Denny my story

By denny1957

1 min read

Hi everyone. Around a year ago my breathing at work was starting to show. I thought it was me smoking too much. I did cut down but still it got worse. My CT scan at hospital showed I had severe pulmonary hypertension. I had left it some time be seeking help which I regret so much. Since March this year, I seem to have gone down hill.

I'm now on oxygen for most of my time. I can't walk any real distance or even complete small tasks. I do light exercise but even that is a mission now. It's taken some time to realise just how bad this illness really is. My whole life has changed in what seems a short time.

I was put forward for a lrvs op but yesterday got a phone call from the hospital consultant saying that my lungs were a lot further down the line and there maybe something else they could try (subject to another CT scan and some tests.) I get very depressed at times and can't believe just how much COPD affects people's lives. I'm still learning so much. So many people just don't realise just how much of an impact it has on our lives.

Thanks for reading,
Denny

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The COPD.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Leon Lebowitz, RRT Member
Hi Denny, and thank you for sharing your story here with the community. We do appreciate you providing the details of your present situation. You make a good point - living with and managing this condition can certainly be a challenge. However, we have an entire online community here who understand what you are going through and know how you feel. Please know, you are always welcome here! I see you had a similar post elsewhere on our <a href='http://COPD.net' target='_blank'>COPD.net</a> platform, for which I was able to post a response. For easy reference, that conversation can be accessed here: <a href='https://copd.net/members/denny1957/activity/80960/#acomment-81032' target='_blank'>https://copd.net/members/denny1957/activity/80960/#acomment-81032</a>. I do hope you have an opportunity to look at the comment. Please do check back and let us know how you're doing following the upcoming CAT scan and testing. We'd appreciate hearing from you again, when you are able to and have the time. Warmly, Leon (site moderator <a href='http://COPD.net' target='_blank'>COPD.net</a>)
1. Lynida Jo Harper, MPA, BSRT, RRT, AE-C Moderator
 Hi Denny - It's good to hear you have an upcoming appointment. Hopefully that will give you something to work with and the doctors can make some suggestions for improvement. Has anyone suggested cardiac or pulmonary rehab? It's sounds like it might be something that would benefit you. You might want to mention it to your doctor. Let us know how your appointment goes. Best, Lyn (site moderator)
2. Leon Lebowitz, RRT Member
 Hi again, Denny - nice to see you joining in on this conversation again. We appreciate your providing us with the latest update - your anticipated appointment at the local hospital. It also sounds like you will be having an appointment in the New Year at the heart and lung hospital, too, for some testing. I see my colleague, Lyn, has already responded to your comment with one of her own. I do hope you have an opportunity to look over her words. Please do check back and keep us apprised of your progress. Wishing you the best, Leon (site moderator <a href='http://COPD.net' target='_blank'>COPD.net</a>)
denny1957 Member
Unfortunate for me the day after I posted this I was rushed into hospital I had flare up before the first one scared the life out of me but this time was different just been to toilet went and sat down my heart rate went to 156 my oxygen went to 69 70 I felt like I was going to pass out and not be able to open door for ambulance they think I might have a blood clot on lungs but had ct scan today and blood thinner injections am waiting result of scan I know I have damage to one side of my heart from working too hard will update when I can
1. denny1957 Member
 Hi everyone well I’m still waiting on my appointments to go to hospital and see what they can do for me no one ever seems to give you a straight answer I’m on oxygen now 24 hours even when on oxygen soon as I walk out the room to the toilet my heart rate goes up very quickly and my oxygen level falls my whole world seems to have come down around me this time last year I was in full time work and getting around now so much as changed even when I eat my blood pressure changes to a high level
2. Leon Lebowitz, RRT Member
 Hi again, <inline-mention user-id="2420119" username="denny1957"/> , and thanks for bringing us up-to-date on your current situation managing this condition. I'm sorry to hear it's taking this long for you to hear get the appointment you have been waiting for. It can certainly be frustrating waiting for support, especially when you are experiencing the same symptoms you have shared with us earlier and, that resulted in you being rushed to the hospital. My heart goes out to you. Are you able to contact your private physician directly in an effort to move this along more quickly? Is there any one who can assist you in being evaluated and assessed sooner without all this waiting? If there is anything we can do to assist you, please let me or any other moderator / team member know. Please do continue to check back and keep us posted as to your progress. Good luck! Leon (site moderator <a href='http://COPD.net' target='_blank'>COPD.net</a>)
kidogo1950 Member
Denny don't give up! Your story is my fear exactly; that when I stop smoking, my condition will get worse! We will hope and pray for the best for ALL of us who have COPD!

Community Poll

Do you have an exercise routine?