A form of COPD

By questerfuse

1 min read

Sorry about former post, hit the wrong button. Pulmonary fibrosis is what I have. My Doctor says that I have lost 50% of my oxygen intake. I currently am taking Entreposage and Trelegy Ellipta. Will be going to two specialist in the near future. Also I will be going to a group therapy to learn how to breath and exercise.

A sudden flare-up

It all kind of got serious, when I was at my computer and I suddenly got the shivers. I went to bed right away and covered up. It continually got worst. At 81 yrs young I'm pretty stubborn, saying that it would go away. It didn't. Two days later I ended up at emergency.

After a multitude of test, (including COVID), they said I had a flare-up and an infection. Antibiotics, Entreposage later and results of the COVID test (which proved to be negative) I am now king of sitting around wondering what to do.

I played and taught pickleball for the last 6 yrs and love it. With your suggestions on how to do do the exercises you have given me hope.

Thank you.

George

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melaniem Community Admin
George, thanks so much for sharing this story with us! I am glad to hear you are negative for COVID, but sorry to hear you aren't feeling well and you are sitting around wondering what to do! Have you figured out anything fun? Keep us posted! ~Melanie (team member)
1. questerfuse Member
 Hi, We are starting to go for short walks and are going to try and play pickleball again. George
2. Leon Lebowitz, RRT Member
 Hi again, George (Questerfuse), and thanks for this reply. So glad to hear you are already starting to go for short walks and are going to try to play pickleball again. I know how much you enjoy that! Please do check back and keep us apprised of your progress. Wishing you well, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)
Leon Lebowitz, RRT Member
Hi Questerfuse (George), and thanks for sharing your story here. I guess at 81 years (young) of age, you've earned the right to be somewhat stubborn, eh? Just kidding, of course! So glad to hear the exercise article (is this the one? -<a href='https://copd.net/living/exercise-types' target='_blank'>https://copd.net/living/exercise-types/</a>), has kept you busy and interested. Glad the suggestions seem to be helpful. If you've been teaching pickle ball for the past 6 years, you'll need to stay active, when you can. Sometimes, it can take a while to return to normal for oneself, following an exacerbation. Be kind to yourself - give the medication(s) a chance to work, and yourself a chance to heal. Sometimes, patience can be a virtue! Have you had a follow-up with your physicians? If there is anything we can assist you with moving forward, please let me or any other moderator / team member know. Wishing you well, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)
1. Leon Lebowitz, RRT Member
 Hi again, George (Questerfuse), and thanks for letting us know. If you don't mind, please do check back and let us know how this all turns out for you. (Good luck!) And please feel to access our online community as often and for as long as you like. We are always here to assist in any way that we can. Warm regards, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)
2. Lyn Harper, MPA, BSRT, RRT, AE-C Moderator
 Hi George - Please let us know how it goes after you see the lung specialist. We'll be anxious to know. Regards, Lyn (site moderator)
questerfuse Member
Hi, Right now I will be going to that thing you blow in. The milatary person who tells you to keep on blowing. Havn't heard from the lung specialist yet. Thanks for sharing your interest with me George
1. questerfuse Member
 So, You know about the Sargent too. George P.S. I will let you know
2. Leon Lebowitz, RRT Member
 Hi again, George (Questerfuse), and thank you for letting us know you're scheduled to take a pulmonary function test (PFT). I will wish you 'good luck!', and ask that you check back and let us know how this all works out for you. Wishing you well, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)
questerfuse Member
Hi, Just wondering why I get dizzy when I stand up too quickly, especially when I go up one flight of stairs, blood pressure is 98/58 and my oxygenator indicates 76
1. questerfuse Member
 Thanks for the reply. I have had vertigo and know how to treat it, but i'll give it a try. I never thought of that. Thanks again. George
2. Leon Lebowitz, RRT Member
 Hi again, George (Questerfuse), and thanks for your prompt reply and answer, below. It sounds like you have some experience with vertigo and have even had it treated. Is there anything further you can share with the community? Do you think you should reach out to your physician for these episodes you've shared with us? Please do check back and keep us apprised of your progress. Wishing you well, Leon (site moderator <a href='https://copd.net' target='_blank'>COPD.net</a>)