I have a low grade fever, but Doc put me on 30 days antibiotics, as well as a stronger 7 day plus prednisone. My friend Bruce is supposed to go see about cochlear implants next week, but we have been kind of stranded with our flooding. Livingston Texas. Not sure if we can make the 70 mile trip due to the highway being closed. I have caught Bruce in a lie. He told his niece I was running around in a panic looking for power for my oxygen. He has never been in a weather emergency, and I have been in many. I also had to charge my phone as our power went out. I know how to prep for hurricanes, tornados etc. He also seems to ignore my questions or conversations with him. He sleeps till noon, then naps for 2 or 3 hours. I spend my time just sitting watching a movie or something. I feel like I am on my own, even with him next door. I told him If we go to Oregon, I was not coming back. He wants to stay up there with me. I dont want him there. He has our small piece of property with his garden hobby and a few friends. He knows no one in Oregon anymore. I also know no one, but it is where I want to go to so I can die in a place I love. Sorry for ranting, but I have no one to talk to here. If his 2 appointments get cancelled, then I will tell him I cant stay in the Texas heat and am leaving. I cannot be his Mom anymore. I did tell him I would take care of the bills etc, through a joint account. When I have used my half, he will have to put on big boy pants and do his own thing. I have spoken to strangers about my situation, and they all say, take care of myself. I am finally realizing this. Thanks for listening again."My back yard.

  1. Hi . I am sorry it took a while to respond. Images have to be approved before related posts appear. I just now saw your status update and approved it. So all is good now.
    What a mess. I didn't realize you were amid all the flooding. I hope things are a bit better today, I agree with your stranger-friends. You have to put yourself first. If you can do that and be happy with Bruce, great. If you can't, well ... it sounds like he has others in his life he can lean on if he reaches out. Don't ever feel the need to apologize for ranting. Rant away! That's what we are here for -- to give you support when you most need it.
    I hope the antibiotics kick in and that your fever is soon gone. How are you feeling today? Please always keep in touch and let us know how you are doing. Otherwise, I will worry about you.
    Thanks for brighening my day with the photo. How adorable! Even on the worst days, natural so often brings us a bit of joy. Gentle hugs! - Lori (Team Member)

  2. Sitting here 100 temp. 10.30. Seems like every night I get a fever. I dont think we will make both of Bruces appointments, due to the floods. 1 is fine, then he will know where to go. I just found out his kind of daughter, who never calls him is a bad person. For 6 years she has pretended to like me. Now I found out through Bruces facebook, and her nasty message, that her page is for family only. I have been posting on this page for 6 years. She has asked me to send her pictures all the time. I believe Bruce has been saying bad things to her. He told her I panicked when we lost power. I told him I was going to drive my truck and charge up my portable oxygen and my phone. This is the final straw. He has an appointment on 24th May, and I will leave then. Not sure if I will pull my 27ft rv or not. I can always find another used one somewhere. I cant find a truck camper cover, so I guess tarps and plastic tubs will do. Just please let me have the strength to follow through. I am still not sure where to go, but most likely Oregon coast or northern California. Up by the Oregon coast, Cali is nice. I will leave a note for Bruce, and stay in touch, but he is useless as a caregiver. Thankyou again. This is one of my squiggles. He comes up to me for peanuts.

  3. Whatever you decide, please be safe and be careful. If you don't feel up to making the move all the way to Oregon immediately, maybe you can choose someplace closer as an interim stop or even just move out of your current situation. It would be wonderful if you could get that fever down before your leave. I am sorry to hear about Bruce's daughter. Have you considered reaching out to her and telling her how you feel? - Lori (Team Member)

  4. She told me in no uncertain circumstances her page was for family. I tried to respond, but she blocked me. We have spent a few days over Christmas with them, invited them to stay here for a vacation in our travel RV with everything they could want. Lake fishing, walking the trails. She is the kind who only thinks about herself.

  5. Forgot to say I have got utility phone and account numbers written down, titles signed by me and am on my way this morning to the courthouse to see about putting our land in Bruces name. Will take mine off. We paid $30,000 for it and it is paid for. Not worried that Bruce will try money tricks, as he is really a good person. I also thought if I was in an accident and in the hospital, he would never know because he wont check his phone. That is definately not good. Thanks again.

  6. It is really kind of you to do that for Bruce. I hope the courthouse trip went well and that you don't need to wade through a bunch of red tape to get it done. I wish his daughter was kinder and less selfish. You both deserve someone better in your lives. Sending lots more hugs your way. - Lori (Team Member)

  7. Hi . We haven't heard from you in a while. I wanted to check in and see how you are doing. Are you still in Texas or are you on the road? Thinking of you and hoping you are as well as can be. - Lori (Team Member)

  8. I finally told Bruce I cant take the humidity, pollen and leaf mold and I needed to go back to the Oregon Coast. Only 2500 mile drive. This is day 4 of driving, and I can do about 350 miles each day. I am now on I-5 in California. I sold my travel trailer right before I left. Did not want to pull it that far. After fun with motels, hauling my stuff into the room, I miss my RV. Will get another when I get to Oregon. Should only be 2 or 3 more days driving. Had problems at 7000 ft in Flagstaff, hard to breath. Had to find a route that did not get 112 temps. Not much can be done at my stage, so I just take my meds. I miss the pups, squirrels, cardinals, bunnies and yes, Bruce. My pulmonologist has me on a phone consult in 3 months. Really nice of him. No lung docs on the coast. Thanks for checking on me. It has been hard not being able to sit outside in the morning and have a coffee, but in a few more days, I can.







