Lost

My name is Krissi and I was diagnosed when I was 25 with copd. I was getting chronic bronchitis twice a month for several months. I was given inhalers then but I didn’t use them because I felt I didn’t need them. I wasnt having any trouble breathing, I was just sick constantly. I recently fell down the stairs and injured my hips so I was on the couch taking it easy because it hurts to sit or drive or bend over. About 3 months ago I became short of breath. The number of heart palpitations increased from one to 40 in one day. I went to the ER and was told I was breathing and to go find a primary doctor.

I’m only 30, and do not have insurance. I found a reasonably priced primary Dr and went. He requested an x ray of lumbar and blood test. Thyroid looked fine. Vitamin D level was e extremely low. He told me to take 5000iu D3/day. And then sent me home. I called back and begged for an inhaler and they called in a rescue inhaler. I called right back explaining I needed a maintenance inhaler because I’m short of breath all day. Anytime I stand up and do anything.

That was two weeks ago.

There is a spot on the back of my skull that started caving in. Actually indention in the skull and it hurts if you touch it at all. My hair hurts when it moves. That may be due to vit d3 deficiency.
I’m so tired all of the time. I have completely lost all energy and appetite after falling down stairs. I lost 20 lbs and now I only weigh 85lbs. I don’t like being this skinny. My bones stick out bad and I get bone bruises from laying down sometimes. I’m so tired during the day I could lay on the couch with my eyes closed and never go to sleep. I’m not sleepy tired. Just exhausted.
I’ve tried local places that help and they are full. Not sure where or what to do next, but really hoping I figure it out soon.

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Comments

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  • Meaghan Coneys moderator
    3 years ago

    Hi Krissi,

    Thank you so much for sharing your story with us on COPD.net. We appreciate hearing from you. It sounds like you are having a really tough time, and that’s putting it quite lightly. It must be so hard to feel sick all the time and not be able to receive adequate treatment or the help you need. We want you to know that you are not alone and that we are here for you as a support. Many people find it helpful to participate in a Pulmonary Rehabilitation Program. More information can be found here – https://copd.net/living-with-copd/pulmonary-rehab/. This is a comprehensive program that addresses the various ways one can be affected by COPD, such as breathing, exercise, nutrition, lifestyle, and coping. You mentioned not having insurance, so perhaps you could discuss this program with the primary care doctor you found? He or she should be able to provide more information, plus it’s always good to have an open dialogue with your doctor regarding all your symptoms. Also, this article provides tips for making treatment more affordable – https://copd.net/guest-expert/expert-answers-saving-money/. There is information and links to sites that could provide you assistance and insurance when not insured. And finally, I hear you when you say you are tired and don’t know what to do next. Living with a chronic condition can be so debilitating and affect us emotionally. This article discusses coping with the emotional impact of COPD – https://copd.net/living-with-copd/pulmonary-rehab/coping/. There are also resources listed towards the bottom of the article that will provide you with additional support, specifically the Better Breathers Club – http://www.lung.org/lung-disease/copd/connect-with-others/better-breathers-clubs/. Even so, we do want you to know that we are here for you and we love hearing from you. So please keep us updated. Thinking of you today and sending lots of good energy your way.

    Warmly,

    Meaghan (COPD.net Team)

  • Leon Lebowitz, BA, RRT moderator
    3 years ago

    Hi Krissy and welcome! In addition to all the links to useful information that Meaghan has provided, I thought this overview of COPD medications might prove to be helpful to you as well. https://copd.net/treatment/medication-overview/
    We are so pleased that you found our site and appreciate you sharing your health care experiences and challenges with us. Please feel free to participate here as often as you like. We are all here to provide support for you and information.
    Best regards, Leon (site moderator)

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