Hi again, Lloyd - thanks for continuing this conversation here. I am sorry, I did not realize you were using BiPAP therapy for five years! That is a vast amount of personal experience you have using this type of therapy.
From your latest comment, it sounds like you do actually get through the night sleeping with BiPAP. It is rather the challenges you are facing first thing in the morning when you awaken and stop the therapy. At that point, you've shared, that taking the medication nebulizer treatment helps you to breathe better after you stop the BiPAP therapy. It may be that a 10-minute period of time to catch your breath, using the medication nebulizer, is what is working for you. I do know others in the community (as well as many patients I've seen over the years), do take a while to get themselves started in the morning.
It sounds like if you have been doing this (successfully) for five years - this may be how your level of disease works with this type of therapy. I do understand (completely), that this may be frustrating for you. I am still hopeful others may chime in here and share their own experiences with you.
From my perspective, if the BiPAP machine is working correctly (and you are comfortable with the settings), and you can use the mask you have now, this may be what therapy does for your condition. If any of these are not to your liking, would you consider being refitted for the mask and/or having the BiPAP settings adjusted? This may help, too!
Have you had an opportunity to discuss this with your physician and/or the therapist who comes to the house to check you and the therapy?
Have a great Sunday!
Leon (site moderator COPD.net)