  9. I am so excited for you! I hope this is a good experience and that you reach your destination soon. I wish Bruce would have joined you, but it sounds like you gave him every opportunity. I hope you meet people in Oregon you develop connections with and that you have plenty of pups, squirrels, cardinals and bunnies to keep you company there as well. How awesome of your doctor to do a phone consult in three months. Is there a possibility that you will find a pulmonologist after you get there? Please keep us updated as you make your way to Oregon and settle in if you don't mind. I am happy for you, but I also worry about you. - Lori (Team Member)

  10. I did make the drive. Sold my rv so it would be less work. Got to Oregon coast and froze my butt off. I forgot how much cold air hurts the lungs. It was 56 in the mornings and wouldn't get to 65 till late afternoon. This is normal. I guess I forgot. Well, turned around and am driving back to Texas. I am too skinny to handle the cold. Hot, I can turn the a/c on. Bruce should get correct hearing aids today. I still have about 3 or 4 days driving, which I enjoy. Spending 2 nights in Flagstaff in the mountains before I get into the nasty 100's. I leave hotel about 5 or 6, and get as far as I can before the big heat. The are no pulmonologists near the coast. It is a 6 hour drive through mountains and only in the winter will they see you. Nothing more can be done for me, except take my meds and be careful. I will let you know when I get back to Texas. Thanks again for caring.

  11. Hi . I wish it had worked out for you, but at least now you know you are better off in Texas and maybe Bruce has gotten the message that he needs to be more attentive. I hope the trip back goes smoothly and that life is better when you return. I am sure the squirrels, pups and cardinals will be happy to have you back! Sending loads and loads of gentle hugs your way. - Lori (Team Member)

  12. I have to stay in Bruces rv, which really belongs to both of us. This part of Texas is really bad for lung problems, so we will try an area less humid, less trees. Relaxing today, bath, wash and cut hair. Didn't realize how long it got. My mirror only showed my head. I love it down too my waist, hard to keep up. Shoulder length today. Time for a nap first.

  13. Hi. Like Lori, I have been thinking of you (and worrying a little!) over the past few weeks. It's a shame that it didn't work out, but I am still so glad that you did it. Your heart had a real pull to be there again, and you got to be there, no matter how briefly. I hope you feel content with that. And I'm sure you got to see plenty of great sites on the rest of the trip as well.

    So, home with Bruce now, and your wildlife, and all the things you missed. Fingers crossed you can find a more comfortable area to live now. Sending hugs and sincere congratulations on the trip. -Melissa, team member

  14. Still have 2 more days at least before I get back. Almost a 5000 mile trip. I will always miss the Oregon Coast, but I have to be happy with tiny waves of Galveston. No more 40 ft waves. I have my crazy wild critters though. The landscape is boring desert most of the way, till you reach southern California, then up the 101 highway. Not the coastal highway. I felt like hugging a big fat pine tree when I saw them. Texas pines are skinny. lol. Thanks for caring.

  15. Please check in with us when you get there. I hope you find a more suitable spot in Texas. It's definitely drier in the west, but you will lose the trees and the greenery if you settle there. I am glad to took some time for self care along the way. Long hair is wonderful, but you must feel a bit cooler with shoulder-length hair. Safe travels! - Lori (Team Member)

  16. Just under 300 miles, then home. Bruce and I will look for a dryer climate with less trees. Some are ok, but "In the Woods". LOng drive, but I kind of enjoyed it. No going back to Oregon though. Will try to find a town close to the ocean. Thankks again.

  17. Hi ! I hope you are back in Texas now in the RV you co-own with Bruce and that things are better than they were before you left. Thanks for the update and keep us posted on your quest for a better climate. - Lori (Team Member)

  18. Back in Texas. Things are better. Bruce has new made to fit him hearing aides. We can now talk and hear each other. Only 2 days back, so hears hoping all goes well.

  19. Glad you're home safe and sound! And so glad to hear Bruce has good hearing aids now. I'm sure it'll make all the difference for BOTH of you. Stay cool! -Melissa, team member

  20. Bruce is being an ass again. Heard me for 2 days, now he doesn't hear. Guess he already broke the new aides. I bought another rv today, used but nice. I am leaving bruce and going to a dry climate part of Texas. West side. Less than 1 week here and I am already coughing, sneezing and very out of breath. Cant do the moldy leaves and swampy stuff. here. Thanks for responding.

  21. I wish things had worked out with Bruce, , but you need to do what makes you happy. Please keep us updated. I hope you find someplace drier, but still full of life. Will you head west? - Lori (Team Member)