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COPD questions and request advice and help

Hi to all. I was originally diagnosed with COPD when I went to a primary care clinic but their test was just a plastic tube to breathe into,which was administered by a non licensed staff member. I had been a smoker from age 16 to 45 yrs or so. Since I had not had any real bad issues I felt that it may not be accurate. in my At that time of my life, I had 2 episodes of Bronchitis and was told by my then doctor if I did not quit smoking I would end up on Oxygen. I was also brought up in a home where my dad was a heavy smoker, and exposed daily from childhood until I married at age 20. I have had a lot of other unhappy medical conditions added to my laundry list of problems. However, I also have had year round allergies for many years if not most of my life. I had allergy testing done around age 35. I have had episodes of Asthma over the years and have an Albuterol asthma inhaler but only had need if I had a bad cold or the flu. In late summer of 2021 I had a Cardiac Cath done as I had been experiencing chest discomfort when sweeping, mopping, making our bed, or vacuming. They did angioplasty on my right side of my heart and cleared me 90%. The left side of my heart arteries was unable to be cleared or have stents put in as they said my left side arteries were like the twisted tree limbs of an old tree. Within 36 hours of the Cardiac procedure I had developed shortness of breath and that did not dissipate. My husband had to take me to the ER. I was put through the whole list of Cardiac testing in the ER, but they said they did not find anything. They did a portable chest xray also. So they discharged me from the ER with no resolution. It took 2 visits to a cardiac doctor who was on vacation and who's NP did not do anything for me, but by the second visit and another NP in training (RN) who suggested Lasix. I was put on the Lasix and had been on it for over a year. It helped some but the shortness of breath still less but present. Anyway, I was sent to a Pulmonary specialist. I had 2 sets of Pulomary tests at that Hospital and it confirmed my diagnosis of COPD, though not severe and they said it was able to be treated with BREO. I have been on Breo now for 226 days from when I got the first prescription. I have more info but do not know if this is already too much for others to read and respond too. I don't like being on any kind of steroid for life. I asked in my most recent phone visit to the NP about getting off Breo but instead she wants to switch me to Trelegy. I asked if she checked my chart for all my medical issue and meds I am on (another long list to take daily). She said its fine...in the meantime I asked a pharmacist about this drug and she advised me to talk to my cardiologist....Today I did a look up on WebMD on this drug and found that I have been having a reaction to the Breo with Laryngitis, ongoing for months. I thought it was my allergies getting worse, but apparently not. They indicate this is a Serious situation but I was never asked about this kind of side effect issue> Can anyone direct me, advise me? It is a challenge to find a doctor where we live that is taking on patients and that is a Good doctor as a primary care.

  1. ,
    I would look for a pulmonologist and not necessarily a General Practitioner (primary care doctor). I am lucky that my primary care doctor is an internist as well as a pulmonologist and kidney specialist. It just seems to me that a primary care physician will just be sending you to specialists all the time plus to keep himself in the loop, having to go back to him/her periodically. If your main problem right now is pulmonary, then definitely see a pulmonologist. It would be nice if the pulmonologist and cardiac doctor could collaborate to get you the best possible care. Maybe contact your cardiac doctor and see if he can recommend a pulmonologist. This is the only suggestion I have. Oh, and by the way, it is hard to find a good caring doctor anywhere these days. Take care and God Bless.

    1. Hi LindaD, I have COPD, and take Trelegy, and I have CHF, and afib. The side effects of this drug, and pretty much all drugs are overwhelming. I have to weigh the good with the bad. As a general rule, the more worrisome side effects are minimal risk. Although this drug helps me with better, more efficient breaths, it does not prevent shortness of breath, for me. A good pulmonologist will do a 6 minute walk test, and calibrate if and how much oxygen a person needs to maintain a good level while walking. If a good level is not maintained, then sometimes it's necessary to use oxygen during activities. I use oxygen 24/7. Even still, I become breathless, and have to stop during activities to catch my breath, then continue. So, the goal is to keep the oxygen level up so I don't fry brain cells, or pass out, even during breathlessness. The biggest problem is the cost of Trelegy, however a person can get a copay card on their site and pay much much less. BTW, my pulmonologist is an hour's drive away, but I really trust her, so I make the trip. My cardiologist is here in town, but he's not a great cardiologist, but I just pay attention and voice my needs and concerns, and my pulmonologist keeps up with my condition, and on occasion, has called him to make requests, so I feel I am i good hands. A good pulmonologist is worth their weight in gold!!! Best of luck!!

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